Abstract

http://ssrn.com/abstract=1554744
 
 

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The Discourse of DNA: What Research Subjects Say About Participating (or Not) in a Genomic Biobank


John M. Conley


University of North Carolina (UNC) at Chapel Hill - School of Law

R. Jean Cadigan


University of North Carolina (UNC) at Chapel Hill - Department of Social Medicine

Arlene Davis


University of North Carolina (UNC) at Chapel Hill - Department of Social Medicine

Allison W. Dobson


University of North Carolina at Chapel Hill - Center for Genomics and Society

Erin Edwards


University of North Carolina (UNC) at Chapel Hill - School of Law

Wendell Fortson


University of North Carolina (UNC) at Chapel Hill

Robert Mitchell


Duke University


UNC Legal Studies Research Paper No. 1554744

Abstract:     
This paper reports the results of a qualitative linguistic analysis of interviews with persons who were asked to contribute DNA samples to a genomic biobank. We compare this folk discourse of biobanking to the expert discourse reflected in an extensive biomedical literature. Our most significant finding concerns the social nature of giving informed consent: whereas medical research practice treats it as an event, our subjects talk about it as a discursive process. Our subjects also expound fascinating folk theories of genetics and discuss their views of the sample contribution itself, revealing some remarkable folk-legal theories of that transaction.

Number of Pages in PDF File: 56

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Date posted: February 18, 2010  

Suggested Citation

Conley, John M. and Cadigan, R. Jean and Davis, Arlene and Dobson, Allison W. and Edwards, Erin and Fortson, Wendell and Mitchell, Robert, The Discourse of DNA: What Research Subjects Say About Participating (or Not) in a Genomic Biobank. UNC Legal Studies Research Paper No. 1554744. Available at SSRN: http://ssrn.com/abstract=1554744 or http://dx.doi.org/10.2139/ssrn.1554744

Contact Information

John M. Conley (Contact Author)
University of North Carolina (UNC) at Chapel Hill - School of Law ( email )
Van Hecke-Wettach Hall, 160 Ridge Road
CB #3380
Chapel Hill, NC 27599-3380
United States
919-962-8502 (Phone)
R. Jean Cadigan
University of North Carolina (UNC) at Chapel Hill - Department of Social Medicine
Chapel Hill, NC 27599
United States
Arlene Davis
University of North Carolina (UNC) at Chapel Hill - Department of Social Medicine ( email )
Chapel Hill, NC 27599
United States
Allison W. Dobson
University of North Carolina at Chapel Hill - Center for Genomics and Society ( email )
Chapel Hill, NC 27599
United States
Erin Edwards
University of North Carolina (UNC) at Chapel Hill - School of Law ( email )
Van Hecke-Wettach Hall, 160 Ridge Road
CB #3380
Chapel Hill, NC 27599-3380
United States
Wendell Fortson
University of North Carolina (UNC) at Chapel Hill ( email )
Chapel Hill, NC 27599
United States
Robert Mitchell
Duke University ( email )
100 Fuqua Drive
Durham, NC 27708-0204
United States
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