Mark A. Rothstein

University of Louisville - Institute for Bioethics, Health Policy, and Law

Herbert F. Boehl Chair of Law & Medicine; Director of Institute for Bioethics, Health Policy, & Law

Louisville, KY 40202

United States

http://www.louisville.edu/bioethics

University of Louisville - Louis D. Brandeis School of Law

Wilson W. Wyatt Hall

Louisville, KY 40292

United States

SCHOLARLY PAPERS

111

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SSRN CITATIONS
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49

CROSSREF CITATIONS

117

Scholarly Papers (111)

1.

From SARS to Ebola: Legal and Ethical Considerations for Modern Quarantine

Indiana Health Law Review, vol.12, no.1, 2015 Forthcoming, University of Louisville School of Law Legal Studies Research Paper Series No. 2015-03
Number of pages: 54 Posted: 16 Jun 2015
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 2,338 (7,397)
Citation 3

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quarantine, SARS, ebola, public health, isolation, health law, bioethics, epidemics

2.

Rethinking the Meaning of Public Health

Journal of Law, Medicine & Ethics, Vol. 30, No. 2, 2002
Number of pages: 6 Posted: 17 Sep 2002
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 1,016 (27,081)
Citation 1

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3.

The Ghost in Our Genes: Legal and Ethical Implications of Epigenetics

Health Matrix: Journal of Law-Medicine, Vol. 19, No. 1, 2009, University of Louisville School of Law Legal Studies Research Paper Series No. 2010-02
Number of pages: 63 Posted: 04 Jun 2008 Last Revised: 17 Feb 2014
Mark A. Rothstein, Yu Cai and Gary E. Marchant
University of Louisville - Institute for Bioethics, Health Policy, and Law, Arizona State University and Arizona State University - College of Law
Downloads 815 (36,903)

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Epigenetics, genetic, environmental

4.

Ethical Issues in Big Data Health Research

Journal of Law, Medicine and Ethics, Vol. 43, No. 2, 2015 Forthcoming
Number of pages: 5 Posted: 09 Dec 2014 Last Revised: 23 Oct 2015
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 727 (43,134)
Citation 1

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Big Data, Research ethics, Common Rule, Informed consent, Autonomy, Privacy

5.

The Coronavirus Pandemic: Public Health and American Values

J.L. Med & Ethics, 48(2):2020, University of Louisville School of Law Legal Studies Research Paper Series No. 2020-6
Number of pages: 10 Posted: 18 Aug 2020 Last Revised: 19 Aug 2020
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 656 (49,418)

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Coronavirus, COVID-19, Pandemic, Public health, Quarantine, Social distancing, Surge capacity

6.

Debate Over Patient Privacy Control in Electronic Health Records

Hastings Center, Bioethics Forum, 2011
Number of pages: 3 Posted: 21 Feb 2011 Last Revised: 05 Feb 2014
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 628 (52,408)
Citation 1

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EHRs, Privacy, Patient controls, sensitive information, sequestration, granular control

7.

HIPAA Privacy Rule 2.0

Journal of Law, Medicine and Ethics, p 525, Summer 2013, University of Louisville School of Law Legal Studies Research Paper Series No. 2014-02
Number of pages: 9 Posted: 28 Jan 2013 Last Revised: 05 Feb 2014
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 420 (85,976)
Citation 1

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genetics, health records, HIPAA Privacy Rule, research, privacy, HITECH Act, GINA, HIPAA, Hitech, HITECH

8.

Privacy and Confidentiality of Genetic Information: What Rules for the New Science?

Annual Review of Genomics and Human Genetics, Vol. 2, pp. 401-433, 2001
Number of pages: 34 Posted: 04 Feb 2010
Mary Anderlik Majumder and Mark A. Rothstein
Center for Medical Ethics and Health Policy, Baylor College of Medicine and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 397 (91,747)

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DNA, Forensics, law enforcement, data banks, codis, criminal law, search and seizure, fourth amendment, privacy

9.

Is Deidentification Sufficient to Protect Health Privacy in Research?

American Journal of Bioethics, Vol. 10, No. 9, pp. 3-11, 2010
Number of pages: 9 Posted: 22 Sep 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 358 (103,336)
Citation 2

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Privacy, Electronic Health Records, EHRs, Deidentification, Research, HIPAA Privacy Rule, Common Rule, Group Harms, Autonomy, Biobanks

10.

Does Consent Bias Research?

Am.J.Bioethics 13(4), 2013
Number of pages: 11 Posted: 06 Apr 2013
Mark A. Rothstein and Abigail Shoben
University of Louisville - Institute for Bioethics, Health Policy, and Law and Ohio State University (OSU) - College of Medicine and Public Health
Downloads 339 (109,776)

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research ethics, informed consent, consent bias, selection bias

11.

The Limits of Public Health: A Response

Public Health Ethics, Vol .2, pp. 84-88, 2009
Number of pages: 5 Posted: 29 Sep 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 335 (111,296)
Citation 1

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Public health, population health, human rights

12.

Ethical, Legal and Social Implications of Incorporating Personalized Medicine into Healthcare

Future Medicine, Vol. 15, No. 12, 43-51 (2014)
Number of pages: 9 Posted: 10 Jan 2015 Last Revised: 15 Mar 2017
Kyle Brothers and Mark A. Rothstein
University of Louisville - School of Medicine and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 286 (131,733)

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genetic discrimination, genomics, health disparities, personalized medicine, privacy, data protection

13.

Autonomy and Paternalism in Health Policy

Journal of Law, Medicine and Ethics, Vol. 42, No. 4, 2014
Number of pages: 5 Posted: 11 Apr 2014 Last Revised: 21 Jan 2015
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 259 (145,889)

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Health Policy, Bioethics, Autonomy, Paternalism, Personal Health Records, CLIA, Direct-to-consumer genetic testing, soft drink regulation

14.

Time to End the Use of Genetic Test Results in Life Insurance Underwriting

Journal of Law, Medicine and Ethics, Vol. 46, No. 3, 2018
Number of pages: 9 Posted: 30 Mar 2018 Last Revised: 17 Jun 2021
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 256 (147,565)

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Adverse Selection, Genetic Discrimination, Genetic Testing, Life Insurance, Medical Underwriting

15.

Privacy and Technology in the Twenty-First Century

University of Louisville Law Review, Vol. 52, No. 2, 2014
Number of pages: 12 Posted: 19 Feb 2014
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 251 (150,466)

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Privacy, technology, security, surveillance, genetic testing, constitutional law

16.

Tarasoff Duties after Newtown

Journal of Law, Medicine and Ethics, Vol. 42, No. 1, 2014, University of Louisville School of Law Legal Studies Research Paper Series No. 2014-17
Number of pages: 7 Posted: 15 Sep 2013 Last Revised: 25 Jun 2014
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 250 (151,085)
Citation 1

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duty to warn, duty to protect, tarasoff, confidentiality, mental health, HIPAA Privacy Rule, FERPA

17.

The Expanding Use of DNA in Law Enforcement: What Role for Privacy?

Journal of Law, Medicine & Ethics, Vol. 34, pp. 153-164, Summer 2006
Number of pages: 12 Posted: 25 Nov 2009 Last Revised: 28 Feb 2014
Mark A. Rothstein and Meghan K. Talbott
University of Louisville - Institute for Bioethics, Health Policy, and Law and University of Louisville School of Medicine
Downloads 244 (154,641)

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DNA, forensics, law enforcement, genetics, databases, search and seizure, privacy

18.

DNA-Based Identity Testing and the Future of the Family: A Research Agenda

American Journal of Law and Medicine, Vol. 28, pp. 215-232, 2002
Number of pages: 18 Posted: 05 Feb 2010
Mary Anderlik Majumder and Mark A. Rothstein
Center for Medical Ethics and Health Policy, Baylor College of Medicine and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 239 (157,740)

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Americans with disabilities Act, ADA, disability, medical criteria, definition, coverage, impairment

19.

The End of the HIPAA Privacy Rule?

Journal of Law, Medicine and Ethics, Vol. 44, No. 2, 2016
Number of pages: 7 Posted: 05 Feb 2016 Last Revised: 07 Jun 2016
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 190 (195,592)

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HIPAA, Privacy Rule, Common Rule, Research, Privacy, 21st Century Cures Act, Fundraising, Marketing, Human Subjects

20.

Biobank Research and Privacy Laws in the United States

Journal of Law, Medicine and Ethics, Vol. 44, No. 1, 2016, University of Louisville School of Law Legal Studies Research Paper Series No. 2016-8
Number of pages: 23 Posted: 02 May 2016 Last Revised: 16 Sep 2016
Heather L. Harrell and Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 189 (196,526)

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biobanks, research ethics, privacy, common rule, HIPAA Privacy Rule, consent, HITECH Act, EU-US Safe Harbor, specimens, medical records

21.

Research Privacy Under HIPAA and the Common Rule

Journal of Law, Medicine and Ethics, Vol. 33, No. 1, p. 154, 2005
Number of pages: 7 Posted: 06 Dec 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 188 (197,466)
Citation 1

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research, privacy, HIPAA Privacy Rule, Common rule, IRBs, deidentification, consent

22.

Putting the Genetic Information Nondiscrimination Act in Context

Genetics in Medicine, Vol. 10, No. 9, pp. 655-656, 2008
Number of pages: 2 Posted: 21 Nov 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 183 (202,222)

Abstract:

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Genetic Information Nondiscrimination Act, GINA, genetics, discrimination

23.

Employer Liability for 'Take-Home' COVID-19

Forthcoming, 49 J.L. Med. and Ethics (1):__(2021), University of Louisville School of Law Legal Studies Research Paper Series No. 2021-2
Number of pages: 11 Posted: 07 Dec 2020 Last Revised: 06 Feb 2021
Mark A. Rothstein and Julia Irzyk
University of Louisville - Institute for Bioethics, Health Policy, and Law and Independent
Downloads 179 (206,183)

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COVID-19, Employer liability, Essential workers, Immunity, Negligence, OSHA, SARS-CoV-2, Take-home exposure, Workers’ compensation

24.

Keeping Your Genes Private

Scientific American, pp. 64-69, September, 2008
Number of pages: 6 Posted: 06 Oct 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 177 (208,186)

Abstract:

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genetics, privacy, electronic health laws, GINA, NHIN, genetic test, nationwide health information network, genetic information nondiscrimination act

25.

GINA, the ADA, and Genetic Discrimination in Employment

Journal of Law, Medicine and Ethics, Vol. 36, No. 4, 2008
Number of pages: 4 Posted: 29 Sep 2009 Last Revised: 13 Dec 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 172 (213,365)
Citation 1

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Genetic Information Nondiscrimination Act, GINA, Americans with Disabilities Act, ADA

26.

Ethical and Legal Implications of Pharmacogenomics

Nature Reviews Genetics, Vol. 2, No. 2, pp. 228-231, 2001
Number of pages: 4 Posted: 05 Feb 2010
Phyllis Griffin Epps and Mark A. Rothstein
Independent and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 167 (218,804)

Abstract:

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genetic testing, alzheimers disease, long term care insurance, discrimination, long-term care

27.

Ethical Responsibilities of Physicians in the Opioid Crisis

Journal of Law, Medicine and Ethics, Vol. 45, No. 4, 2017
Number of pages: 6 Posted: 17 Oct 2017 Last Revised: 15 Jun 2021
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 164 (222,205)

Abstract:

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addiction, ethics, opioids, opioid use disorder, pain, prescription drug monitoring programs

28.

The Law of Genetic Privacy: Applications, Implications, and Limitations

Journal of Law and the Biosciences, 1–36, 2019, Vanderbilt Law Research Paper No. 20-36
Number of pages: 37 Posted: 17 Jun 2020 Last Revised: 06 Nov 2020
Vanderbilt University - Law School, University of Florida Levin College of Law, Center for Genetic Privacy & Identity in Community Settings, Vanderbilt University Medical Center and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 158 (229,292)
Citation 6

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DNA, genetics, genomics, GINA, HIPAA, privacy

29.

Structural Challenges of Precision Medicine

Journal of Law, Medicine and Ethics, Vol. 45, No. 2, (2017)
Number of pages: 6 Posted: 14 Apr 2017 Last Revised: 15 Jun 2021
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 152 (236,786)
Citation 1

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Big Data, Genomics, Health Privacy, HIPAA Privacy Rule, Personalized Medicine, Pharmacogenomics, Physician-Patient, Precision Medicine, Precision Medicine Initiative

30.

The Case Against Precipitous, Population-Wide, Whole-Genome Sequencing

Journal of Law, Medicine and Ethics, Vol. 40, No. 3, 2012, University of Louisville School of Law Legal Studies Research Paper Series No. 2013-05
Number of pages: 17 Posted: 10 Nov 2012
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 152 (236,786)

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genomics, whole genome sequencing, medical screening, genetics, health policy, health privacy, clinical genetics

31.

Access to Sensitive Information in Segmented Electronic Health Records

Journal of Law, Medicine and Ethics, Vol. 40, No. 2, 2012, University of Louisville School of Law Legal Studies Research Paper Series No. 2012-08
Number of pages: 7 Posted: 24 May 2012 Last Revised: 05 Feb 2014
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 144 (247,502)

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Privacy, Electronic Health Records, Americans with Disabilities Act, Genetic Information Nondiscrimination Act, Health Information Technology

32.

Constitutional Right to Informational Health Privacy in Critical Condition

Journal of Law, Medicine and Ethics, Vol. 39, No. 2, p. 280, 2011, University of Louisville School of Law Legal Studies Research Paper Series No. 2011-13
Number of pages: 7 Posted: 18 May 2011 Last Revised: 22 Sep 2011
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 144 (247,502)

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health privacy, right to privacy, constitutional law, invasion of privacy, privacy act

33.

Health Information Technology and Physicians’ Duty to Notify Patients of New Medical Developments

Houston Journal of Health Law and Policy, Vol. 12, No. 1, 2012 Forthcoming
Number of pages: 44 Posted: 08 Aug 2012 Last Revised: 24 Feb 2014
Mark A. Rothstein and Gil Siegal
University of Louisville - Institute for Bioethics, Health Policy, and Law and University of Virginia School of Law
Downloads 141 (251,684)

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physician-patient relationship, health information technology, duty to warn, adverse drug reactions, medical device recalls

34.

The Hippocratic Bargain and Health Information Technology

Journal of Law, Medicine and Ethics, Vol. 38, No. 1, 2010
Number of pages: 7 Posted: 16 Apr 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 137 (257,502)

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Hippocratic oath, health information technology, HIT, electronic health records, EHR, privacy, confidentiality, physician-patient relationship, limited disclosure, HIPAA Privacy Rule, medical ethics

35.

Health Care Reform and Medical Malpractice Claims

Journal of Law, Medicine and Ethics, Vol. 38, No. 4, p. 871, 2010
Number of pages: 5 Posted: 07 Dec 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 133 (263,415)

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Health Reform, Medical Malpractice, Tort Reform, Health Quality, Patient Protection, Affordable Care Act

36.

Health Privacy and the Facebook Generation

Bioethics Forum, 2009
Number of pages: 2 Posted: 08 Dec 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 132 (264,902)

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Privacy, facebook, heath informaion technology, HIT, electronic health records, EHRs, social networking

37.

The Future of Public Health Ethics

American Journal of Public Health, Vol. 102, No. 1, p. 9, 2012, University of Louisville School of Law Legal Studies Research Paper Series No. 2012-06
Number of pages: 2 Posted: 21 Dec 2011
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 130 (267,955)

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public health, ethics, public health genetics, health information technology, HIT

38.

How Genetics Might Affect Real Property Rights

Journal of Law, Medicine and Ethics, Vol. 44, No. 1, 2016, University of Louisville School of Law Legal Studies Research Paper Series No. 2016-3
Number of pages: 6 Posted: 20 Dec 2015 Last Revised: 28 Apr 2016
Mark A. Rothstein and Laura Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law and University of Louisville - Louis D. Brandeis School of Law
Downloads 126 (274,356)

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Alzheimer’s disease, Cal GINA, discrimination, Fair Housing Act, genetics, GINA, long-term care, and real property

39.

Gina's Beauty is Only Skin Deep

Gene Watch, Vol. 22, No. 2, pp. 9-12, 2009
Number of pages: 3 Posted: 07 Dec 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 122 (281,040)
Citation 1

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Genetic Information Nondiscrimination Act, GINA, genetic discrimination, health insurance, employment, americans with disabilities act, ADA, electronic health records, EHRs

40.

Citizen Science on Your Smartphone: An ELSI Research Agenda

Journal of Law, Medicine & Ethics 43(4) (2015)
Number of pages: 7 Posted: 19 Nov 2015 Last Revised: 25 Apr 2016
Mark A. Rothstein, John Wilbanks and Kyle Brothers
University of Louisville - Institute for Bioethics, Health Policy, and Law, Sage Bionetworks and University of Louisville - School of Medicine
Downloads 120 (284,423)
Citation 1

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Citizen science, Common Rule, ELSI, FDA, Health research, IRBs, Mobile health, Smartphones

41.

Using Established Medical Criteria to Define Disability: A Proposal to Amend the Americans with Disabilities Act

Washington University Law Quarterly, Vol. 80, No. 2, pp. 243-301, 2002
Number of pages: 59 Posted: 12 Feb 2010 Last Revised: 12 Jan 2016
Mark A. Rothstein, Serge Martinez and William McKinney
University of Louisville - Institute for Bioethics, Health Policy, and Law, University of Louisville and University of Louisville - School of Medicine
Downloads 120 (284,423)

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Americans with disabilities act, ADA, disabilities, discrimination, definition of disability, amendments, medical criteria

42.

Are Traditional Public Health Strategies Consistent with Contemporary American Values?

Temple Law Review, Vol. 77, No. 2, p. 175, 2004
Number of pages: 18 Posted: 06 Dec 2009 Last Revised: 13 Dec 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 116 (291,287)
Citation 1

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public health, SARS, law, spanish flu, quarantine, epidemics

43.

Genetic Privacy and Confidentiality: Why They Are So Hard to Protect

Journal of Law, Medicine and Ethics, Vol. 26, No. 3, 1998
Number of pages: 7 Posted: 12 Feb 2010 Last Revised: 19 Feb 2014
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 110 (302,253)
Citation 3

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Privacy, confidentiality, genetics, health insurance, life insurance, long-term insurance, employment discrimination, american with disabilities act, ADA

44.

Health Insurance Reforms: Unintended Consequences

The Hastings Center Bioethics Forum, Forthcoming
Number of pages: 2 Posted: 14 Feb 2010 Last Revised: 06 Nov 2012
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 109 (304,185)

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Health reform, health insurance, individual health insurance, group health insurance, health legislation, access to health care

45.

The Role of IRBs in Research Involving Commercial Biobanks

Journal of Law, Medicine and Ethics, Vol. 30, No. 1, 105-108, 2002
Number of pages: 4 Posted: 12 Feb 2010 Last Revised: 20 Sep 2014
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 108 (306,133)

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Institutional Review Boards, IRB, IRBs, Biobanks, medical records, consent, privacy, confidentiality, biological specimens, research

46.

Who Will Treat Medicaid and Uninsured Patients? Retired Providers Can Help

Journal of Law, Medicine and Ethics, Vol. 39, No. 1, 2011, University of Louisville School of Law Legal Studies Research Paper Series No. 2011-14
Number of pages: 7 Posted: 08 Mar 2011 Last Revised: 22 Sep 2011
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 106 (310,142)

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Health reform, patirnt protection and affordable care act, medicaid, uninsured, access to health care, physician shortage, retired physicians, volunteers in medicine, other

47.

Limiting Occupational Medical Evaluations Under the Americans with Disabilities Act and the Genetic Information Nondiscrimination Act

American Journal of Law and Medicine, Vol. 41, No. 4, 2015, U of Houston Law Center No. 2016-A-4
Number of pages: 45 Posted: 26 Jan 2016 Last Revised: 06 Jun 2016
Mark A. Rothstein, Jessica L. Roberts and Tee L. Guidotti
University of Louisville - Institute for Bioethics, Health Policy, and Law, University of Houston Law Center and George Washington University - School of Public Health and Health Services (SPHHS)
Downloads 105 (312,080)

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Americans with Disabilities Act, ADA, Fitness for duty examinations, Genetic Information Nondiscrimination Act, GINA, occupational medicine, occupational physicians, Occupational Safety and Health Act, OSHA, OSH Act, Physician-patient relationship

48.

Ethical Implications of Epigenetics Research

Nature Reviews Genetics, Vol. 10 No. 4, April 2009
Number of pages: 1 Posted: 07 Dec 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 105 (312,080)

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epigenetics, genetics, research, environmental justice, intergenerational justice, access to health care, privacy, risk assessment

49.

What is Genetic Discrimination and When and How Can it Be Prevented?

Genetics In Medicine, Vol. 3, No. 5, pp. 354-358, 2001
Number of pages: 5 Posted: 13 Jan 2010
Mary Anderlik Majumder and Mark A. Rothstein
Center for Medical Ethics and Health Policy, Baylor College of Medicine and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 101 (320,353)
Citation 1

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Institutional Review Boards, IRBs, research, biobank, research ethics, ethics, consent, HIPAAA privacy rule

50.

Unregulated Health Research Using Mobile Devices: Ethical Considerations and Policy Recommendations

J.L. Med & Ethics, 48(Supp. 1) 2020
Number of pages: 31 Posted: 21 Nov 2019 Last Revised: 30 Apr 2020
University of Louisville - Institute for Bioethics, Health Policy, and Law, Sage Bionetworks, Duke University - Institute for Genome Sciences & Policy, Vanderbilt University - Center for Biomedical Ethics and Society, University of Louisville - School of Medicine, Sage Bionetworks, University of Florida Levin College of Law, Independent, affiliation not provided to SSRN and University of Nevada, Las Vegas, William S. Boyd School of Law
Downloads 99 (324,492)
Citation 1

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Citizen Science, Common Rule, FDA, IRB, IRBs, Mobile Devices, NIH, Research Ethics

51.

Some Lingering Concerns About the Precision Medicine Initiative

Forthcoming in 43(3 ) Journal of Law, Medicine and Ethics __ (2016)
Number of pages: 6 Posted: 11 Jul 2016 Last Revised: 12 Oct 2016
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 98 (326,650)
Citation 1

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Affordable Care Act, Big data, Genetics, Genomics, Health literacy, Health privacy, Health research, HIPAA Privacy Rule, Personalized medicine, Precision Medicine Initiative

52.

Health Risk Reduction Programs in Employer-Sponsored Health Plans: Part I - Efficacy

Journal of Occupational and Environmental Medicine, Vol. 51, No. 8, August 2009
Number of pages: 8 Posted: 22 Sep 2009 Last Revised: 13 Dec 2009
Mark A. Rothstein and Heather L. Harrell
University of Louisville - Institute for Bioethics, Health Policy, and Law and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 94 (335,455)

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Occupational Health, Employee Benefits, Health Risk Assessment, Wellness Programs, Health Risk Reduction Programs

53.

Physicians' Duty to Inform Patients of New Medical Discoveries: The Effect of Health Information Technology

Journal of Law, Medicine and Ethics, Vol. 39, No. 4, 2011
Number of pages: 5 Posted: 13 Dec 2011
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 92 (340,018)

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Health Information Technology, Physician-patient relationship, notification of new discoveries, electronic health records, EHR

54.

The Latest Challenge to Health Privacy: Health Care Consolidation

Bioethics Forum, The Hastings Center, May 2014, University of Louisville School of Law Legal Studies Research Paper Series No. 2014-16
Number of pages: 4 Posted: 14 May 2014
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 90 (344,782)
Citation 2

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health privacy, hospitals, electronic health records, EHR, health information exchange, HIE, HIPAA Privacy Rule, Physician practices, health care consolidation

55.

Predictive Genetic Testing for Alzheimer's Disease in Long-Term Care Insurance

Georgia Law Review, Vol. 35, No. 2, p. 707, 2001
Number of pages: 28 Posted: 05 Feb 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 90 (344,782)
Citation 2

Abstract:

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privacy, confidentiality, genetics, genetic discrimination, genetic research, biobanks, pharmacogenomics, genetic information

56.

Protecting Genetic Privacy By Permitting Employer Access Only to Job-Related Employee Medical Information: Analysis of a Unique Minnesota Law

American Journal of Law and Medicine, Vol. 24, No. 2, 1998
Number of pages: 18 Posted: 07 Feb 1999
Mark A. Rothstein, Betsy Gelb and Steven G. Craig
University of Louisville - Institute for Bioethics, Health Policy, and Law, University of Houston - C.T. Bauer College of Business and University of Houston - Department of Economics
Downloads 86 (354,530)

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57.

Liability Issues in Pharmacogenomics

Louisiana Law Review, Vol. .66, 117-124, 2005
Number of pages: 8 Posted: 25 Nov 2009 Last Revised: 02 Jun 2013
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 83 (362,301)
Citation 1

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genetics, genomics, pharmacogenomics, products liability, negligence, pharmaceuticals, FDA, direct to consumer advertising, off-label uses

58.

Genetic Stalking and Voyeurism: A New Challenge to Privacy

The University of Kansas Law Review, Vol. 57, No. 3, pp. 539-578, 2009
Number of pages: 40 Posted: 04 Jan 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 81 (367,570)

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genetics, privacy, invasion of privacy, gina, dna test, genetic nondiscrimination, nondiscrimination act

59.

Legal and Ethical Challenges of International Direct-to-Participant Genomic Research: Conclusions and Recommendations

J.L. Med & Ethics, 47(4) 2019
Number of pages: 27 Posted: 22 Nov 2019 Last Revised: 19 Aug 2020
University of Louisville - Institute for Bioethics, Health Policy, and Law, McGill University - Centre of Genomics and Policy, Duke University - Institute for Genome Sciences & Policy, Vanderbilt University - Center for Biomedical Ethics and Society, University of Louisville - School of Medicine, Independent, Center for Genetic Privacy & Identity in Community Settings, Vanderbilt University Medical Center, McGill University - Centre for Genomics and Policy, McGill University - Faculty of Law, affiliation not provided to SSRN, Masssachusetts Institute of Technology and Harvard University - Broad Institute and McGill University - Centre for Genomics and Policy
Downloads 78 (375,669)

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direct-to-participant research, Genomic research, international law, international research, IRBs, Research ethics

60.

The Role of Law in the Development of American Bioethics

International Journal of Bioethics, Vol. 20, 2009
Number of pages: 13 Posted: 26 Jun 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 78 (375,669)

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bioethics, research on human subjects, end-of-life decision making, health law

61.

Epigenetic Exceptionalism

Journal of Law, Medicine and Ethics 40(3) 2013
Number of pages: 4 Posted: 29 May 2013 Last Revised: 15 Jun 2021
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 77 (378,450)

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epigenetics, genetics, exceptionalism, ethics, bioethics, privacy, discrimination

62.

The Use of Genetic Information in Real Property Transactions

Probate & Property: A publication of the Real Property, Trust and Estate Law section of the American Bar Association, Volume 31, Number 3, 2017, University of Louisville School of Law Legal Studies Research Paper Series No. 2017-7
Number of pages: 7 Posted: 24 May 2017 Last Revised: 02 Jun 2017
Mark A. Rothstein and Laura Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law and University of Louisville - Louis D. Brandeis School of Law
Downloads 76 (381,231)

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63.

Health Risk Reduction Programs in Employer-Sponsored Health Plans: Part II - Law and Ethics

Journal of Occupational and Environmental Medicine, Vol. 51, No. 8, August 2009
Number of pages: 7 Posted: 19 Sep 2009 Last Revised: 01 Nov 2012
Mark A. Rothstein and Heather L. Harrell
University of Louisville - Institute for Bioethics, Health Policy, and Law and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 76 (381,231)

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HIPAA Privacy Rule, Employee Benefits, Health Risk Assessment, Wellness Programs, Health Risk Reduction Programs, ADA, GINA, Smokers Rights, Ethics

64.

Legal Conceptions of Equality in the Genomic Age

Law & Inequality, Vol. 25, pp. 429-463
Number of pages: 38 Posted: 04 Nov 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 74 (387,027)

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genetics, genomics, equality, civil rights, employment discrimination, OSHA, discrimination

65.

Comparative Approaches to Biobanks and Privacy

Journal of Law, Medicine and Ethics, Vol. 44, No. 1, 2016
Number of pages: 12 Posted: 02 May 2016
Mark A. Rothstein, Bartha Maria Knoppers and Heather L. Harrell
University of Louisville - Institute for Bioethics, Health Policy, and Law, McGill University - Centre for Genomics and Policy and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 73 (389,923)
Citation 1

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Comparative law, privacy, research ethics, biobanks, genetic research, consent, common rule, IRBs, international law, genomics

66.

Improve Privacy in Research by Eliminating Informed Consent? IOM Report Misses the Mark

Journal of Law, Medicine and Ethics, Vol. 37, No. 4, p. 507, 2009
Number of pages: 6 Posted: 01 Dec 2009 Last Revised: 11 Feb 2014
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 72 (392,934)

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Privacy, Informed Consent, IOM, Privacy rule, HIPAA, research

67.

Legal and Policy Issues in Expanding the Scope of Law Enforcement DNA Data Banks

Brooklyn Law Review , Vol. 67, No. 1, 2001
Number of pages: 52 Posted: 04 Feb 2010
Mark A. Rothstein and Sandra J. Carnahan
University of Louisville - Institute for Bioethics, Health Policy, and Law and South Texas College of Law
Downloads 69 (402,124)
Citation 2

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Pharmacogenomics, Race, Ethnicity, Research, Genomics, Data Bank, DNA, Law Enforcement

68.

Flattening the Curve - Then What?

Hastings Bioethics Forum (March 23, 2020), University of Louisville School of Law Legal Studies Research Paper Series No. 2020-5
Number of pages: 5 Posted: 18 Aug 2020 Last Revised: 19 Aug 2020
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 68 (405,250)

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Coronavirus, flattening the curve, pandemic, public health, social distancing, surge capacity

69.

The Moral Challenge of Ebola

Am. J. Pub. Health; 6-8, 105(1), 2015
Number of pages: 3 Posted: 16 Dec 2014
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 67 (408,471)
Citation 2

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public health, ebola, SARS, bioethics, infectious disease, quarantine

70.

Employer-Mandated Vaccination for COVID-19

Am. J. Pub. Hlth.11(5)2021:e1-e4, Northeastern University School of Law Research Paper No. 400-2021, UC Hastings Research Paper Forthcoming
Number of pages: 4 Posted: 08 Feb 2021 Last Revised: 14 Apr 2021
Mark A. Rothstein, Wendy E. Parmet and Dorit Rubinstein Reiss
University of Louisville - Institute for Bioethics, Health Policy, and Law, Northeastern University - School of Law and UC Hastings Law
Downloads 65 (414,976)
Citation 2

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COVID-19, Emergency use authorization, Employer mandates, OSHA, Public Health, Vaccination

71.

The Genome Sequencing and Privacy Report: A Missed Opportunity

Gene Watch, 25(5) 2012
Number of pages: 2 Posted: 23 Nov 2012
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 64 (418,265)

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Whole genome sequencing, privacy, genetic research, clincal genetics, presidential commission for the study of bioethical issues, GINA

72.

Malpractice Immunity for Volunteer Physicians in Public Health Emergencies: Adding Insult to Injury

Journal of Law, Medicine and Ethics, Vol. 38, No. 1, 2010
Number of pages: 5 Posted: 16 Apr 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 63 (421,682)

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medical malpractice, immunity, public health, emergency prepardness, volunteer physicians, altered standards of medical care, medical ethics, discrimination

73.

Expanding Access to Health Care: It Takes More than Money

Bioethics Forum, The Hastings Center, February 23, 2010
Number of pages: 2 Posted: 25 Feb 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 63 (421,682)

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acess to health care, health insurance, health reform, nonfinancial barriers

74.

Pharmacogenomics and the (Ir)Relevance of Race

The Pharmacogenomics Journal, Vol. 1, No. 2, pp. 104-108, 2001
Number of pages: 6 Posted: 05 Feb 2010
Phyllis Griffin Epps and Mark A. Rothstein
Independent and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 61 (428,402)

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genetics, genetic discrimination, discrimination, automony, justice, beneficence

75.

Compelled Disclosure of Health Information: Protecting Against the Greatest Potential Threat to Privacy

The Journal of the American Medical Association, Vol. 295, No. 24, pp. 2882-2885, 2006
Number of pages: 4 Posted: 24 Nov 2009
Meghan K. Talbott and Mark A. Rothstein
University of Louisville School of Medicine and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 60 (431,994)
Citation 2

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electronic health records, EHRs, health information technology HIT, privacy, HIPAA Privacy Rule, american disabilities act, ADA, authorizations, nationwide health information network, NHIN

76.

Predictive Health Information and Employment Discrimination under the ADA and GINA

J. L. Med. & Ethics 48(2), 2020
Number of pages: 13 Posted: 20 Mar 2020
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 59 (439,102)

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Americans With Disabilities Act, Ada, Employment Discrimination, Genetic Information Nondiscrimination Act, Gina, Genomics, Medical Screening, Precision Medicine, Predictive Health Information

77.

Ethical Research and Minorities

Am. J. Pub. Health Vol. 103(12), December 2013
Number of pages: 1 Posted: 24 Nov 2013
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 58 (439,102)

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research ethics, minoritiyt health, public health

78.

Privacy Risks of Interoperable Electronic Health Records: Segmentation of Sensitive Information Will Help

J. L. Med. & Ethics, 48, 4 (2019), UNLV William S. Boyd School of Law Legal Studies Research Paper
Number of pages: 11 Posted: 24 Oct 2019
Mark A. Rothstein and Stacey A. Tovino
University of Louisville - Institute for Bioethics, Health Policy, and Law and University of Nevada, Las Vegas, William S. Boyd School of Law
Downloads 57 (442,784)

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Electronic health records, HIPAA Privacy Rule, HITECH Act, Interoperability, National Committee on Vital and Health Statistics, Privacy, Sensitive health information

79.

Applications of Behavioural Genetics: Outpacing the Science?

Nature Reviews Genetics, Vol. 6, pp. 793-798, 2005
Number of pages: 6 Posted: 01 Dec 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 57 (442,784)
Citation 1

Abstract:

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behavioral genetics, genomics, mental disorders, addiction, personality, genetic testing, criminal law

80.

Precision Medicine and the Risk to Privacy

The SciTech Lawyer,15(1);28-32 (2018).
Number of pages: 6 Posted: 13 Sep 2018
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 56 (446,456)

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Adverse Selection, Genetic Discrimination, Genetic Testing, Life Insurance, Medical Underwriting

81.

Compelled Authorizations for Disclosure of Health Records: Magnitude and Implications

The American Journal of Bioethics, Vol. 7, No. 3, pp. 38-45, 2007
Number of pages: 9 Posted: 24 Nov 2009 Last Revised: 01 Nov 2012
Mark A. Rothstein and Meghan K. Talbott
University of Louisville - Institute for Bioethics, Health Policy, and Law and University of Louisville School of Medicine
Downloads 56 (446,456)
Citation 3

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electronic health records, EHRs, health information technology, HIT, Privacy, HIPAA Privacy Rule, authorizations, employment, life insurance, nationwide health information network, NHIN

82.

Lawsuits of Last Resort: Employees Fight for Safe Workplaces during COVID-19

University of Louisville School of Law Legal Studies Research Paper Series No. 2020-7
Number of pages: 2 Posted: 05 Aug 2020 Last Revised: 19 Aug 2020
Mark A. Rothstein and Julia Irzyk
University of Louisville - Institute for Bioethics, Health Policy, and Law and Independent
Downloads 55 (450,133)
Citation 1

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CDC, COVID-19, Occupational health, OSHA, Public nuisance, SARS-CoV-2

83.

Genetic Testing, Genetic Medicine, and Managed Care

Wake Forest Law Review, Vol. 34, No. 3, 1999
Number of pages: 40 Posted: 05 Feb 2010
Sharona Hoffman and Mark A. Rothstein
Case Western Reserve University School of Law and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 52 (461,317)

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genetics, managed care, genetic counseling, human genome project, genetic medicine, quality of care

84.

Genetic Exceptionalism and Legislative Pragmatism

The Hastings Center Report, No. 4, pp. 27-33, July-August 2005
Number of pages: 7 Posted: 03 Dec 2009 Last Revised: 13 Dec 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 49 (473,335)
Citation 3

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genetics, genetic exceptionalism, mental disorders, addiction, personality, genetic testing, criminal law

85.

Preventing the Discovery of Plaintiff Genetic Profiles by Defendants Seeking to Limit Damages in Personal Injury Litigation

Indiana Law Journal, Vol. 71, No. 4, 1996
Number of pages: 34 Posted: 05 Feb 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 46 (485,790)

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genetics, discovery, personal injury litigation, genetic information, forensics, automony, confidentiality

86.

Recommendations for Returning Genomic Incidental Findings? We Need to Talk!

Genetics in Medicine, Vol. 15, DOI:10.1038/gim.2013.113
Number of pages: 6 Posted: 30 Aug 2013
University of Washington - Department of Bioethics & Humanities, Cincinnati Children's Hospital Medical Center, University of Washington - Department of Medical Genetics, University of Utah - Pediatric Administration, Vanderbilt University - Law School, University of North Carolina (UNC) at Chapel Hill, Harvard University - Robert’s Program for Sudden Unexpected Death in Pediatrics, University of Washington - Division of Medical Genetics, Office of Public Health Genomics, McGill University - Centre for Genomics and Policy, Oregon Health and Science University, University of Chicago - Department of Pediatrics, University of Louisville - Institute for Bioethics, Health Policy, and Law, Cincinnati Children's Hospital Medical Center, University of Michigan at Ann Arbor - Medical School, University of Washington, University of Minnesota Law School and Foundation for Genomics and Population Health
Downloads 45 (490,143)

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biobank, bioethics, biorepository, genetics, genomics, human subjects research, incidental findings, research ethics; return of results

87.

Is GINA Worth the Wait?

Journal of Law, Medicine and Ethics, Vol. 36, No. 1, 2008
Number of pages: 5 Posted: 31 Oct 2009 Last Revised: 06 Nov 2012
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 45 (490,143)

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88.

Expanding the Ethical Analysis of Biobanks

Journal of Law, Medicine and Ethics, Vol. 33, No. 1, 2005
Number of pages: 13 Posted: 06 Dec 2009 Last Revised: 11 Feb 2014
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 44 (494,574)

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Biobanks, genetics, genomics research, ethics, Informed consent, common rule, HIPAA authorizations, medical recordcs, privach

89.

Deidentification and its Discontents: Response to the Open Peercommentaries

American Journal of Bioethics, Vol. 10, No. 9, pp. W1-W2, 2010
Number of pages: 2 Posted: 29 Sep 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 43 (499,013)

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Privacy, Electronic Health Records, EHRs, Research, Deidentification, Informed Consent, Human Subjects

90.

Should Health Care Providers Get Treatment Priority in an Influenza Pandemic?

Journal of Law, Medicine and Ethics, Vol. 38, No. 2, 2010
Number of pages: 8 Posted: 01 Jul 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 43 (499,013)

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bioethics, public health, pandemics, medical ethics, triage, distributive justice, emergency preparedness, medical utility

91.

Disclosing Decedents' Research Results to Relatives Violates the HIPAA Privacy Rule

American Journal of Bioethics, 12(10) 16:17 (2012)
Number of pages: 2 Posted: 18 Oct 2012
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 42 (503,489)

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HIPAA, Privacy Rule,/ Research Ethics, Deceased research subjects, Disclosure, Informational Health Privacy, Health privacy

92.

Genetic Justice

The New England Journal of Medicine, Vol. 352, No. 26, pp. 2667-2667, 2005
Number of pages: 2 Posted: 04 Dec 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 40 (512,801)

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DNA testing, Criminal law, exoneration, forensics, genetics, innocence project, CODIS, DNA data banks

93.

International Health Research After Schrems v. Data Protection Commissioner

Hastings Center Report, April 2016; 5-6
Number of pages: 2 Posted: 19 Mar 2016 Last Revised: 09 Sep 2016
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 37 (527,077)

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International Law, Health research, European Union, Safe Harbor, Data protection, Privacy, Schrems

94.

Promoting Public Health in Health Care Facilities

American Journal of Public Health 104(6), 2014, University of Louisville School of Law Legal Studies Research Paper Series No. 2015-12
Number of pages: 4 Posted: 01 Jun 2014 Last Revised: 05 May 2015
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 36 (532,148)

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public health, health promotion, hospital, health care facilities, obesity, vaccinations, influenza, children's health

95.

Job Security and Income Replacement for Individuals in Quarantine: The Need for Legislation

Journal of Health Care Law & Policy, Vol. 10, 2007
Number of pages: 19 Posted: 04 Nov 2009 Last Revised: 01 Nov 2012
Mark A. Rothstein and Meghan K. Talbott
University of Louisville - Institute for Bioethics, Health Policy, and Law and University of Louisville School of Medicine
Downloads 35 (537,297)
Citation 1

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Public Health, Quarantine, SARS, employment, ADA, FMLA, Wrongful discharge, Pandemic, Income replacement, job security

96.

Public Health and Privacy in the Pandemic

Am, J. Pub. Health 110(9):174-1175(2020).
Number of pages: 2 Posted: 20 Aug 2020
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 33 (547,846)

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COVID-19, Pandemic, Privacy , Public Health

97.

Genetics and the Work Force of the Next Hundred Years

Columbia Business Law Review, Vol. 2000, No. 3, 2000
Number of pages: 32 Posted: 17 Jan 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 30 (564,248)

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ethical guidelines, medical research, workers, occupational medicine, common rule, research ethics, ADA, vulnerable subjects

98.

Can Genetic Nondiscrimination Laws Save Lives?

Forthcoming, Hastings Center Report 51(2) (2021)
Number of pages: 3 Posted: 11 Nov 2020
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 29 (570,001)

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Florida law, Genetic discrimination, Genetic Information Nondiscrimination Act (GINA), Genetic testing, Life insurance, Mortality

99.

Preventing Conflicts of Interest of NFL Team Physicians

Hastings Center Report, Vol. 46, No. 6, S35-S37, 2016
Number of pages: 3 Posted: 23 Nov 2016
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 26 (588,633)

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Conflict of Interest, Football, Medical Examination, Medical Records, Physician-Patient Relationship

100.

An Unbiased Response to the Open Peer Commentarites on 'Does Consent Bias Research?'

Am. J. Bioethics 13(4), W1-W3, 2013
Number of pages: 4 Posted: 09 Apr 2013
Mark A. Rothstein and Abigail Shoben
University of Louisville - Institute for Bioethics, Health Policy, and Law and Ohio State University (OSU) - College of Medicine and Public Health
Downloads 25 (594,993)

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research ethics, informed consent, consent bias, selection bias

101.

A Proposed Revision of the ACOEM Code of Ethics

Journal of Occupational and Environmental Medicine Vol. 39, No. 7, 1997
Number of pages: 7 Posted: 12 Feb 2010 Last Revised: 01 Nov 2012
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 25 (594,993)

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Medical ethics, code of ethics, occupational medicine, occupational physicians, american college of occupational and environmental medicine, ACOEM

102.

Ethical Guidelines for Medical Research on Workers

Journal of Occupational and Environmental Medicine, Vol. 42, No. 12, pp. 1166-1171, 2000
Number of pages: 6 Posted: 14 Jan 2010 Last Revised: 20 Sep 2014
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 25 (594,993)

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Pharmacogenomics, research, research ethics, clinical trials, discrimination, drugs, pharmaceuticals

103.

Response to Open Peer Commentaries on 'Compelled Authorizations for Disclosure of Health Records: Magnitude and Implications'

American Journal of Bioethics, Vol. 7 No. 3, pp. W1-W3, 2007
Number of pages: 3 Posted: 09 Dec 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 25 (594,993)

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electronic health records, EHRs, Health information technology, HIT, privacy, HIPAA privacy rule, authorizations, employment, life insurance, nationwide health information network, NHIN

104.

Transgenerational Epigenetics and Environmental Justice

Environmental Epigenetics 3(3) 2017
Number of pages: 12 Posted: 10 Sep 2017
Mark A. Rothstein, Heather L. Harrell and Gary E. Marchant
University of Louisville - Institute for Bioethics, Health Policy, and Law, University of Louisville - Institute for Bioethics, Health Policy, and Law and Arizona State University - College of Law
Downloads 24 (601,610)

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environmental justice, diesel exhaust, vunerable populations, epigenetic mechanisms, epigenetic harms

105.

Regulatory Landscape of International Direct-to-Participant (DTP) Genomic Research: Time to Untie the Gordian Knot?

J. Law Med.&Ethics, 47(2):2019
Number of pages: 14 Posted: 25 Apr 2019 Last Revised: 15 Jun 2021
Mark A. Rothstein, Ma'n H. Zawati and Bartha Maria Knoppers
University of Louisville - Institute for Bioethics, Health Policy, and Law, McGill University - Centre of Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 23 (608,286)

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Direct-to-participant, Genomic research, Informed consent, International law, Online recruitment, Privacy, Rare disorders

106.

Ensuring Compliance With Quarantine by Undocumented Immigrants and Other Vulnerable Groups: Public Health vs. Politics

Am. J. Pub. Hlth 109(53):1179-1183.
Number of pages: 5 Posted: 05 Sep 2019
Mark A. Rothstein and Christine Nero Coughlin
University of Louisville - Institute for Bioethics, Health Policy, and Law and Wake Forest University - School of Law
Downloads 21 (621,876)

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Quarantine, Undocumented Immigrants, Immunity, Substance Abuse, Discrimination, Compensation

107.

Informed Consent for Secondary Research Under the New NIH Data Sharing Policy

J.L.Med.&Ethics,49 (3), Forthcoming
Number of pages: 9 Posted: 14 May 2021
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 20 (635,889)

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Big Data, Consent Bias, Data Sharing, Deidentification, Informed Consent, Research Ethics Unregulated Research

108.

Unreliable Insurance

The Courier Journal, p. A9, 2010
Number of pages: 1 Posted: 18 Feb 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 20 (628,897)

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Individual insurance, group health insurance, uninsured, health care reform

109.

Compelled Disclosures of Health Records: Updated Estimates

Journal of Law, Medicine and Ethics, Vol. 45, No. 1, 2017
Number of pages: 7 Posted: 01 Jul 2021
Mark A. Rothstein and Meghan K. Talbott
University of Louisville - Institute for Bioethics, Health Policy, and Law and University of Louisville School of Medicine
Downloads 3 (757,446)

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Health records, disclosures, unauthorized disclosures

110.

Encouraging Compliance with Quarantine: A Proposal to Provide Job Security and Income Replacement

Am. J. Pub. Health, pp. S49-S56, 2007
Posted: 21 Nov 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law

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Public Health, quarantine, job security, income replacement, sars, employment, pandemic

111.

Health Privacy in the Electronic Age

Journal of Legal Medicine, Vol. 28, No. 1, 2008
Posted: 04 Nov 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law

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Electronic Health Records, EHR, Privacy, Nationwide Health Information Network, NHIN, HIPPA Privacy Rule, Personal Health Records, PHRs, Health Privacy

Other Papers (3)

Total Downloads: 35
1.

Mandatory Extended Searches in All Genome Sequencing 'Incidental Findings,' Patient Autonomy, and Shared Decision Making

JAMA 310(4):367-8(2013)
Number of pages: 2 Posted: 30 Jul 2013
University of Chicago - Department of Pediatrics, University of Louisville - Institute for Bioethics, Health Policy, and Law and Vanderbilt University - Law School
Downloads 18

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genetics, genome sequencing, incidental findings, informed consent, physician-patient, autonomy

2.

The Opioid Crisis and the Need for Compassion in Pain Management

Am. J. Pub. Health 107(8)
Number of pages: 2 Posted: 25 Jul 2017
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 12

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Addiction, opioids, pain management, substance abuse

3.

Worst Case Bioethics - Death, Disaster and Public Health

The Journal of Legal Medicine
Posted: 30 Sep 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 5

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Bioethics, public health, human rights, end of life, pandemics, civil liberties, bioterrorism