Abstract

http://ssrn.com/abstract=2135320
 


 



Avoiding Genetic Genocide: Understanding Good Intentions and Eugenics in the Complex Dialogue between the Medical and Disability Communities


Rebecca Leah Levine


University of Washington - School of Law

Paul Steven Miller


University of Washington School of Law

August 23, 2012

Genet Med. 2012 Aug 16. doi: 10.1038/gim.2012.102.

Abstract:     
The relationship between the medical and disability communities is complex and is influenced by historical, social, and cultural factors. Although clinicians, health-care researchers, and people with disabilities all work from the standpoint of the best interest of disabled individuals, the notion of what actually is "best" is often understood quite differently among these constituencies. Eugenics campaigns, legal restrictions on reproductive and other freedoms, and prenatal testing recommendations predicated on the lesser worth of persons with disabilities have all contributed toward the historic trauma experienced by the disability community, particularly with respect to medical genetics. One premise of personalized medicine is that different individuals require different solutions. Disabled persons' experiences are a reminder that these solutions can be best realized by maintaining awareness and sensitivity in a complex ethical and moral terrain. Geneticists should recognize that their research may have implications for those with disabilities; they should recognize the impact of the historical trauma of the eugenics movement, and seek to involve people with disabilities in discussions about policies that affect them. Dialogue can be messy and uncomfortable, but it is the only way to avoid the mistakes of the past and to ensure a more equitable, and healthful, future.

Keywords: disability, eugenics, healthcare, provider-patient relationship, stigma

Accepted Paper Series


Not Available For Download

Date posted: August 23, 2012  

Suggested Citation

Levine, Rebecca Leah and Miller, Paul Steven, Avoiding Genetic Genocide: Understanding Good Intentions and Eugenics in the Complex Dialogue between the Medical and Disability Communities (August 23, 2012). Genet Med. 2012 Aug 16. doi: 10.1038/gim.2012.102.. Available at SSRN: http://ssrn.com/abstract=2135320

Contact Information

Rebecca Leah Levine (Contact Author)
University of Washington - School of Law ( email )
William H. Gates Hall
Box 353020
Seattle, WA 98105-3020
United States
Paul Steven Miller
University of Washington School of Law ( email )
William H. Gates Hall
Box 353020
Seattle, WA 98105-3020
United States
206-616-3137 (Phone)
206-543-2164 (Fax)
HOME PAGE: http://www.law.washington.edu/Directory/Profile.aspx?ID=148

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