Bartha Maria Knoppers

McGill University - Centre for Genomics and Policy

740 Dr. Penfield Avenue, Suite 5200

Montreal, Quebec H3A 0G1

Canada

SCHOLARLY PAPERS

11

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CITATIONS
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10

Scholarly Papers (11)

1.

Incidental Findings in Genomic Research: A Review of International Norms

(2011) 9:1 GenEdit 1
Number of pages: 8 Posted: 18 Jan 2013
Ma'n H. Zawati, Brian Van Ness and Bartha Maria Knoppers
McGill University - Centre of Genomics and Policy, University of Minnesota - Twin Cities and McGill University - Centre for Genomics and Policy
Downloads 113 (193,072)
Citation 2

Abstract:

2.

Managing Incidental Findings and Research Results in Genomic Research Involving Biobanks and Archived Data Sets

Genetics in Medicine, Vol. 14, No. 4, pp. 361-384, 2012
Number of pages: 24 Posted: 26 Mar 2012 Last Revised: 27 Apr 2012
University of Minnesota Law School, University of Minnesota - Twin Cities, University of Minnesota - Twin Cities, University of Minnesota - Twin Cities, Johns Hopkins Berman Institute of Bioethics, Duke University - Institute for Genome Sciences & Policy, Stanford University - Stanford Center for Biomedical Ethics (SCBE), Coriell Institute for Medical Research, Harvard Medical School, University of Minnesota, Twin Cities - School of Law, University of British Columbia (UBC), University of Minnesota - Twin Cities, University of California, San Francisco (UCSF), McGill University - Centre for Genomics and Policy, Harvard Children's Hospital, University of Minnesota - Twin Cities, The Hastings Center, University of Wisconsin-Madison, School of Law; Morgridge Institute for Research, University of Minnesota Law School, University of Pittsburgh, Mayo Clinic College of Medicine, Georgetown University - Department of Philosophy, National Coalition for Health Professional Education in Genetics, Genetic Alliance, University of Washington and Harvard Children's Hospital
Downloads 100 (185,993)
Citation 1

Abstract:

biobanks, bioethics, genetics, genomics, incidental findings, research ethics, return of results

3.

Sampling Populations of Humans Across the World: ELSI Issues

Annual Review of Genomics and Human Genetics, 13:395-413, 2012
Number of pages: 21 Posted: 11 Jan 2013
Bartha Maria Knoppers, Ma'n H. Zawati and Emily S. Kirby
McGill University - Centre for Genomics and Policy, McGill University - Centre of Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 85 (209,782)

Abstract:

biobanks, disease-specific studies, longitudinal studies, residual tissue banks

4.

International Normative Perspectives on the Return of Individual Research Results and Incidental Findings in Genomic Biobanks

Genetics in Medicine, Vol. 14, No. 4, April 2012
Number of pages: 6 Posted: 11 Jan 2013
Ma'n H. Zawati and Bartha Maria Knoppers
McGill University - Centre of Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 46 (339,845)

Abstract:

5.

Genetics and Life Insurance: A Comparative Analysis

(2004) II-2 GenEdit, 1-14
Number of pages: 15 Posted: 07 Aug 2013
Trudo Lemmens, Yann Joly and Bartha Maria Knoppers
University of Toronto - Faculty of Law, McGill University - Centre for Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 37 (288,908)
Citation 6

Abstract:

6.

Recommendations for Returning Genomic Incidental Findings? We Need to Talk!

Genetics in Medicine, Vol. 15, DOI:10.1038/gim.2013.113
Number of pages: 6 Posted: 30 Aug 2013
University of Washington - Department of Bioethics & Humanities, Cincinnati Children's Hospital Medical Center, University of Washington - Department of Medical Genetics, University of Utah - Pediatric Administration, Vanderbilt University - Law School, University of North Carolina (UNC) at Chapel Hill, Children's Hospital Boston, University of Washington - Division of Medical Genetics, Office of Public Health Genomics, McGill University - Centre for Genomics and Policy, Oregon Health and Science University, University of Chicago - Department of Pediatrics, University of Louisville - Institute for Bioethics, Health Policy, and Law, Cincinnati Children's Hospital Medical Center, University of Michigan at Ann Arbor - Medical School, University of Washington, University of Minnesota Law School and Foundation for Genomics and Population Health
Downloads 32 (358,963)

Abstract:

biobank, bioethics, biorepository, genetics, genomics, human subjects research, incidental findings, research ethics; return of results

7.

Vaccines of the 21st Century and Vaccinomics: Data-Enabled Science Meets Global Health to Spark Collective Action for Vaccine Innovation

OMICS: A Journal of Integrative Biology, Volume 15, Number 9, 2011, DOI: 10.1089/omi.2011.03ed
Number of pages: 6 Posted: 19 Jan 2013
McGill University - Centre for Genomics and Policy, World Health Organization, McGill University - Centre for Genomics and Policy, McGill University - Centre for Genomics and Policy, McGill University, McGill University - Centre of Genomics and Policy and Seattle Children's Hospital
Downloads 32 (372,977)

Abstract:

8.

Towards a Data Sharing Code of Conduct for International Genomic Research

Genome Medicine, Vol. 3, No. 7, p. 46, 2011, DOI: 10.1186/gm262
Number of pages: 4 Posted: 17 Jan 2013
McGill University - Centre for Genomics and Policy, Norwegian Institute of Public Health, McGill University - Centre for Genomics and Policy, Norwegian Institute of Public Health, University of Oxford - Faculty of Law, McGill University - Centre for Genomics and Policy and McGill University - Centre of Genomics and Policy
Downloads 29 (392,000)
Citation 1

Abstract:

9.

Population Studies: Return of Research Results and Incidental Findings Policy Statement

European Journal of Human Genetics, 2012 July 11, doi: 10.1038/ejhg.2012.152
Number of pages: 3 Posted: 18 Jan 2013
McGill University - Centre for Genomics and Policy, McGill University - Centre for Genomics and Policy, McGill University - Centre of Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 27 (404,650)

Abstract:

10.

Normative Approaches to Address Genetic Discrimination: Placebo or Panacea?

Trends in Genetics, Forthcoming
Number of pages: 34 Posted: 08 Mar 2017 Last Revised: 12 Mar 2017
Yann Joly, Ida Ngueng Feze, Lingqiao Song and Bartha Maria Knoppers
McGill University - Centre for Genomics and Policy, McGill University - Centre for Genomics and Policy, McGill University - Centre for Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 0 (327,978)

Abstract:

genetic discrimination, comparative law, personalized medicine, bioethics, insurance, human rights

11.

Comparative Approaches to Biobanks and Privacy

Journal of Law, Medicine and Ethics, Vol. 44, No. 1, 2016
Number of pages: 12 Posted: 02 May 2016
Mark A. Rothstein, Bartha Maria Knoppers and Heather L. Harrell
University of Louisville - Institute for Bioethics, Health Policy, and Law, McGill University - Centre for Genomics and Policy and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 0 (369,404)

Abstract:

Comparative law, privacy, research ethics, biobanks, genetic research, consent, common rule, IRBs, international law, genomics