State Law Protection of Genomic Privacy: Achieving a Consistent Floor

Nicolle Strand


October 2013

This paper will describe and catalog the state laws that protect against surreptitious testing and sequencing of genomic materials. States have taken a variety of approaches to protecting against surreptitious testing. As a result, the extent to which an individual is protected from surreptitious genomic testing turns on the state in which the individual resides. This paper will examine various state laws that govern surreptitious testing, and assess the strengths and weaknesses of various approaches — a critical first step towards developing the consistent floor of privacy protections recommended by the Presidential Commission for the Study of Bioethical Issues.

Keywords: genetics, genomics, whole genome sequencing, state, law, legislation, bioethics

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Date posted: October 25, 2013  

Suggested Citation

Strand, Nicolle, State Law Protection of Genomic Privacy: Achieving a Consistent Floor (October 2013). Available at SSRN: http://ssrn.com/abstract=2343724

Contact Information

Nicolle Strand (Contact Author)
Independent ( email )
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