Abstract

http://ssrn.com/abstract=1753029
 
 

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Using NHS Patient Data for Research Without Consent


Ian Brown


University of Oxford - Oxford Internet Institute

Lindsey Brown


University of Bristol - School of Social and Community Medicine

Douwe Korff


Oxford Martin School - Global Cyber Capacity Centre; Eur. Univ. Viadrina - Centre for Internet & Human Rights; Yale University - Information Society Project; London Metropolitan University


Law, Innovation and Technology, Vol. 2, No. 2, pp. 219-258, December 2010

Abstract:     
This article analyses the legality of the use of electronic patient records in the NHS for research without explicit patient consent under UK and EU law, with particular reference to the adequacy of the information provided to patients and the increasing difficulties of achieving de-identification. In section II, we describe the main NHS databases used for medical research purposes in England and the transparency of this use, and the general problem of re-identification. In section III, we examine the English common law position of confidentiality in relation to the use of medical records for research. Section IV sets out the European data protection standards on such use of that data. In section V, we summarise our findings and assessments and set out our conclusions and recommendations.

Number of Pages in PDF File: 52

Keywords: Anonymisation, Privacy, Personally Identifiable Information

JEL Classification: I18, K3, O33


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Date posted: February 1, 2011  

Suggested Citation

Brown, Ian and Brown, Lindsey and Korff, Douwe, Using NHS Patient Data for Research Without Consent. Law, Innovation and Technology, Vol. 2, No. 2, pp. 219-258, December 2010. Available at SSRN: http://ssrn.com/abstract=1753029

Contact Information

Ian Brown (Contact Author)
University of Oxford - Oxford Internet Institute ( email )
1 St. Giles
University of Oxford
Oxford, OX1 3JS
United Kingdom
HOME PAGE: http://www.oii.ox.ac.uk/people/?id=117
Lindsey Brown
University of Bristol - School of Social and Community Medicine ( email )
Senate House
Tyndall Avenue
Bristol
United Kingdom
Douwe Korff
Oxford Martin School - Global Cyber Capacity Centre ( email )
University of Oxford
34 Broad Street
Oxford, OX1 3BD
United Kingdom
Eur. Univ. Viadrina - Centre for Internet & Human Rights ( email )
Grosse Scharrnstr. 59
Frankfurt (Oder), 15230
Germany
Yale University - Information Society Project ( email )
P.O. Box 208206
New Haven, CT 06520-8206
United States
London Metropolitan University ( email )
London
United Kingdom
Feedback to SSRN


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