Amy L. McGuire

Baylor College of Medicine

One Baylor Plaza

Apt 510

Houston, TX TX - Texas 77030

United States

SCHOLARLY PAPERS

8

DOWNLOADS

266

CITATIONS
Rank 44,587

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Top 44,587

in Total Papers Citations

10

Scholarly Papers (8)

1.

Ethical and Practical Guidelines for Reporting Genetic Research Results to Study Participants: Updated Guidelines from a National Heart, Lung, and Blood Institute Working Group

Circulation: Cardiovascular Genetics: Journal of the Heart Associations, Vol. 3, No. 6, pp. 574-580, 2010, Minnesota Legal Studies Research Paper No. 11-08, Vanderbilt Law and Economics Research Paper No. 11-10, Vanderbilt Public Law Research Paper No. 11-6
Number of pages: 8 Posted: 15 Jan 2011 Last Revised: 29 Jul 2015
Government of the United States of America - National Heart, Lung and Blood Institute, Baylor College of Medicine, Cleveland Clinic - Department of Bioethics, Government of the United States of America - National Heart, Lung and Blood Institute, Duke University - Institute for Genome Sciences & Policy, National Institutes of Health (NIH) - National Human Genome Research Institute, National Institutes of Health (NIH) - National Human Genome Research Institute, University of Washington - Department of Bioethics & Humanities, University of California, San Francisco (UCSF) - Division of Pulmonary, Critical Care, Allergy and Sleep Medicine, Harvard University - Harvard Medical School, Vanderbilt University - Law School, University of Minnesota - Twin Cities - Laboratory Medicine and Pathology, Dalhousie University - Department of Pediatrics, Patient Advocate, University of Washington - Department of Bioethics & Humanities, Broad Institute of MIT and Harvard University, Southwest Tribal Epidemiology Center, Johns Hopkins University - Department of Medicine/Cardiology, University of Washington - Division of Medical Genetics, University of Illinois Chicago - College of Medicine, HealthFutures, LLC, Framingham Heart Study - National Heart, Lung, and Blood Institute, Partners HealthCare, National Institutes of Health (NIH) - National Human Genome Research Institute, National Institutes of Health (NIH) - National Cancer Institute, University of Maryland - School of Medicine, Charles B. Wang Community Health Center, Massachusetts General Hospital - Genetics Unit, University of Minnesota Law School and Wake Forest University - School of Medicine
Downloads 172 (173,094)
Citation 1

Abstract:

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Genetics, Genomics, Research Genetics, Human Subjects Research, Research Ethics, Bioethics, Return of Results, Incidental Findings, Risk Prediction, NIH, NHLBI

2.

Medical Information Commons

Draft (Routledge Handbook of the Study of the Commons, Forthcoming)
Number of pages: 16 Posted: 09 Mar 2018
Mary Anderlik Majumder, Peter Zuk and Amy L. McGuire
Center for Medical Ethics and Health Policy, Baylor College of Medicine, Rice University and Baylor College of Medicine
Downloads 40 (422,319)

Abstract:

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commons theory, biomedical research, ethics

3.

Reflections on the Cost of 'Low Cost' Whole Genome Sequencing: Framing the Health Policy Debate

PLOS Biology, V. 11, No. 11, November 2013, p. e1001699, U of Maryland Legal Studies Research Paper No. 2013-68
Number of pages: 6 Posted: 12 Nov 2013
University of Alberta - Health Law Institute, University of North Carolina (UNC) at Chapel Hill - School of Medicine, Baylor College of Medicine, University of Alberta - Emergency Medicine, University of Alberta - Faculty of Public Health, Arizona State University (ASU) - School for the Future of Innovation in Society, McGill University - BioMedical Ethics Unit, King’s College London, Dept of Social Science, Health & Medicine, University of Toronto - Institute of Health Policy, Management and Evaluation, University of Montreal, Dept of Social and Preventive Medicine, National Institutes of Health (NIH) - National Human Genome Research Institute, Catholic University of Leuven - Faculty of Medicine - Center for Biomedical Ethics and Law, Stanford University - Stanford Center for Biomedical Ethics (SCBE), University of Toronto, Granovsky Gluskin Family Medicine Centre, Memorial University of Newfoundland, Faculty of Medicine, McGill University - Centre for Genomics and Policy, Osaka, Dept of Biomedical Ethics & Public Policy, Graduate School of Medicine, Stanford University - Stanford Center for Biomedical Ethics (SCBE), University of Maryland Francis King Carey School of Law, University of Pennsylvania - Perelman School of Medicine, University of Toronto, Centre for Bioethics, University of Wisconsin-Madison, School of Law; Morgridge Institute for Research, Memorial University of Newfoundland - Faculty of Medicine, Université Laval - Faculty of Medicine, University of Toronto - Department of Health Policy, Management and Evaluation and University of Ottawa, Faculty of Medicine, Public Health Genomics
Downloads 34 (446,892)

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whole genome sequencing, WGS, whole exome sequencing, WES, human genome

4.

Clearing Complexity from the Common Rule NPRM

3 Journal of Law & the Biosciences 257 (2016)
Number of pages: 24 Posted: 08 Nov 2016
Baylor College of Medicine, Baylor College of Medicine and Center for Medical Ethics and Health Policy, Baylor College of Medicine
Downloads 20 (519,341)

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NPRM, Common Rule, Research Ethics, Biospecimens, Health Data

5.

Constraints on Gene Patent Protection Fuel Secrecy Concerns: A Qualitative Study

Journal of Law and the Biosciences, 2017
Posted: 20 Nov 2017
Baylor College of Medicine, Baylor College of Medicine, Center for Medical Ethics and Health Policy, Baylor College of Medicine, Johns Hopkins University and Independent

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patent law, qualitative, diagnostics, genetics, innovation, Section 101, patentable subject matter

6.

Myriad Take Two: Can Genomic Databases Remain Secret?

Science, Vol. 356, Issue 6338, pp. 586-587, 2017
Posted: 27 May 2017
Baylor College of Medicine, Baylor College of Medicine and Center for Medical Ethics and Health Policy, Baylor College of Medicine

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Patents, Trade Secrets, Diagnostics, Exclusivities

7.

Sharing Data under the 21st Century Cures Act

Genetics in Medicine 2017: doi:10.1038/gim.2017.59
Posted: 27 May 2017
Center for Medical Ethics and Health Policy, Baylor College of Medicine, Baylor College of Medicine, Johns Hopkins University, Arizona State University (ASU) - School for the Future of Innovation in Society and Baylor College of Medicine

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21st Century Cures Act; Certificates of Confidentiality; Data Sharing; HIPAA; Privacy

8.

Persistent Confusion and Controversy Surrounding Gene Patents

34 Nature Biotechnology 145 (2016)
Posted: 04 Nov 2016 Last Revised: 12 Jan 2017
Baylor College of Medicine, Center for Medical Ethics and Health Policy, Baylor College of Medicine and Baylor College of Medicine

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Patent Law, Gene Patents