Bartha Maria Knoppers

McGill University - Centre for Genomics and Policy

740 Dr. Penfield Avenue, Suite 5200

Montreal, Quebec H3A 0G1

Canada

SCHOLARLY PAPERS

14

DOWNLOADS
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980

SSRN CITATIONS
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SSRN RANKINGS

Top 20,349

in Total Papers Citations

1

CROSSREF CITATIONS

39

Scholarly Papers (14)

1.

Managing Incidental Findings and Research Results in Genomic Research Involving Biobanks and Archived Data Sets

Genetics in Medicine, Vol. 14, No. 4, pp. 361-384, 2012
Number of pages: 24 Posted: 26 Mar 2012 Last Revised: 27 Apr 2012
University of Minnesota Law School, University of Minnesota - Twin Cities, University of Minnesota - Twin Cities, University of Minnesota - Twin Cities, Johns Hopkins Berman Institute of Bioethics, Duke University - Institute for Genome Sciences & Policy, Stanford University - Stanford Center for Biomedical Ethics (SCBE), Coriell Institute for Medical Research, Harvard University - Medical School, University of Minnesota, Twin Cities - School of Law, University of British Columbia (UBC), University of Minnesota - Twin Cities, University of California, San Francisco (UCSF), McGill University - Centre for Genomics and Policy, Harvard Children's Hospital, University of Minnesota - Twin Cities, The Hastings Center, University of Wisconsin-Madison, School of Law; Morgridge Institute for Research, University of Minnesota Law School, University of Pittsburgh, Mayo Clinic - College of Medicine and Science, Georgetown University - Department of Philosophy, National Coalition for Health Professional Education in Genetics, Genetic Alliance, University of Washington and Harvard Children's Hospital
Downloads 161 (191,338)
Citation 1

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biobanks, bioethics, genetics, genomics, incidental findings, research ethics, return of results

2.

Normative Approaches to Address Genetic Discrimination: Placebo or Panacea?

Trends in Genetics, Forthcoming
Number of pages: 34 Posted: 08 Mar 2017 Last Revised: 12 Mar 2017
Yann Joly, Ida Ngueng Feze, Lingqiao Song and Bartha Maria Knoppers
McGill University - Centre for Genomics and Policy, McGill University - Centre for Genomics and Policy, McGill University - Centre for Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 143 (211,354)

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genetic discrimination, comparative law, personalized medicine, bioethics, insurance, human rights

3.

Incidental Findings in Genomic Research: A Review of International Norms

(2011) 9:1 GenEdit 1
Number of pages: 8 Posted: 18 Jan 2013
Ma'n H. Zawati, Brian Van Ness and Bartha Maria Knoppers
McGill University - Centre of Genomics and Policy, University of Minnesota - Twin Cities and McGill University - Centre for Genomics and Policy
Downloads 134 (222,679)

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4.

Sampling Populations of Humans Across the World: ELSI Issues

Annual Review of Genomics and Human Genetics, 13:395-413, 2012
Number of pages: 21 Posted: 11 Jan 2013
Bartha Maria Knoppers, Ma'n H. Zawati and Emily Kirby
McGill University - Centre for Genomics and Policy, McGill University - Centre of Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 112 (254,506)

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biobanks, disease-specific studies, longitudinal studies, residual tissue banks

5.

Genetics and Life Insurance: A Comparative Analysis

(2004) II-2 GenEdit, 1-14
Number of pages: 15 Posted: 07 Aug 2013
Trudo Lemmens, Yann Joly and Bartha Maria Knoppers
University of Toronto - Faculty of Law, McGill University - Centre for Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 87 (301,051)

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6.

Comparative Approaches to Biobanks and Privacy

Journal of Law, Medicine and Ethics, Vol. 44, No. 1, 2016
Number of pages: 12 Posted: 02 May 2016
Mark A. Rothstein, Bartha Maria Knoppers and Heather L. Harrell
University of Louisville - Institute for Bioethics, Health Policy, and Law, McGill University - Centre for Genomics and Policy and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 56 (382,906)

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Comparative law, privacy, research ethics, biobanks, genetic research, consent, common rule, IRBs, international law, genomics

7.

International Normative Perspectives on the Return of Individual Research Results and Incidental Findings in Genomic Biobanks

Genetics in Medicine, Vol. 14, No. 4, April 2012
Number of pages: 6 Posted: 11 Jan 2013
Ma'n H. Zawati and Bartha Maria Knoppers
McGill University - Centre of Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 50 (402,935)

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8.

Legal and Ethical Challenges of International Direct-to-Participant Genomic Research: Conclusions and Recommendations

J.L. Med & Ethics, 47(4) 2019
Number of pages: 75 Posted: 22 Nov 2019
University of Louisville - Institute for Bioethics, Health Policy, and Law, McGill University - Centre of Genomics and Policy, Duke University - Institute for Genome Sciences & Policy, Vanderbilt University - Center for Biomedical Ethics and Society, University of Louisville - School of Medicine, Independent, Center for Genetic Privacy & Identity in Community Settings, Vanderbilt University Medical Center, McGill University - Centre for Genomics and Policy, McGill University - Faculty of Law, affiliation not provided to SSRN, Masssachusetts Institute of Technology and Harvard University - Broad Institute and McGill University - Centre for Genomics and Policy
Downloads 49 (406,407)

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direct-to-participant research, Genomic research, international law, international research, IRBs, Research ethics

9.

Recommendations for Returning Genomic Incidental Findings? We Need to Talk!

Genetics in Medicine, Vol. 15, DOI:10.1038/gim.2013.113
Number of pages: 6 Posted: 30 Aug 2013
University of Washington - Department of Bioethics & Humanities, Cincinnati Children's Hospital Medical Center, University of Washington - Department of Medical Genetics, University of Utah - Pediatric Administration, Vanderbilt University - Law School, University of North Carolina (UNC) at Chapel Hill, Children's Hospital Boston, University of Washington - Division of Medical Genetics, Office of Public Health Genomics, McGill University - Centre for Genomics and Policy, Oregon Health and Science University, University of Chicago - Department of Pediatrics, University of Louisville - Institute for Bioethics, Health Policy, and Law, Cincinnati Children's Hospital Medical Center, University of Michigan at Ann Arbor - Medical School, University of Washington, University of Minnesota Law School and Foundation for Genomics and Population Health
Downloads 43 (428,671)

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biobank, bioethics, biorepository, genetics, genomics, human subjects research, incidental findings, research ethics; return of results

10.

Vaccines of the 21st Century and Vaccinomics: Data-Enabled Science Meets Global Health to Spark Collective Action for Vaccine Innovation

OMICS: A Journal of Integrative Biology, Volume 15, Number 9, 2011, DOI: 10.1089/omi.2011.03ed
Number of pages: 6 Posted: 19 Jan 2013
McGill University - Centre for Genomics and Policy, World Health Organization, McGill University - Centre for Genomics and Policy, McGill University - Centre for Genomics and Policy, McGill University, McGill University - Centre of Genomics and Policy and Seattle Children's Hospital
Downloads 39 (444,859)

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11.

Towards a Data Sharing Code of Conduct for International Genomic Research

Genome Medicine, Vol. 3, No. 7, p. 46, 2011, DOI: 10.1186/gm262
Number of pages: 4 Posted: 17 Jan 2013
McGill University - Centre for Genomics and Policy, Norwegian Institute of Public Health, McGill University - Centre for Genomics and Policy, Norwegian Institute of Public Health, University of Oxford - Faculty of Law, McGill University - Centre for Genomics and Policy and McGill University - Centre of Genomics and Policy
Downloads 33 (470,832)

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12.

Population Studies: Return of Research Results and Incidental Findings Policy Statement

European Journal of Human Genetics, 2012 July 11, doi: 10.1038/ejhg.2012.152
Number of pages: 3 Posted: 18 Jan 2013
McGill University - Centre for Genomics and Policy, McGill University - Centre for Genomics and Policy, McGill University - Centre of Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 30 (485,282)

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13.

Governing Stem Cells: Regenerative Medicine in Europe - The Vision and Recommendations From the EUCelLEX Project

Governing Stem Cells: Regenerative Medicine in Europe,The Vision and Recommendations From the EUCelLEX Project, Edited by Emmanuelle Rial-Sebbag (EUCelLEX Consortium), December 2018
Number of pages: 113 Posted: 02 Apr 2019
Research Fellow, Medical University of Graz, Catholic University of Leuven - Faculty of Medicine - Center for Biomedical Ethics and Law, Independent, University of Angers - French Institute of Health and Medical Research (INSERM), BBMRI-ERIC, Leibniz Universität Hannover, Dpt. of Human Genetics, University of Miami Miller School of Medicine, University of Oxford - Centre for Health, Law and Emerging Technologies, McGill University - Centre for Genomics and Policy, Leibniz University Hannover, University of Oxford - Centre for Health, Law and Emerging Technologies, IFRIS, KU Leuven, Medical University of Graz, Inserm, UMR 1027, Central European University (CEU), KU Leuven - Interfaculty Center for Biomedical Ethics and Law, SciencesPo, Hungarian Academy of Sciences CSS Institute for Legal Studies and Medical University of Graz
Downloads 25 (512,014)

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Governing Stem Cells, Regenerative Medicine, EUCelLEX project

14.

Regulatory Landscape of International Direct-to-Participant (DTP) Genomic Research: Time to Untie the Gordian Knot?

J. Law Med.&Ethics, 47(2):2019
Number of pages: 14 Posted: 25 Apr 2019 Last Revised: 10 Sep 2019
Mark A. Rothstein, Ma'n H. Zawati and Bartha Maria Knoppers
University of Louisville - Institute for Bioethics, Health Policy, and Law, McGill University - Centre of Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 18 (554,057)

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Direct-to-participant, Genomic research, Informed consent, International law, Online recruitment, Privacy, Rare disorders