Amy L. McGuire

Baylor College of Medicine

One Baylor Plaza

Apt 510

Houston, TX TX - Texas 77030

United States

SCHOLARLY PAPERS

4

DOWNLOADS

381

SSRN CITATIONS

3

CROSSREF CITATIONS

9

Scholarly Papers (4)

1.

Ethical and Practical Guidelines for Reporting Genetic Research Results to Study Participants: Updated Guidelines from a National Heart, Lung, and Blood Institute Working Group

Circulation: Cardiovascular Genetics: Journal of the Heart Associations, Vol. 3, No. 6, pp. 574-580, 2010, Minnesota Legal Studies Research Paper No. 11-08, Vanderbilt Law and Economics Research Paper No. 11-10, Vanderbilt Public Law Research Paper No. 11-6
Number of pages: 8 Posted: 15 Jan 2011 Last Revised: 29 Jul 2015
Government of the United States of America - National Heart, Lung and Blood Institute, Baylor College of Medicine, Cleveland Clinic - Department of Bioethics, Government of the United States of America - National Heart, Lung and Blood Institute, Vanderbilt University Medical Center, National Institutes of Health (NIH) - National Human Genome Research Institute, National Institutes of Health (NIH) - National Human Genome Research Institute, University of Washington - Department of Bioethics & Humanities, University of California, San Francisco (UCSF) - Division of Pulmonary, Critical Care, Allergy and Sleep Medicine, Harvard University - Harvard Medical School, Vanderbilt University - Law School, University of Minnesota - Twin Cities - Laboratory Medicine and Pathology, Dalhousie University - Department of Pediatrics, Patient Advocate, University of Washington - Department of Bioethics & Humanities, Broad Institute of MIT and Harvard University, Southwest Tribal Epidemiology Center, Johns Hopkins University - Department of Medicine/Cardiology, University of Washington - Division of Medical Genetics, University of Illinois Chicago - College of Medicine, HealthFutures, LLC, Framingham Heart Study - National Heart, Lung, and Blood Institute, Partners HealthCare, National Institutes of Health (NIH) - National Human Genome Research Institute, National Institutes of Health (NIH) - National Cancer Institute, University of Maryland - School of Medicine, Charles B. Wang Community Health Center, Massachusetts General Hospital - Genetics Unit, University of Minnesota Law School and Wake Forest University - School of Medicine
Downloads 202 (289,295)
Citation 1

Abstract:

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Genetics, Genomics, Research Genetics, Human Subjects Research, Research Ethics, Bioethics, Return of Results, Incidental Findings, Risk Prediction, NIH, NHLBI

2.

Reflections on the Cost of 'Low Cost' Whole Genome Sequencing: Framing the Health Policy Debate

PLOS Biology, V. 11, No. 11, November 2013, p. e1001699, U of Maryland Legal Studies Research Paper No. 2013-68
Number of pages: 6 Posted: 12 Nov 2013
University of Alberta - Health Law Institute, University of North Carolina (UNC) at Chapel Hill - School of Medicine, Baylor College of Medicine, University of Alberta - Emergency Medicine, University of Alberta - Faculty of Public Health, Arizona State University (ASU) - School for the Future of Innovation in Society, McGill University - BioMedical Ethics Unit, King’s College London, Dept of Social Science, Health & Medicine, University of Toronto - Institute of Health Policy, Management and Evaluation, University of Montreal, Dept of Social and Preventive Medicine, National Institutes of Health (NIH) - National Human Genome Research Institute, Catholic University of Leuven - Faculty of Medicine - Center for Biomedical Ethics and Law, Stanford University - Stanford Center for Biomedical Ethics (SCBE), University of Toronto, Granovsky Gluskin Family Medicine Centre, Memorial University of Newfoundland, Faculty of Medicine, McGill University - Centre for Genomics and Policy, Osaka, Dept of Biomedical Ethics & Public Policy, Graduate School of Medicine, Stanford University - Stanford Center for Biomedical Ethics (SCBE), University of Maryland Francis King Carey School of Law, University of Pennsylvania - Perelman School of Medicine, University of Toronto, Centre for Bioethics, University of Wisconsin Law School, Memorial University of Newfoundland - Faculty of Medicine, Université Laval - Faculty of Medicine, University of Toronto - Department of Health Policy, Management and Evaluation and University of Ottawa, Faculty of Medicine, Public Health Genomics
Downloads 67 (645,121)

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whole genome sequencing, WGS, whole exome sequencing, WES, human genome

3.

Medical Information Commons

Draft (Routledge Handbook of the Study of the Commons, Forthcoming)
Number of pages: 16 Posted: 09 Mar 2018
Mary Anderlik Majumder, Peter Zuk and Amy L. McGuire
Center for Medical Ethics and Health Policy, Baylor College of Medicine, Rice University and Baylor College of Medicine
Downloads 64 (660,327)

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commons theory, biomedical research, ethics

4.

“A Double-Edged Sword”: Genetic Researcher Perspectives on Data Sharing

Spector-Bagdady K, Ryan KA, McGuire AL, Krenz CD, Trinidad MG, Jaffe K, Greene A, Thomas JD, Kent M, Morain S, Wilborn D, Roberts JS. “A double-edged sword”: Genetic researcher perspectives on data sharing. J Law Med Ethics (in press). Available on SSRN at: https://papers.ssrn.com/sol3/cf_dev/AbsByA
Number of pages: 34 Posted: 19 Jun 2023
University of Michigan at Ann Arbor - Medical School, University of Michigan at Ann Arbor, Baylor College of Medicine, University of Michigan at Ann Arbor, International Data Corporation, University of Michigan at Ann Arbor - Medical School, University of Michigan at Ann Arbor - Medical School, University of Michigan at Ann Arbor - Medical School, University of California, Los Angeles (UCLA) - David Geffen School of Medicine, Johns Hopkins University - Berman Institute of Bioethics, University of Michigan at Ann Arbor and University of Michigan at Ann Arbor
Downloads 48 (752,276)
Citation 1

Abstract:

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genetics, data sharing, genetic testing, National Institutes of Health