Abstract

http://ssrn.com/abstract=1679910
 


 



Is Deidentification Sufficient to Protect Health Privacy in Research?


Mark A. Rothstein


University of Louisville - Institute for Bioethics, Health Policy, and Law; University of Louisville - Louis D. Brandeis School of Law

September 20, 2010

American Journal of Bioethics, Vol. 10, No. 9, pp. 3-11, 2010

Abstract:     
The revolution in health information technology has enabled the compilation and use of large data sets of health records for genomic and other research. Extensive collections of health records, especially those linked with biological specimens, are also extremely valuable for outcomes research, quality assurance, public health surveillance, and other beneficial purposes. The manipulation of large quantities of health information, however, creates substantial challenges for protecting the privacy of patients and research subjects. The strategy of choice for many health care providers and research institutions in dealing with this challenge has been to de-identify individual health information.

Number of Pages in PDF File: 9

Keywords: Privacy, Electronic Health Records, EHRs, Deidentification, Research, HIPAA Privacy Rule, Common Rule, Group Harms, Autonomy, Biobanks

JEL Classification: K31, K32

Accepted Paper Series


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Date posted: September 22, 2010  

Suggested Citation

Rothstein, Mark A., Is Deidentification Sufficient to Protect Health Privacy in Research? (September 20, 2010). American Journal of Bioethics, Vol. 10, No. 9, pp. 3-11, 2010. Available at SSRN: http://ssrn.com/abstract=1679910

Contact Information

Mark A. Rothstein (Contact Author)
University of Louisville - Institute for Bioethics, Health Policy, and Law ( email )
Louisville, KY 40202
United States
HOME PAGE: http://www.louisville.edu/bioethics
University of Louisville - Louis D. Brandeis School of Law ( email )
Wilson W. Wyatt Hall
Louisville, KY 40292
United States
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