State Law Protection of Genomic Privacy: Achieving a Consistent Floor
This paper will describe and catalog the state laws that protect against surreptitious testing and sequencing of genomic materials. States have taken a variety of approaches to protecting against surreptitious testing. As a result, the extent to which an individual is protected from surreptitious genomic testing turns on the state in which the individual resides. This paper will examine various state laws that govern surreptitious testing, and assess the strengths and weaknesses of various approaches — a critical first step towards developing the consistent floor of privacy protections recommended by the Presidential Commission for the Study of Bioethical Issues.
Keywords: genetics, genomics, whole genome sequencing, state, law, legislation, bioethicsworking papers series
Date posted: October 25, 2013
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