Amy L. McGuire

Baylor College of Medicine

One Baylor Plaza

Houston, TX 77030

United States

SCHOLARLY PAPERS

6

DOWNLOADS

215

CITATIONS

1

Scholarly Papers (6)

1.

Ethical and Practical Guidelines for Reporting Genetic Research Results to Study Participants: Updated Guidelines from a National Heart, Lung, and Blood Institute Working Group

Circulation: Cardiovascular Genetics: Journal of the Heart Associations, Vol. 3, No. 6, pp. 574-580, 2010, Minnesota Legal Studies Research Paper No. 11-08, Vanderbilt Law and Economics Research Paper No. 11-10, Vanderbilt Public Law Research Paper No. 11-6
Number of pages: 8 Posted: 15 Jan 2011 Last Revised: 29 Jul 2015
National Institutes of Health (NIH) - National Heart, Lung, and Blood Institute, Baylor College of Medicine, Cleveland Clinic - Department of Bioethics, National Institutes of Health (NIH) - National Heart, Lung, and Blood Institute, Duke University - Institute for Genome Sciences & Policy, National Institutes of Health (NIH) - National Human Genome Research Institute, National Institutes of Health (NIH) - National Human Genome Research Institute, University of Washington - Department of Bioethics & Humanities, University of California, San Francisco (UCSF) - Pulmonary and Critical Care Division, Harvard Medical School, Vanderbilt University - Law School, University of Minnesota - Twin Cities - Laboratory Medicine and Pathology, Dalhousie University - Department of Pediatrics, Patient Advocate, University of Washington - Department of Bioethics & Humanities, Broad Institute of MIT and Harvard University, Southwest Tribal Epidemiology Center, Johns Hopkins University - Department of Medicine/Cardiology, University of Washington - Division of Medical Genetics, University of Illinois Chicago - College of Medicine, HealthFutures, LLC, Framingham Heart Study - National Heart, Lung, and Blood Institute, Partners HealthCare, National Institutes of Health (NIH) - National Human Genome Research Institute, National Institutes of Health (NIH) - National Cancer Institute, University of Maryland - School of Medicine, Charles B. Wang Community Health Center, Massachusetts General Hospital - Genetics Unit, University of Minnesota Law School and Wake Forest University - School of Medicine
Downloads 158 (150,270)
Citation 1

Abstract:

Genetics, Genomics, Research Genetics, Human Subjects Research, Research Ethics, Bioethics, Return of Results, Incidental Findings, Risk Prediction, NIH, NHLBI

2.

Reflections on the Cost of 'Low Cost' Whole Genome Sequencing: Framing the Health Policy Debate

PLOS Biology, V. 11, No. 11, November 2013, p. e1001699, U of Maryland Legal Studies Research Paper No. 2013-68
Number of pages: 6 Posted: 12 Nov 2013
University of Alberta - Health Law Institute, University of North Carolina (UNC) at Chapel Hill - School of Medicine, Baylor College of Medicine, University of Alberta - Emergency Medicine, University of Alberta - Faculty of Public Health, Arizona State University (ASU), McGill University - BioMedical Ethics Unit, King’s College London, Dept of Social Science, Health & Medicine, University of Toronto, University of Montreal, Dept of Social and Preventive Medicine, National Institutes of Health (NIH) - National Human Genome Research Institute, Catholic University of Leuven - Faculty of Medicine - Center for Biomedical Ethics and Law, Stanford University - Stanford Center for Biomedical Ethics (SCBE), University of Toronto, Granovsky Gluskin Family Medicine Centre, Memorial University of Newfoundland, Faculty of Medicine, McGill University - Centre for Genomics and Policy, Osaka, Dept of Biomedical Ethics & Public Policy, Graduate School of Medicine, Stanford University - Stanford Center for Biomedical Ethics (SCBE), University of Maryland Francis King Carey School of Law, University of Pennsylvania - Perelman School of Medicine, University of Toronto, Centre for Bioethics, University of Wisconsin-Madison, School of Law; Morgridge Institute for Research, Memorial University of Newfoundland - Faculty of Medicine, Laval University - Faculty of Medicine, University of Toronto - Department of Health Policy, Management and Evaluation and University of Ottawa, Faculty of Medicine, Public Health Genomics
Downloads 25 (400,598)

Abstract:

whole genome sequencing, WGS, whole exome sequencing, WES, human genome

3.

Myriad Take Two: Can Genomic Databases Remain Secret?

Science, Vol. 356, Issue 6338, pp. 586-587, 2017
Posted: 27 May 2017
Baylor College of Medicine, Baylor College of Medicine and Center for Medical Ethics and Health Policy, Baylor College of Medicine

Abstract:

Patents, Trade Secrets, Diagnostics, Exclusivities

4.

Sharing Data under the 21st Century Cures Act

Genetics in Medicine 2017: doi:10.1038/gim.2017.59
Posted: 27 May 2017
Center for Medical Ethics and Health Policy, Baylor College of Medicine, Baylor College of Medicine, Johns Hopkins University, Arizona State University (ASU) and Baylor College of Medicine

Abstract:

21st Century Cures Act; Certificates of Confidentiality; Data Sharing; HIPAA; Privacy

5.

Clearing Complexity from the Common Rule NPRM

3 Journal of Law & the Biosciences 257 (2016)
Number of pages: 24 Posted: 08 Nov 2016
Baylor College of Medicine, Baylor College of Medicine and Center for Medical Ethics and Health Policy, Baylor College of Medicine
Downloads 0 (459,956)

Abstract:

NPRM, Common Rule, Research Ethics, Biospecimens, Health Data

6.

Persistent Confusion and Controversy Surrounding Gene Patents

34 Nature Biotechnology 145 (2016)
Posted: 04 Nov 2016 Last Revised: 12 Jan 2017
Baylor College of Medicine, Center for Medical Ethics and Health Policy, Baylor College of Medicine and Baylor College of Medicine

Abstract:

Patent Law, Gene Patents