Mark A. Rothstein

University of Louisville - Institute for Bioethics, Health Policy, and Law

Herbert F. Boehl Chair of Law & Medicine; Director of Institute for Bioethics, Health Policy, & Law

Louisville, KY 40202

United States

http://www.louisville.edu/bioethics

University of Louisville - Louis D. Brandeis School of Law

Wilson W. Wyatt Hall

Louisville, KY 40292

United States

SCHOLARLY PAPERS

97

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14,218

CITATIONS
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133

Scholarly Papers (97)

1.

From SARS to Ebola: Legal and Ethical Considerations for Modern Quarantine

Indiana Health Law Review, vol.12, no.1, 2015 Forthcoming, University of Louisville School of Law Legal Studies Research Paper Series No. 2015-03
Number of pages: 54 Posted: 16 Jun 2015
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 2,056 (6,800)
Citation 1

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quarantine, SARS, ebola, public health, isolation, health law, bioethics, epidemics

2.

Rethinking the Meaning of Public Health

Journal of Law, Medicine & Ethics, Vol. 30, No. 2, 2002
Number of pages: 6 Posted: 17 Sep 2002
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 978 (22,182)

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3.

The Ghost in Our Genes: Legal and Ethical Implications of Epigenetics

Health Matrix: Journal of Law-Medicine, Vol. 19, No. 1, 2009, University of Louisville School of Law Legal Studies Research Paper Series No. 2010-02
Number of pages: 63 Posted: 04 Jun 2008 Last Revised: 17 Feb 2014
Mark A. Rothstein, Yu Cai and Gary E. Marchant
University of Louisville - Institute for Bioethics, Health Policy, and Law, Arizona State University and Arizona State University - College of Law
Downloads 758 (31,832)

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Epigenetics, genetic, environmental

4.

Ethical Issues in Big Data Health Research

Journal of Law, Medicine and Ethics, Vol. 43, No. 2, 2015 Forthcoming
Number of pages: 5 Posted: 09 Dec 2014 Last Revised: 23 Oct 2015
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 688 (36,326)

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Big Data, Research ethics, Common Rule, Informed consent, Autonomy, Privacy

5.

Debate Over Patient Privacy Control in Electronic Health Records

Hastings Center, Bioethics Forum, 2011
Number of pages: 3 Posted: 21 Feb 2011 Last Revised: 05 Feb 2014
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 547 (49,097)

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EHRs, Privacy, Patient controls, sensitive information, sequestration, granular control

6.

HIPAA Privacy Rule 2.0

Journal of Law, Medicine and Ethics, p 525, Summer 2013, University of Louisville School of Law Legal Studies Research Paper Series No. 2014-02
Number of pages: 9 Posted: 28 Jan 2013 Last Revised: 05 Feb 2014
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 393 (73,798)

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genetics, health records, HIPAA Privacy Rule, research, privacy, HITECH Act, GINA, HIPAA, Hitech, HITECH

7.

Privacy and Confidentiality of Genetic Information: What Rules for the New Science?

Annual Review of Genomics and Human Genetics, Vol. 2, pp. 401-433, 2001
Number of pages: 34 Posted: 04 Feb 2010
Mary Anderlik Majumder and Mark A. Rothstein
Center for Medical Ethics and Health Policy, Baylor College of Medicine and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 363 (80,931)

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DNA, Forensics, law enforcement, data banks, codis, criminal law, search and seizure, fourth amendment, privacy

8.

Is Deidentification Sufficient to Protect Health Privacy in Research?

American Journal of Bioethics, Vol. 10, No. 9, pp. 3-11, 2010
Number of pages: 9 Posted: 22 Sep 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 335 (88,715)

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Privacy, Electronic Health Records, EHRs, Deidentification, Research, HIPAA Privacy Rule, Common Rule, Group Harms, Autonomy, Biobanks

9.

Ethical, Legal and Social Implications of Incorporating Personalized Medicine into Healthcare

Future Medicine, Vol. 15, No. 12, 43-51 (2014)
Number of pages: 9 Posted: 10 Jan 2015 Last Revised: 15 Mar 2017
Kyle Brothers and Mark A. Rothstein
University of Louisville - School of Medicine and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 256 (118,503)

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genetic discrimination, genomics, health disparities, personalized medicine, privacy, data protection

10.

Autonomy and Paternalism in Health Policy

Journal of Law, Medicine and Ethics, Vol. 42, No. 4, 2014
Number of pages: 5 Posted: 11 Apr 2014 Last Revised: 21 Jan 2015
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 246 (123,430)

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Health Policy, Bioethics, Autonomy, Paternalism, Personal Health Records, CLIA, Direct-to-consumer genetic testing, soft drink regulation

11.

The Limits of Public Health: A Response

Public Health Ethics, Vol .2, pp. 84-88, 2009
Number of pages: 5 Posted: 29 Sep 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 242 (125,505)

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Public health, population health, human rights

12.

DNA-Based Identity Testing and the Future of the Family: A Research Agenda

American Journal of Law and Medicine, Vol. 28, pp. 215-232, 2002
Number of pages: 18 Posted: 05 Feb 2010
Mary Anderlik Majumder and Mark A. Rothstein
Center for Medical Ethics and Health Policy, Baylor College of Medicine and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 233 (130,384)

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Americans with disabilities Act, ADA, disability, medical criteria, definition, coverage, impairment

13.

Tarasoff Duties after Newtown

Journal of Law, Medicine and Ethics, Vol. 42, No. 1, 2014, University of Louisville School of Law Legal Studies Research Paper Series No. 2014-17
Number of pages: 7 Posted: 15 Sep 2013 Last Revised: 25 Jun 2014
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 230 (132,009)
Citation 1

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duty to warn, duty to protect, tarasoff, confidentiality, mental health, HIPAA Privacy Rule, FERPA

14.

Privacy and Technology in the Twenty-First Century

University of Louisville Law Review, Vol. 52, No. 2, 2014
Number of pages: 12 Posted: 19 Feb 2014
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 229 (132,575)

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Privacy, technology, security, surveillance, genetic testing, constitutional law

15.

The Expanding Use of DNA in Law Enforcement: What Role for Privacy?

Journal of Law, Medicine & Ethics, Vol. 34, pp. 153-164, Summer 2006
Number of pages: 12 Posted: 25 Nov 2009 Last Revised: 28 Feb 2014
Mark A. Rothstein and Meghan K. Talbott
University of Louisville - Institute for Bioethics, Health Policy, and Law and University of Louisville School of Medicine
Downloads 206 (146,703)

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DNA, forensics, law enforcement, genetics, databases, search and seizure, privacy

16.

Time to End the Use of Genetic Test Results in Life Insurance Underwriting

Journal of Law, Medicine and Ethics, Vol. 46, No. 3, 2018
Number of pages: 12 Posted: 30 Mar 2018 Last Revised: 26 Jul 2018
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 204 (148,103)

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Adverse Selection, Genetic Discrimination, Genetic Testing, Life Insurance, Medical Underwriting

17.

Does Consent Bias Research?

Am.J.Bioethics 13(4), 2013
Number of pages: 11 Posted: 06 Apr 2013
Mark A. Rothstein and Abigail Shoben
University of Louisville - Institute for Bioethics, Health Policy, and Law and Ohio State University (OSU) - College of Medicine and Public Health
Downloads 198 (152,260)

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research ethics, informed consent, consent bias, selection bias

18.

Putting the Genetic Information Nondiscrimination Act in Context

Genetics in Medicine, Vol. 10, No. 9, pp. 655-656, 2008
Number of pages: 2 Posted: 21 Nov 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 179 (166,956)

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Genetic Information Nondiscrimination Act, GINA, genetics, discrimination

19.

The End of the HIPAA Privacy Rule?

Journal of Law, Medicine and Ethics, Vol. 44, No. 2, 2016
Number of pages: 7 Posted: 05 Feb 2016 Last Revised: 07 Jun 2016
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 177 (168,662)

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HIPAA, Privacy Rule, Common Rule, Research, Privacy, 21st Century Cures Act, Fundraising, Marketing, Human Subjects

20.

Research Privacy Under HIPAA and the Common Rule

Journal of Law, Medicine and Ethics, Vol. 33, No. 1, p. 154, 2005
Number of pages: 7 Posted: 06 Dec 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 175 (170,379)

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research, privacy, HIPAA Privacy Rule, Common rule, IRBs, deidentification, consent

21.

Keeping Your Genes Private

Scientific American, pp. 64-69, September, 2008
Number of pages: 6 Posted: 06 Oct 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 169 (175,667)

Abstract:

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genetics, privacy, electronic health laws, GINA, NHIN, genetic test, nationwide health information network, genetic information nondiscrimination act

22.

Ethical and Legal Implications of Pharmacogenomics

Nature Reviews Genetics, Vol. 2, No. 2, pp. 228-231, 2001
Number of pages: 4 Posted: 05 Feb 2010
Phyllis Griffin Epps and Mark A. Rothstein
Independent and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 162 (182,068)

Abstract:

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genetic testing, alzheimers disease, long term care insurance, discrimination, long-term care

23.

GINA, the ADA, and Genetic Discrimination in Employment

Journal of Law, Medicine and Ethics, Vol. 36, No. 4, 2008
Number of pages: 4 Posted: 29 Sep 2009 Last Revised: 13 Dec 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 160 (184,045)
Citation 1

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Genetic Information Nondiscrimination Act, GINA, Americans with Disabilities Act, ADA

24.

The Case Against Precipitous, Population-Wide, Whole-Genome Sequencing

Journal of Law, Medicine and Ethics, Vol. 40, No. 3, 2012, University of Louisville School of Law Legal Studies Research Paper Series No. 2013-05
Number of pages: 17 Posted: 10 Nov 2012
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 140 (205,490)

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genomics, whole genome sequencing, medical screening, genetics, health policy, health privacy, clinical genetics

25.

Structural Challenges of Precision Medicine

Journal of Law, Medicine and Ethics, Vol. 45, No. 2, Forthcoming
Number of pages: 9 Posted: 14 Apr 2017
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 137 (209,126)

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Big Data, Genomics, Health Privacy, HIPAA Privacy Rule, Personalized Medicine, Pharmacogenomics, Physician-Patient, Precision Medicine, Precision Medicine Initiative

26.

Access to Sensitive Information in Segmented Electronic Health Records

Journal of Law, Medicine and Ethics, Vol. 40, No. 2, 2012, University of Louisville School of Law Legal Studies Research Paper Series No. 2012-08
Number of pages: 7 Posted: 24 May 2012 Last Revised: 05 Feb 2014
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 133 (214,205)

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Privacy, Electronic Health Records, Americans with Disabilities Act, Genetic Information Nondiscrimination Act, Health Information Technology

27.

The Hippocratic Bargain and Health Information Technology

Journal of Law, Medicine and Ethics, Vol. 38, No. 1, 2010
Number of pages: 7 Posted: 16 Apr 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 133 (214,205)

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Hippocratic oath, health information technology, HIT, electronic health records, EHR, privacy, confidentiality, physician-patient relationship, limited disclosure, HIPAA Privacy Rule, medical ethics

28.

Health Privacy and the Facebook Generation

Bioethics Forum, 2009
Number of pages: 2 Posted: 08 Dec 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 131 (216,813)

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Privacy, facebook, heath informaion technology, HIT, electronic health records, EHRs, social networking

29.

Biobank Research and Privacy Laws in the United States

Journal of Law, Medicine and Ethics, Vol. 44, No. 1, 2016, University of Louisville School of Law Legal Studies Research Paper Series No. 2016-8
Number of pages: 23 Posted: 02 May 2016 Last Revised: 16 Sep 2016
Heather L. Harrell and Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 130 (218,058)

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biobanks, research ethics, privacy, common rule, HIPAA Privacy Rule, consent, HITECH Act, EU-US Safe Harbor, specimens, medical records

30.

Health Information Technology and Physicians’ Duty to Notify Patients of New Medical Developments

Houston Journal of Health Law and Policy, Vol. 12, No. 1, 2012 Forthcoming
Number of pages: 44 Posted: 08 Aug 2012 Last Revised: 24 Feb 2014
Mark A. Rothstein and Gil Siegal
University of Louisville - Institute for Bioethics, Health Policy, and Law and University of Virginia School of Law
Downloads 130 (218,058)

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physician-patient relationship, health information technology, duty to warn, adverse drug reactions, medical device recalls

31.

Health Care Reform and Medical Malpractice Claims

Journal of Law, Medicine and Ethics, Vol. 38, No. 4, p. 871, 2010
Number of pages: 5 Posted: 07 Dec 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 129 (219,356)

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Health Reform, Medical Malpractice, Tort Reform, Health Quality, Patient Protection, Affordable Care Act

32.

Using Established Medical Criteria to Define Disability: A Proposal to Amend the Americans with Disabilities Act

Washington University Law Quarterly, Vol. 80, No. 2, pp. 243-301, 2002
Number of pages: 59 Posted: 12 Feb 2010 Last Revised: 12 Jan 2016
Mark A. Rothstein, Serge Martinez and William McKinney
University of Louisville - Institute for Bioethics, Health Policy, and Law, University of Louisville and University of Louisville - School of Medicine
Downloads 120 (231,636)

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Americans with disabilities act, ADA, disabilities, discrimination, definition of disability, amendments, medical criteria

33.

The Future of Public Health Ethics

American Journal of Public Health, Vol. 102, No. 1, p. 9, 2012, University of Louisville School of Law Legal Studies Research Paper Series No. 2012-06
Number of pages: 2 Posted: 21 Dec 2011
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 119 (233,105)

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public health, ethics, public health genetics, health information technology, HIT

34.

Ethical Responsibilities of Physicians in the Opioid Crisis

Journal of Law, Medicine and Ethics, Vol. 45, No. 4, 2017
Number of pages: 9 Posted: 17 Oct 2017 Last Revised: 23 Oct 2017
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 118 (234,635)

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addiction, ethics, opioids, opioid use disorder, pain, prescription drug monitoring programs

35.

Constitutional Right to Informational Health Privacy in Critical Condition

Journal of Law, Medicine and Ethics, Vol. 39, No. 2, p. 280, 2011, University of Louisville School of Law Legal Studies Research Paper Series No. 2011-13
Number of pages: 7 Posted: 18 May 2011 Last Revised: 22 Sep 2011
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 115 (239,029)

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health privacy, right to privacy, constitutional law, invasion of privacy, privacy act

36.

How Genetics Might Affect Real Property Rights

Journal of Law, Medicine and Ethics, Vol. 44, No. 1, 2016, University of Louisville School of Law Legal Studies Research Paper Series No. 2016-3
Number of pages: 6 Posted: 20 Dec 2015 Last Revised: 28 Apr 2016
Mark A. Rothstein and Laura Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law and University of Louisville - Louis D. Brandeis School of Law
Downloads 112 (243,541)

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Alzheimer’s disease, Cal GINA, discrimination, Fair Housing Act, genetics, GINA, long-term care, and real property

37.

Citizen Science on Your Smartphone: An ELSI Research Agenda

Journal of Law, Medicine & Ethics 43(4) (2015)
Number of pages: 7 Posted: 19 Nov 2015 Last Revised: 25 Apr 2016
Mark A. Rothstein, John Wilbanks and Kyle Brothers
University of Louisville - Institute for Bioethics, Health Policy, and Law, Sage Bionetworks and University of Louisville - School of Medicine
Downloads 109 (248,332)

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Citizen science, Common Rule, ELSI, FDA, Health research, IRBs, Mobile health, Smartphones

38.

Health Insurance Reforms: Unintended Consequences

The Hastings Center Bioethics Forum, Forthcoming
Number of pages: 2 Posted: 14 Feb 2010 Last Revised: 06 Nov 2012
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 109 (248,332)

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Health reform, health insurance, individual health insurance, group health insurance, health legislation, access to health care

39.

The Role of IRBs in Research Involving Commercial Biobanks

Journal of Law, Medicine and Ethics, Vol. 30, No. 1, 105-108, 2002
Number of pages: 4 Posted: 12 Feb 2010 Last Revised: 20 Sep 2014
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 104 (256,566)

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Institutional Review Boards, IRB, IRBs, Biobanks, medical records, consent, privacy, confidentiality, biological specimens, research

40.

Gina's Beauty is Only Skin Deep

Gene Watch, Vol. 22, No. 2, pp. 9-12, 2009
Number of pages: 3 Posted: 07 Dec 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 104 (256,566)
Citation 1

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Genetic Information Nondiscrimination Act, GINA, genetic discrimination, health insurance, employment, americans with disabilities act, ADA, electronic health records, EHRs

41.

Who Will Treat Medicaid and Uninsured Patients? Retired Providers Can Help

Journal of Law, Medicine and Ethics, Vol. 39, No. 1, 2011, University of Louisville School of Law Legal Studies Research Paper Series No. 2011-14
Number of pages: 7 Posted: 08 Mar 2011 Last Revised: 22 Sep 2011
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 101 (261,784)

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Health reform, patirnt protection and affordable care act, medicaid, uninsured, access to health care, physician shortage, retired physicians, volunteers in medicine, other

42.

Genetic Privacy and Confidentiality: Why They Are So Hard to Protect

Journal of Law, Medicine and Ethics, Vol. 26, No. 3, 1998
Number of pages: 7 Posted: 12 Feb 2010 Last Revised: 19 Feb 2014
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 99 (265,285)
Citation 3

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Privacy, confidentiality, genetics, health insurance, life insurance, long-term insurance, employment discrimination, american with disabilities act, ADA

43.

Ethical Implications of Epigenetics Research

Nature Reviews Genetics, Vol. 10 No. 4, April 2009
Number of pages: 1 Posted: 07 Dec 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 96 (270,603)

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epigenetics, genetics, research, environmental justice, intergenerational justice, access to health care, privacy, risk assessment

44.

Health Risk Reduction Programs in Employer-Sponsored Health Plans: Part I - Efficacy

Journal of Occupational and Environmental Medicine, Vol. 51, No. 8, August 2009
Number of pages: 8 Posted: 22 Sep 2009 Last Revised: 13 Dec 2009
Mark A. Rothstein and Heather L. Harrell
University of Louisville - Institute for Bioethics, Health Policy, and Law and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 92 (278,198)

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Occupational Health, Employee Benefits, Health Risk Assessment, Wellness Programs, Health Risk Reduction Programs

45.

Predictive Genetic Testing for Alzheimer's Disease in Long-Term Care Insurance

Georgia Law Review, Vol. 35, No. 2, p. 707, 2001
Number of pages: 28 Posted: 05 Feb 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 84 (294,541)
Citation 2

Abstract:

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privacy, confidentiality, genetics, genetic discrimination, genetic research, biobanks, pharmacogenomics, genetic information

46.

Limiting Occupational Medical Evaluations Under the Americans with Disabilities Act and the Genetic Information Nondiscrimination Act

American Journal of Law and Medicine, Vol. 41, No. 4, 2015, U of Houston Law Center No. 2016-A-4
Number of pages: 45 Posted: 26 Jan 2016 Last Revised: 06 Jun 2016
Mark A. Rothstein, Jessica L. Roberts and Tee L. Guidotti
University of Louisville - Institute for Bioethics, Health Policy, and Law, University of Houston Law Center and George Washington University - School of Public Health and Health Services (SPHHS)
Downloads 82 (298,943)

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Americans with Disabilities Act, ADA, Fitness for duty examinations, Genetic Information Nondiscrimination Act, GINA, occupational medicine, occupational physicians, Occupational Safety and Health Act, OSHA, OSH Act, Physician-patient relationship

47.

The Latest Challenge to Health Privacy: Health Care Consolidation

Bioethics Forum, The Hastings Center, May 2014, University of Louisville School of Law Legal Studies Research Paper Series No. 2014-16
Number of pages: 4 Posted: 14 May 2014
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 82 (298,943)
Citation 1

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health privacy, hospitals, electronic health records, EHR, health information exchange, HIE, HIPAA Privacy Rule, Physician practices, health care consolidation

48.

Physicians' Duty to Inform Patients of New Medical Discoveries: The Effect of Health Information Technology

Journal of Law, Medicine and Ethics, Vol. 39, No. 4, 2011
Number of pages: 5 Posted: 13 Dec 2011
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 82 (298,943)

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Health Information Technology, Physician-patient relationship, notification of new discoveries, electronic health records, EHR

49.

Protecting Genetic Privacy By Permitting Employer Access Only to Job-Related Employee Medical Information: Analysis of a Unique Minnesota Law

American Journal of Law and Medicine, Vol. 24, No. 2, 1998
Number of pages: 18 Posted: 07 Feb 1999
Mark A. Rothstein, Betsy Gelb and Steven G. Craig
University of Louisville - Institute for Bioethics, Health Policy, and Law, University of Houston - C.T. Bauer College of Business and University of Houston - Department of Economics
Downloads 80 (303,331)

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50.

Some Lingering Concerns About the Precision Medicine Initiative

Forthcoming in 43(3 ) Journal of Law, Medicine and Ethics __ (2016)
Number of pages: 6 Posted: 11 Jul 2016 Last Revised: 12 Oct 2016
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 79 (305,598)

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Affordable Care Act, Big data, Genetics, Genomics, Health literacy, Health privacy, Health research, HIPAA Privacy Rule, Personalized medicine, Precision Medicine Initiative

51.

Are Traditional Public Health Strategies Consistent with Contemporary American Values?

Temple Law Review, Vol. 77, No. 2, p. 175, 2004
Number of pages: 18 Posted: 06 Dec 2009 Last Revised: 13 Dec 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 79 (305,598)

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public health, SARS, law, spanish flu, quarantine, epidemics

52.

Liability Issues in Pharmacogenomics

Louisiana Law Review, Vol. .66, 117-124, 2005
Number of pages: 8 Posted: 25 Nov 2009 Last Revised: 02 Jun 2013
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 79 (305,598)
Citation 1

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genetics, genomics, pharmacogenomics, products liability, negligence, pharmaceuticals, FDA, direct to consumer advertising, off-label uses

53.

Health Risk Reduction Programs in Employer-Sponsored Health Plans: Part II - Law and Ethics

Journal of Occupational and Environmental Medicine, Vol. 51, No. 8, August 2009
Number of pages: 7 Posted: 19 Sep 2009 Last Revised: 01 Nov 2012
Mark A. Rothstein and Heather L. Harrell
University of Louisville - Institute for Bioethics, Health Policy, and Law and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 75 (314,992)

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HIPAA Privacy Rule, Employee Benefits, Health Risk Assessment, Wellness Programs, Health Risk Reduction Programs, ADA, GINA, Smokers Rights, Ethics

54.

Epigenetic Exceptionalism

Journal of Law, Medicine and Ethics, Forthcoming
Number of pages: 6 Posted: 29 May 2013
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 72 (322,275)

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epigenetics, genetics, exceptionalism, ethics, bioethics, privacy, discrimination

55.

Legal Conceptions of Equality in the Genomic Age

Law & Inequality, Vol. 25, pp. 429-463
Number of pages: 38 Posted: 04 Nov 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 72 (322,275)

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genetics, genomics, equality, civil rights, employment discrimination, OSHA, discrimination

56.

The Role of Law in the Development of American Bioethics

International Journal of Bioethics, Vol. 20, 2009
Number of pages: 13 Posted: 26 Jun 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 70 (327,381)

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bioethics, research on human subjects, end-of-life decision making, health law

57.

Genetic Stalking and Voyeurism: A New Challenge to Privacy

The University of Kansas Law Review, Vol. 57, No. 3, pp. 539-578, 2009
Number of pages: 40 Posted: 04 Jan 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 69 (329,946)

Abstract:

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genetics, privacy, invasion of privacy, gina, dna test, genetic nondiscrimination, nondiscrimination act

58.

Improve Privacy in Research by Eliminating Informed Consent? IOM Report Misses the Mark

Journal of Law, Medicine and Ethics, Vol. 37, No. 4, p. 507, 2009
Number of pages: 6 Posted: 01 Dec 2009 Last Revised: 11 Feb 2014
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 69 (329,946)

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Privacy, Informed Consent, IOM, Privacy rule, HIPAA, research

59.

The Use of Genetic Information in Real Property Transactions

Probate & Property: A publication of the Real Property, Trust and Estate Law section of the American Bar Association, Volume 31, Number 3, 2017, University of Louisville School of Law Legal Studies Research Paper Series No. 2017-7
Number of pages: 7 Posted: 24 May 2017 Last Revised: 02 Jun 2017
Mark A. Rothstein and Laura Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law and University of Louisville - Louis D. Brandeis School of Law
Downloads 68 (332,589)

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60.

Legal and Policy Issues in Expanding the Scope of Law Enforcement DNA Data Banks

Brooklyn Law Review , Vol. 67, No. 1, 2001
Number of pages: 52 Posted: 04 Feb 2010
Mark A. Rothstein and Sandra J. Carnahan
University of Louisville - Institute for Bioethics, Health Policy, and Law and South Texas College of Law
Downloads 66 (337,924)
Citation 1

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Pharmacogenomics, Race, Ethnicity, Research, Genomics, Data Bank, DNA, Law Enforcement

61.

The Genome Sequencing and Privacy Report: A Missed Opportunity

Gene Watch, 25(5) 2012
Number of pages: 2 Posted: 23 Nov 2012
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 61 (351,739)

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Whole genome sequencing, privacy, genetic research, clincal genetics, presidential commission for the study of bioethical issues, GINA

62.

The Moral Challenge of Ebola

Am. J. Pub. Health; 6-8, 105(1), 2015
Number of pages: 3 Posted: 16 Dec 2014
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 60 (354,572)

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public health, ebola, SARS, bioethics, infectious disease, quarantine

63.

Pharmacogenomics and the (Ir)Relevance of Race

The Pharmacogenomics Journal, Vol. 1, No. 2, pp. 104-108, 2001
Number of pages: 6 Posted: 05 Feb 2010
Phyllis Griffin Epps and Mark A. Rothstein
Independent and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 60 (354,572)

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genetics, genetic discrimination, discrimination, automony, justice, beneficence

64.

Malpractice Immunity for Volunteer Physicians in Public Health Emergencies: Adding Insult to Injury

Journal of Law, Medicine and Ethics, Vol. 38, No. 1, 2010
Number of pages: 5 Posted: 16 Apr 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 59 (357,515)

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medical malpractice, immunity, public health, emergency prepardness, volunteer physicians, altered standards of medical care, medical ethics, discrimination

65.

What is Genetic Discrimination and When and How Can it Be Prevented?

Genetics In Medicine, Vol. 3, No. 5, pp. 354-358, 2001
Number of pages: 5 Posted: 13 Jan 2010
Mary Anderlik Majumder and Mark A. Rothstein
Center for Medical Ethics and Health Policy, Baylor College of Medicine and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 59 (357,515)
Citation 1

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Institutional Review Boards, IRBs, research, biobank, research ethics, ethics, consent, HIPAAA privacy rule

66.

Compelled Disclosure of Health Information: Protecting Against the Greatest Potential Threat to Privacy

The Journal of the American Medical Association, Vol. 295, No. 24, pp. 2882-2885, 2006
Number of pages: 4 Posted: 24 Nov 2009
Meghan K. Talbott and Mark A. Rothstein
University of Louisville School of Medicine and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 58 (360,516)
Citation 1

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electronic health records, EHRs, health information technology HIT, privacy, HIPAA Privacy Rule, american disabilities act, ADA, authorizations, nationwide health information network, NHIN

67.

Expanding Access to Health Care: It Takes More than Money

Bioethics Forum, The Hastings Center, February 23, 2010
Number of pages: 2 Posted: 25 Feb 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 57 (363,616)

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acess to health care, health insurance, health reform, nonfinancial barriers

68.

Comparative Approaches to Biobanks and Privacy

Journal of Law, Medicine and Ethics, Vol. 44, No. 1, 2016
Number of pages: 12 Posted: 02 May 2016
Mark A. Rothstein, Bartha Maria Knoppers and Heather L. Harrell
University of Louisville - Institute for Bioethics, Health Policy, and Law, McGill University - Centre for Genomics and Policy and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 51 (382,715)

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Comparative law, privacy, research ethics, biobanks, genetic research, consent, common rule, IRBs, international law, genomics

69.

Compelled Authorizations for Disclosure of Health Records: Magnitude and Implications

The American Journal of Bioethics, Vol. 7, No. 3, pp. 38-45, 2007
Number of pages: 9 Posted: 24 Nov 2009 Last Revised: 01 Nov 2012
Mark A. Rothstein and Meghan K. Talbott
University of Louisville - Institute for Bioethics, Health Policy, and Law and University of Louisville School of Medicine
Downloads 51 (382,715)
Citation 1

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electronic health records, EHRs, health information technology, HIT, Privacy, HIPAA Privacy Rule, authorizations, employment, life insurance, nationwide health information network, NHIN

70.

Ethical Research and Minorities

Am. J. Pub. Health Vol. 103(12), December 2013
Number of pages: 1 Posted: 24 Nov 2013
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 49 (389,406)

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research ethics, minoritiyt health, public health

71.

Genetic Testing, Genetic Medicine, and Managed Care

Wake Forest Law Review, Vol. 34, No. 3, 1999
Number of pages: 40 Posted: 05 Feb 2010
Sharona Hoffman and Mark A. Rothstein
Case Western Reserve University School of Law and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 48 (392,918)

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genetics, managed care, genetic counseling, human genome project, genetic medicine, quality of care

72.

Applications of Behavioural Genetics: Outpacing the Science?

Nature Reviews Genetics, Vol. 6, pp. 793-798, 2005
Number of pages: 6 Posted: 01 Dec 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 47 (396,292)
Citation 1

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behavioral genetics, genomics, mental disorders, addiction, personality, genetic testing, criminal law

73.

Preventing the Discovery of Plaintiff Genetic Profiles by Defendants Seeking to Limit Damages in Personal Injury Litigation

Indiana Law Journal, Vol. 71, No. 4, 1996
Number of pages: 34 Posted: 05 Feb 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 44 (406,953)

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genetics, discovery, personal injury litigation, genetic information, forensics, automony, confidentiality

74.

Genetic Exceptionalism and Legislative Pragmatism

The Hastings Center Report, No. 4, pp. 27-33, July-August 2005
Number of pages: 7 Posted: 03 Dec 2009 Last Revised: 13 Dec 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 44 (406,953)

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genetics, genetic exceptionalism, mental disorders, addiction, personality, genetic testing, criminal law

75.

Recommendations for Returning Genomic Incidental Findings? We Need to Talk!

Genetics in Medicine, Vol. 15, DOI:10.1038/gim.2013.113
Number of pages: 6 Posted: 30 Aug 2013
University of Washington - Department of Bioethics & Humanities, Cincinnati Children's Hospital Medical Center, University of Washington - Department of Medical Genetics, University of Utah - Pediatric Administration, Vanderbilt University - Law School, University of North Carolina (UNC) at Chapel Hill, Children's Hospital Boston, University of Washington - Division of Medical Genetics, Office of Public Health Genomics, McGill University - Centre for Genomics and Policy, Oregon Health and Science University, University of Chicago - Department of Pediatrics, University of Louisville - Institute for Bioethics, Health Policy, and Law, Cincinnati Children's Hospital Medical Center, University of Michigan at Ann Arbor - Medical School, University of Washington, University of Minnesota Law School and Foundation for Genomics and Population Health
Downloads 43 (410,664)

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biobank, bioethics, biorepository, genetics, genomics, human subjects research, incidental findings, research ethics; return of results

76.

Is GINA Worth the Wait?

Journal of Law, Medicine and Ethics, Vol. 36, No. 1, 2008
Number of pages: 5 Posted: 31 Oct 2009 Last Revised: 06 Nov 2012
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 43 (410,664)

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77.

Deidentification and its Discontents: Response to the Open Peercommentaries

American Journal of Bioethics, Vol. 10, No. 9, pp. W1-W2, 2010
Number of pages: 2 Posted: 29 Sep 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 39 (425,919)

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Privacy, Electronic Health Records, EHRs, Research, Deidentification, Informed Consent, Human Subjects

78.

Disclosing Decedents' Research Results to Relatives Violates the HIPAA Privacy Rule

American Journal of Bioethics, 12(10) 16:17 (2012)
Number of pages: 2 Posted: 18 Oct 2012
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 38 (430,059)

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HIPAA, Privacy Rule,/ Research Ethics, Deceased research subjects, Disclosure, Informational Health Privacy, Health privacy

79.

Expanding the Ethical Analysis of Biobanks

Journal of Law, Medicine and Ethics, Vol. 33, No. 1, 2005
Number of pages: 13 Posted: 06 Dec 2009 Last Revised: 11 Feb 2014
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 36 (438,163)

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Biobanks, genetics, genomics research, ethics, Informed consent, common rule, HIPAA authorizations, medical recordcs, privach

80.

Promoting Public Health in Health Care Facilities

American Journal of Public Health 104(6), 2014, University of Louisville School of Law Legal Studies Research Paper Series No. 2015-12
Number of pages: 4 Posted: 01 Jun 2014 Last Revised: 05 May 2015
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 35 (442,336)

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public health, health promotion, hospital, health care facilities, obesity, vaccinations, influenza, children's health

81.

The Law of Genetic Privacy: Applications, Implications, and Limitations

Journal of Law and the Biosciences, 1–36, 2019
Number of pages: 36 Posted: 30 May 2019
Vanderbilt University - Law School, University of Houston Law Center, Center for Genetic Privacy & Identity in Community Settings, Vanderbilt University Medical Center and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 34 (446,507)

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DNA, genetics, genomics, GINA, HIPAA, privacy

82.

International Health Research After Schrems v. Data Protection Commissioner

Hastings Center Report, April 2016; 5-6
Number of pages: 2 Posted: 19 Mar 2016 Last Revised: 09 Sep 2016
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 33 (450,807)

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International Law, Health research, European Union, Safe Harbor, Data protection, Privacy, Schrems

83.

Should Health Care Providers Get Treatment Priority in an Influenza Pandemic?

Journal of Law, Medicine and Ethics, Vol. 38, No. 2, 2010
Number of pages: 8 Posted: 01 Jul 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 32 (455,282)

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bioethics, public health, pandemics, medical ethics, triage, distributive justice, emergency preparedness, medical utility

84.

Genetic Justice

The New England Journal of Medicine, Vol. 352, No. 26, pp. 2667-2667, 2005
Number of pages: 2 Posted: 04 Dec 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 32 (455,282)

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DNA testing, Criminal law, exoneration, forensics, genetics, innocence project, CODIS, DNA data banks

85.

Precision Medicine and the Risk to Privacy

The SciTech Lawyer,15(1);28-32 (2018).
Number of pages: 6 Posted: 13 Sep 2018
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 29 (469,495)

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Adverse Selection, Genetic Discrimination, Genetic Testing, Life Insurance, Medical Underwriting

86.

Job Security and Income Replacement for Individuals in Quarantine: The Need for Legislation

Journal of Health Care Law & Policy, Vol. 10, 2007
Number of pages: 19 Posted: 04 Nov 2009 Last Revised: 01 Nov 2012
Mark A. Rothstein and Meghan K. Talbott
University of Louisville - Institute for Bioethics, Health Policy, and Law and University of Louisville School of Medicine
Downloads 29 (469,495)

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Public Health, Quarantine, SARS, employment, ADA, FMLA, Wrongful discharge, Pandemic, Income replacement, job security

87.

Genetics and the Work Force of the Next Hundred Years

Columbia Business Law Review, Vol. 2000, No. 3, 2000
Number of pages: 32 Posted: 17 Jan 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 27 (479,620)

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ethical guidelines, medical research, workers, occupational medicine, common rule, research ethics, ADA, vulnerable subjects

88.

Response to Open Peer Commentaries on 'Compelled Authorizations for Disclosure of Health Records: Magnitude and Implications'

American Journal of Bioethics, Vol. 7 No. 3, pp. W1-W3, 2007
Number of pages: 3 Posted: 09 Dec 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 24 (495,962)

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electronic health records, EHRs, Health information technology, HIT, privacy, HIPAA privacy rule, authorizations, employment, life insurance, nationwide health information network, NHIN

89.

An Unbiased Response to the Open Peer Commentarites on 'Does Consent Bias Research?'

Am. J. Bioethics 13(4), W1-W3, 2013
Number of pages: 4 Posted: 09 Apr 2013
Mark A. Rothstein and Abigail Shoben
University of Louisville - Institute for Bioethics, Health Policy, and Law and Ohio State University (OSU) - College of Medicine and Public Health
Downloads 23 (501,442)

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research ethics, informed consent, consent bias, selection bias

90.

A Proposed Revision of the ACOEM Code of Ethics

Journal of Occupational and Environmental Medicine Vol. 39, No. 7, 1997
Number of pages: 7 Posted: 12 Feb 2010 Last Revised: 01 Nov 2012
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 23 (501,442)

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Medical ethics, code of ethics, occupational medicine, occupational physicians, american college of occupational and environmental medicine, ACOEM

91.

Ethical Guidelines for Medical Research on Workers

Journal of Occupational and Environmental Medicine, Vol. 42, No. 12, pp. 1166-1171, 2000
Number of pages: 6 Posted: 14 Jan 2010 Last Revised: 20 Sep 2014
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 23 (501,442)

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Pharmacogenomics, research, research ethics, clinical trials, discrimination, drugs, pharmaceuticals

92.

Transgenerational Epigenetics and Environmental Justice

Environmental Epigenetics 3(3) 2017
Number of pages: 12 Posted: 10 Sep 2017
Mark A. Rothstein, Heather L. Harrell and Gary E. Marchant
University of Louisville - Institute for Bioethics, Health Policy, and Law, University of Louisville - Institute for Bioethics, Health Policy, and Law and Arizona State University - College of Law
Downloads 21 (513,089)

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environmental justice, diesel exhaust, vunerable populations, epigenetic mechanisms, epigenetic harms

93.

Preventing Conflicts of Interest of NFL Team Physicians

Hastings Center Report, Vol. 46, No. 6, S35-S37, 2016
Number of pages: 3 Posted: 23 Nov 2016
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 20 (518,835)

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Conflict of Interest, Football, Medical Examination, Medical Records, Physician-Patient Relationship

94.

Unreliable Insurance

The Courier Journal, p. A9, 2010
Number of pages: 1 Posted: 18 Feb 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 19 (524,746)

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Individual insurance, group health insurance, uninsured, health care reform

95.

Regulatory Landscape of International Direct-to-Participant (DTP) Genomic Research: Time to Untie the Gordian Knot?

J. Law Med.&Ethics, 47(2):2019
Number of pages: 14 Posted: 25 Apr 2019
Mark A. Rothstein, Ma'n H. Zawati and Bartha Maria Knoppers
University of Louisville - Institute for Bioethics, Health Policy, and Law, McGill University - Centre of Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 14 (554,081)

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Direct-to-participant, Genomic research, Informed consent, International law, Online recruitment, Privacy, Rare disorders

96.

Encouraging Compliance with Quarantine: A Proposal to Provide Job Security and Income Replacement

Am. J. Pub. Health, pp. S49-S56, 2007
Posted: 21 Nov 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law

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Public Health, quarantine, job security, income replacement, sars, employment, pandemic

97.

Health Privacy in the Electronic Age

Journal of Legal Medicine, Vol. 28, No. 1, 2008
Posted: 04 Nov 2009
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law

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Electronic Health Records, EHR, Privacy, Nationwide Health Information Network, NHIN, HIPPA Privacy Rule, Personal Health Records, PHRs, Health Privacy

Other Papers (3)

Total Downloads: 21
1.

Mandatory Extended Searches in All Genome Sequencing 'Incidental Findings,' Patient Autonomy, and Shared Decision Making

JAMA 310(4):367-8(2013)
Number of pages: 2 Posted: 30 Jul 2013
University of Chicago - Department of Pediatrics, University of Louisville - Institute for Bioethics, Health Policy, and Law and Vanderbilt University - Law School
Downloads 15

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genetics, genome sequencing, incidental findings, informed consent, physician-patient, autonomy

2.

Worst Case Bioethics - Death, Disaster and Public Health

The Journal of Legal Medicine
Posted: 30 Sep 2010
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 4

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Bioethics, public health, human rights, end of life, pandemics, civil liberties, bioterrorism

3.

The Opioid Crisis and the Need for Compassion in Pain Management

Am. J. Pub. Health 107(8)
Number of pages: 2 Posted: 25 Jul 2017
Mark A. Rothstein
University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 2

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Addiction, opioids, pain management, substance abuse