Genes and Plays: Bringing ELSI Issues to Life
Karen H. Rothenberg
University of Maryland Francis King Carey School of Law
Lynn Wein Bush
Columbia University Medical Center, Center for Bioethics
February 1, 2012
Genetics in Medicine, Vol. 14, No. 2, pp. 274-277, 2012
U of Maryland Legal Studies Research Paper No. 2012-14
Ethical complexities surround the promise of genomic technology and the power of genetic information as they alter conceptions of identity and dynamics within personal and professional relationships. Creative approaches such as dramatic vignettes offer a unique analytical stage for imagining the bioethical past and future. Dramatic narratives can bring to life images of differing perspectives and values when experiencing innovations in medicine. Although the scientific landscape shifts, concerns expressed in theatre from 50 years ago parallel many contemporary ELSI (ethical, legal and social implications) issues, highlighting the ongoing struggle to appreciate the impact of emerging genetic technologies on relationships. To illuminate these enduring concerns, we explore how perceptions and relationships have influenced - and been influenced by - genetics as portrayed through dramatic vignettes. We build on the legacy of using case vignettes as a clinical teaching modality, and believe similar value exists within the research ethics domain. The selection of dialogue discussed encompasses abbreviated excerpts from two existing and one original vignette that we staged at the ELSI 2011 Congress and various academic and health institutions.
Number of Pages in PDF File: 5
Keywords: genetics, genomic research, plays, vignettes, ELSI
Date posted: March 14, 2012
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