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The Discourse of DNA: What Research Subjects Say About Participating (or Not) in a Genomic BiobankJohn M. ConleyUniversity of North Carolina (UNC) at Chapel Hill - School of Law R. Jean CadiganUniversity of North Carolina (UNC) at Chapel Hill - Department of Social Medicine Arlene DavisUniversity of North Carolina (UNC) at Chapel Hill - Department of Social Medicine Allison W. DobsonUniversity of North Carolina at Chapel Hill - Center for Genomics and Society Erin EdwardsUniversity of North Carolina (UNC) at Chapel Hill - School of Law Wendell FortsonUniversity of North Carolina (UNC) at Chapel Hill Robert MitchellDuke University UNC Legal Studies Research Paper No. 1554744 Abstract: This paper reports the results of a qualitative linguistic analysis of interviews with persons who were asked to contribute DNA samples to a genomic biobank. We compare this folk discourse of biobanking to the expert discourse reflected in an extensive biomedical literature. Our most significant finding concerns the social nature of giving informed consent: whereas medical research practice treats it as an event, our subjects talk about it as a discursive process. Our subjects also expound fascinating folk theories of genetics and discuss their views of the sample contribution itself, revealing some remarkable folk-legal theories of that transaction.
Number of Pages in PDF File: 56 working papers seriesDate posted: February 18, 2010Suggested CitationContact Information
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