Ma'n H. Zawati

McGill University - Centre of Genomics and Policy

Assistant Professor, Executive Director and Lawyer

740 Dr. Penfield Avenue, Suite 5200

Montreal, Quebec H3A 0G1

Canada

SCHOLARLY PAPERS

63

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1,529

SSRN CITATIONS
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Top 19,038

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1

CROSSREF CITATIONS

48

Scholarly Papers (63)

1.

The Physician Who Knew Too Much: A Comment on Watters v White

Health Law Journal, Annual, 2014, Vol. 21, p1. 27 p.
Number of pages: 27 Posted: 01 Aug 2015 Last Revised: 07 Aug 2015
Ma'n H. Zawati and Adrian Thorogood
McGill University - Centre of Genomics and Policy and McGill University - Centre of Genomics and Policy
Downloads 144 (220,755)

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Medical Genetics, Physician, Genetic Information, Watters v White, Court judgment, Informing the patient, Communicating genetic information, Sex-linked Disorder

2.

Incidental Findings in Genomic Research: A Review of International Norms

(2011) 9:1 GenEdit 1
Number of pages: 8 Posted: 18 Jan 2013
McGill University - Centre of Genomics and Policy, University of Minnesota - Twin Cities and McGill University - Centre for Genomics and Policy
Downloads 138 (228,363)

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3.

Sampling Populations of Humans Across the World: ELSI Issues

Annual Review of Genomics and Human Genetics, 13:395-413, 2012
Number of pages: 21 Posted: 11 Jan 2013
Bartha Maria Knoppers, Ma'n H. Zawati and Emily Kirby
McGill University - Centre for Genomics and Policy, McGill University - Centre of Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 113 (265,561)

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biobanks, disease-specific studies, longitudinal studies, residual tissue banks

4.
Downloads 85 (320,366)

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5.

Biobanks and the Return of Research Results: Out with the Old and in with the New?

Journal of Law & Medicine, p. 614, Winter 2011
Number of pages: 7 Posted: 11 Jan 2013 Last Revised: 07 Aug 2015
Ma'n H. Zawati and Amelie Rioux
McGill University - Centre of Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 66 (369,768)

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6.

Legal and Ethical Challenges of International Direct-to-Participant Genomic Research: Conclusions and Recommendations

J.L. Med & Ethics, 47(4) 2019
Number of pages: 27 Posted: 22 Nov 2019 Last Revised: 05 May 2020
University of Louisville - Institute for Bioethics, Health Policy, and Law, McGill University - Centre of Genomics and Policy, Duke University - Institute for Genome Sciences & Policy, Vanderbilt University - Center for Biomedical Ethics and Society, University of Louisville - School of Medicine, Independent, Center for Genetic Privacy & Identity in Community Settings, Vanderbilt University Medical Center, McGill University - Centre for Genomics and Policy, McGill University - Faculty of Law, affiliation not provided to SSRN, Masssachusetts Institute of Technology and Harvard University - Broad Institute and McGill University - Centre for Genomics and Policy
Downloads 64 (375,665)

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direct-to-participant research, Genomic research, international law, international research, IRBs, Research ethics

7.

Electronic Consent to Health Research in Canada

Canadian Bar Review; 2012, Vol. 91 Issue 1-3, p. 419-435, 17p
Number of pages: 17 Posted: 01 Aug 2015 Last Revised: 07 Aug 2015
Emily Kirby, Ma'n H. Zawati and Bartha Knoppers
McGill University - Centre for Genomics and Policy, McGill University - Centre of Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 52 (415,057)

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Electronic Consent, Health Research, Consent, Research, Ethical considerations, Legal considerations, Social considerations

8.

International Normative Perspectives on the Return of Individual Research Results and Incidental Findings in Genomic Biobanks

Genetics in Medicine, Vol. 14, No. 4, April 2012
Number of pages: 6 Posted: 11 Jan 2013
Ma'n H. Zawati and Bartha Maria Knoppers
McGill University - Centre of Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 50 (422,153)

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9.

Chapter 6 – Legal Aspects of Health Applications of Genomics

Number of pages: 8 Posted: 08 Feb 2016
Ellen Clayton and Ma'n H. Zawati
Vanderbilt University and McGill University - Centre of Genomics and Policy
Downloads 49 (425,875)

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Regulation, genomic data access, reimbursement, liability, privacy

10.

Incidental Findings in Data-Intensive Postgenomics Science and Legal Liability of Clinician-Researchers: Ready for Vaccinomics?

OMICS, Vol. 15, No. 9, pp. 615-624, September 2011, DOI: 10.1089/omi.2010.0137
Number of pages: 10 Posted: 17 Jan 2013
Ma'n H. Zawati, Yann Joly and Matthew Hendy Hendy
McGill University - Centre of Genomics and Policy, McGill University - Centre for Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 47 (433,399)

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11.

Amendments to the Civil Code of Québec's Research Provisions: A Legislative Comment

McGill Journal of Law and Health, Vol. 8, 2015
Number of pages: 32 Posted: 17 Jul 2015 Last Revised: 07 Aug 2015
Edward Dove and Ma'n H. Zawati
Columbia University - Law School and McGill University - Centre of Genomics and Policy
Downloads 44 (444,957)

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12.

Vaccines of the 21st Century and Vaccinomics: Data-Enabled Science Meets Global Health to Spark Collective Action for Vaccine Innovation

OMICS: A Journal of Integrative Biology, Volume 15, Number 9, 2011, DOI: 10.1089/omi.2011.03ed
Number of pages: 6 Posted: 19 Jan 2013
McGill University - Centre for Genomics and Policy, World Health Organization, McGill University - Centre for Genomics and Policy, McGill University - Centre for Genomics and Policy, McGill University, McGill University - Centre of Genomics and Policy and Seattle Children's Hospital
Downloads 41 (457,298)

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13.

Diagnostic Testing for Vaccinomics: Is the Regulatory Approval Framework Adequate? A Comparison of Canada, the United States, and Europe

OMICS: A Journal of Integrative Biology, 2011 September;15(9):597-605, doi: 10.1089/omi.2010.0135
Number of pages: 10 Posted: 18 Jan 2013
McGill University - Centre for Genomics and Policy, McGill University - Centre for Genomics and Policy, McGill University - Centre for Genomics and Policy, McGill University - Centre of Genomics and Policy, University of British Columbia (UBC), University of British Columbia (UBC) and University of British Columbia (UBC)
Downloads 38 (470,159)

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14.

Towards a Data Sharing Code of Conduct for International Genomic Research

Genome Medicine, Vol. 3, No. 7, p. 46, 2011, DOI: 10.1186/gm262
Number of pages: 4 Posted: 17 Jan 2013
McGill University - Centre for Genomics and Policy, Norwegian Institute of Public Health, McGill University - Centre for Genomics and Policy, Norwegian Institute of Public Health, University of Oxford - Faculty of Law, McGill University - Centre for Genomics and Policy and McGill University - Centre of Genomics and Policy
Downloads 33 (493,128)
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15.

To Share or Not to Share? Secondary Use in Public Health Emergencies

Canadian Institutes of Health Research – Institute of Population and Public Health. (2012). Population and Public Health Ethics: Cases from Research, Policy, and Practice. University of Toronto Joint Centre for Bioethics: Toronto, ON.
Number of pages: 186 Posted: 04 Aug 2015 Last Revised: 02 Aug 2017
Ma'n H. Zawati and Anne-Marie Tassé
McGill University - Centre of Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 32 (498,071)

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Research, Policy, Practice, Population and Public Health, Ethics, Public Health Emergency, Research Ethics Board

16.

RMGA Statement of Principles on the Return of Research Results and Incidental Findings

Number of pages: 39 Posted: 01 Aug 2015 Last Revised: 19 Jun 2017
McGill University - Centre for Genomics and Policy, McGill University - Centre for Genomics and Policy, IWK Health Centre, McGill University - Centre for Genomics and Policy, McGill University - Centre of Genomics and Policy, McGill University - Centre for Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 30 (508,227)

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Biobank, Clinical Utility, Research, RMGA, Statement of Principles, Return of Research Results, Incidental Findings, Scientific Validity, Human biological materials, Clinical validity, Secondary Use

17.

Population Studies: Return of Research Results and Incidental Findings Policy Statement

European Journal of Human Genetics, 2012 July 11, doi: 10.1038/ejhg.2012.152
Number of pages: 3 Posted: 18 Jan 2013
McGill University - Centre for Genomics and Policy, McGill University - Centre for Genomics and Policy, McGill University - Centre of Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 30 (508,227)

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18.

Population Biobanking and International Collaboration

Pathobiology, Vol. 81, No. 5-6, 2015
Number of pages: 10 Posted: 07 Aug 2015
Ma'n H. Zawati, Bartha Knoppers and Adrian Thorogood
McGill University - Centre of Genomics and Policy, McGill University and McGill University - Centre of Genomics and Policy
Downloads 29 (513,486)

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Biobanking, Population Biobanking, Law, Ethics, Harmonization, Genetic Research

19.

Liability and the Legal Duty to Inform in Research

Routledge Handbook of Medical Law and Ethics (London: Routledge, 2014)
Number of pages: 11 Posted: 05 Aug 2015 Last Revised: 07 Aug 2015
Ma'n H. Zawati
McGill University - Centre of Genomics and Policy
Downloads 29 (513,486)

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Liability, Legal duty to inform in research, Consent, Medical research, Return of results

20.

International Guidelines for Privacy in Genomic Biobanking (or the Unexpected Virtue of Pluralism)

The Journal of Law, Medicine & Ethics, p. 690, Winter 2015
Number of pages: 13 Posted: 17 Jan 2016
Adrian Thorogood and Ma'n H. Zawati
McGill University - Centre for Genomics and Policy and McGill University - Centre of Genomics and Policy
Downloads 25 (536,278)

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International Guidelines, Privacy, Genomic Biobanking, Biobanking, Pluralism

21.

The Clinical Application of Genome-Wide Sequencing for Monogenic Diseases in Canada: Position Statement of the Canadian College of Medical Geneticists

Journal of Medical Genetics, 431-437, August 2015
Number of pages: 8 Posted: 07 Aug 2015
Children's Hospital of Eastern Ontario Research Institute (CHEO), Children's Hospital of Eastern Ontario Research Institute (CHEO), University of British Columbia (UBC), University of Calgary, University of Toronto, Memorial University of Newfoundland (MNU), University of British Columbia (UBC), Children's Hospital of Eastern Ontario Research Institute (CHEO), University of Alberta, McGill University, University of Montreal, McGill University, University of Toronto, University of Toronto, University of Montreal, University of British Columbia (UBC), Children's Hospital of Eastern Ontario Research Institute (CHEO), Western University, Dalhousie University, University Health Network, University of Alberta, University of British Columbia (UBC), McGill University - Centre of Genomics and Policy, University of Calgary and Children's Hospital of Eastern Ontario Research Institute (CHEO)
Downloads 23 (548,402)

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Canadian Healthcare System, Genome Wide Sequencing, Position Statement, Return of Results, Monogenic Diseases

22.

Population Biobanks and Access

S. Rodota, P. Zatti (eds.), Il Governo del Corpo: Trattato di Biodiritto, Giuffrè Editore, 1181-1194, 2011
Number of pages: 8 Posted: 04 Aug 2015 Last Revised: 03 Sep 2015
Bartha Knoppers and Ma'n H. Zawati
McGill University - Centre for Genomics and Policy and McGill University - Centre of Genomics and Policy
Downloads 22 (554,687)

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Population Biobanks, Genome, Data Collection, Samples, Access, CARTaGENE, Sharing data across studies and countries

23.

Closure of Population Biobanks and Direct-to-Consumer Genetic Testing Companies

Human Genetics, (2011) 130:425–432
Number of pages: 8 Posted: 01 Aug 2015
Ma'n H. Zawati, Pascal Borry and Heidi Howard
McGill University - Centre of Genomics and Policy, KU Leuven and KU Leuven
Downloads 22 (554,687)

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Population Biobanks, Direct-to-consumer genetic testing companies, Closure

24.

Ethics Education for Clinician-Researchers in Genetics: The Combined Approach

(2014) Applied and Translational Genomics Journal, doi:10.1016/j.atg.2014.12.001
Number of pages: 5 Posted: 23 Jul 2015 Last Revised: 30 Jul 2015
McGill University - Centre of Genomics and Policy, McGill University - Centre for Genomics and Policy, McGill University - Centre for Genomics and Policy, McGill University - Centre for Genomics and Policy and McGill University
Downloads 22 (554,687)

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Clinicians, Combined approach, Ethics education, Genetics, Researchers, Research ethics board

25.

Towards an Ecology of Collective Innovation: Human Variome Project (HVP), Rare Disease Consortium for Autosomal Loci (RaDiCAL) and Data-Enabled Life Sciences Alliance (DELSA)

Curr Pharmacogenomics Person Med, 2011 December, 9(4): 243-251
Number of pages: 15 Posted: 17 Jan 2013
McGill University - Centre for Genomics and Policy, McGill University, McGill University, Stellenbosch University, Centre for Arab Genomic Studies (CAGS), Cairo University, Indian Institute of Technology (IIT), Bombay, University of Kelaniya, McGill University - Centre for Genomics and Policy, McGill University - Centre for Genomics and Policy, McGill University - Centre of Genomics and Policy, Anadolu University, Anadolu University, Global Health Diagnostics, McGill University - Desautels Faculty of Management, Harvard University - Brigham and Women's Hospital, McGill University, Seattle Children's Hospital and University of Melbourne
Downloads 21 (560,977)

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26.

The Best Interests of the Child and the Return of Results in Genetic Research: International Comparative Perspectives

(2014) 15:72 BMC Medical Ethics, 1
Number of pages: 13 Posted: 23 Jul 2015 Last Revised: 24 Jul 2015
Ma'n H. Zawati, David Parry and Bartha Knoppers
McGill University - Centre of Genomics and Policy, McGill University - Centre for Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 20 (567,289)

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Best interest of the child, return of results, genomic research, paediatrics

27.

Regulatory Landscape of International Direct-to-Participant (DTP) Genomic Research: Time to Untie the Gordian Knot?

J. Law Med.&Ethics, 47(2):2019
Number of pages: 14 Posted: 25 Apr 2019 Last Revised: 10 Sep 2019
University of Louisville - Institute for Bioethics, Health Policy, and Law, McGill University - Centre of Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 19 (573,845)

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Direct-to-participant, Genomic research, Informed consent, International law, Online recruitment, Privacy, Rare disorders

28.

Biobanks

Encyclopedia of Applied Ethics (San Diego: Academic Press, 2012)
Number of pages: 6 Posted: 04 Aug 2015 Last Revised: 07 Aug 2015
Bartha Knoppers and Ma'n H. Zawati
McGill University - Centre for Genomics and Policy and McGill University - Centre of Genomics and Policy
Downloads 19 (573,845)

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Anonymization, Biobank/biorepository, Coding, Consent/informed consent, Data Trustee/keyholder/custodian, Governance, Identifiability, Material/data transfer agreement, Population biobank

29.

L’autonomie basée sur l’Individualisme libéral : les limites dans le contexte des biobanques populationnelles (Autonomy-Based on Liberal Individualism: Limits in the Context of Population Biobanks)

Ma'n H. Zawati, Yann Joly, Bartha Maria Knoppers, "L’autonomie basée sur l’individualisme libéral : les limites dans le contexte des biobanques populationnelles" in Hervé C, eds., Réflexion et recherches en éthique (2018), 279-293.
Number of pages: 8 Posted: 23 May 2018
Ma'n H. Zawati, Yann Joly and Bartha Knoppers
McGill University - Centre of Genomics and Policy, McGill University - Centre for Genomics and Policy and McGill University
Downloads 18 (580,307)

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30.

The Role of Whole Genome and Whole Exome Sequencing in Preventive Genomic Sequencing Programs

The American Journal of Bioethics, 15:7, 22-24
Number of pages: 4 Posted: 07 Aug 2015
Gabrielle Bertier, Ma'n H. Zawati and Yann Joly
McGill University, McGill University - Centre of Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 17 (586,713)

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Role, Whole Exome Sequencing, Whole Genome Sequencing, Preventive Genomic Sequencing, Programs, Population-based, Technical, Public health, Legal and Ethical considerations, Risks, Benefits, Genetic Discrimination

31.

Point-of-Care Genetic Tests for Infectious Disease: Legal Considerations

Current Pharmacogenomics and Personalized Medicine, 2014, 12, 43-50
Number of pages: 8 Posted: 15 Aug 2015
Adrian Thorogood, Ma'n H. Zawati and Bartha Knoppers
McGill University - Centre for Genomics and Policy, McGill University - Centre of Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 14 (606,611)

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Hospital Acquired Infection, genomics, precision medicine, point-of-care, ethics, law

32.

Special Issue - From Biobanks to the Clinic

Applied & Translational Genomics, Volume 3, Issue 2
Number of pages: 2 Posted: 01 Aug 2015 Last Revised: 03 Sep 2015
Bartha Knoppers, Ma'n H. Zawati and Eliza Cohen
McGill University - Centre for Genomics and Policy, McGill University - Centre of Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 14 (606,611)

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Biobanks, Research, Clinic, Consent, Special Issue

33.

The App Will See You Now: Mobile Health, Diagnosis, and the Practice of Medicine in Quebec and Ontario

Journal of Law and the Biosciences, Forthcoming
Number of pages: 32 Posted: 03 Apr 2018
Michael Lang and Ma'n H. Zawati
McGill University - Faculty of Law and McGill University - Centre of Genomics and Policy
Downloads 13 (613,419)

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App, Mobile Health, Diagnosis, Practice of Medicine, Quebec, Ontario

34.

Whole Genome Sequencing as a Genetic Test for Autism Spectrum Disorder: From Bench to Bedside and then Back Again

Journal of the Canadian Academy of Child and Adolescent Psychiatry = Journal de l'Academie canadienne de psychiatrie de l'enfant et de l'adolescent 25(2):116-121, Spring 2016
Number of pages: 6 Posted: 21 Jul 2016
Michael Szego and Ma'n H. Zawati
University of Toronto, Centre for Bioethics and McGill University - Centre of Genomics and Policy
Downloads 13 (613,419)

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autism spectrum disorder, return of results, whole genome sequencing, database, research ethics

35.

Funding Considerations for the Disclosure of Genetic Incidental Findings in Biobank Research

Clinical Genetics, 397, 2013
Number of pages: 31 Posted: 07 Aug 2015
McGill University, McGill University, McGill University - Centre of Genomics and Policy, McGill University, University of Montreal and University of Montreal - Molecular Genetics of Stem Cells Laboratory
Downloads 13 (613,419)

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Biobank, Disclosure, Ethics, Incidental Findings, Research

36.

Reporting Results from Whole-Genome and Whole-Exome Sequencing in Clinical Practice: A Proposal for Canada?

Journal of Medical Genetics, September 2013
Number of pages: 4 Posted: 24 Jul 2015 Last Revised: 31 Jul 2015
McGill University - Centre of Genomics and Policy, McGill University - Centre for Genomics and Policy, McGill University - Centre of Genomics and Policy, McGill University - Centre for Genomics and Policy, University of Ottawa, McGill University and McGill University - Centre for Genomics and Policy
Downloads 13 (613,419)

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Canadian Healthcare System, Practice Guidelines, Professional Responsibility, Return of Results, Whole-Genome Sequencing

37.

Rapport Final - Le médecin face aux nouvelles technologies dans le domaine médical: nouvelles responsabilités? (Final Report – Physicians and Emerging Technologies in the Medical Field: New Responsibilities?)

Final Report, Canadian Bioethics Society's Pre-conference Expert Forum, 2012
Number of pages: 39 Posted: 01 Aug 2017
McGill University - Centre of Genomics and Policy, McGill University - Centre for Genomics and Policy, Ministry of Health, University of Montreal - Centre Hospitalier Universitaire (CHU) Sainte-Justine, McGill University - Centre for Genomics and Policy, Université Laval, University of Montreal - Centre Hospitalier Universitaire (CHU) Sainte-Justine, McGill University - Montreal General Hospital, Independent, University of Montreal, University of Montreal - Centre Hospitalier Universitaire (CHU) Sainte-Justine, McGill University - Centre for Genomics and Policy, McGill University, McGill University - Centre of Genomics and Policy, University of Montreal - Centre Hospitalier Universitaire (CHU) Sainte-Justine, McGill University - Centre for Genomics and Policy, Independent, University of Montreal, McGill University - Montreal General Hospital, University of Montreal, Quebec Region Health and Social Services Agency, University of Montreal, University of Montreal - Centre Hospitalier Universitaire (CHU) Sainte-Justine, University of Montreal and University of Montreal
Downloads 12 (620,487)

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Séquençage, Séquençage du génome entier, Tests génétiques offerts directement aux consommateurs, Mutations, Somatique, Validité clinique, Utilité clinique, Médecin, Recherche, Nouvelles technologies

38.

An Ethics Safe Harbor for International Genomics Research?

Genome Medicine, 5:99, 2013
Number of pages: 11 Posted: 07 Aug 2015
Edward Dove, Bartha Knoppers and Ma'n H. Zawati
University of Edinburgh - School of Law, McGill University and McGill University - Centre of Genomics and Policy
Downloads 12 (620,487)

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Ethics Safe Harbor, International Genomic Research, Genomics, Global, Improvements in human health

39.

Biobanques destinées à la recherche: introduction et défis majeurs (Research Biobanks: Introduction and Major Challenges)

6e edition, Journées d’étude des comités d’éthique de la recherche et de leurs partenaires (Québec, La Direction des communications du ministère de la Santé et des Services sociaux, 2013), 20-25.
Number of pages: 126 Posted: 01 Aug 2017
Ma'n H. Zawati
McGill University - Centre of Genomics and Policy
Downloads 10 (634,291)

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Biobanques destinées à la recherche, Recherche, Biobanques de matériaux résiduels, Santé publique, Biobanques longitudinales

40.

Towards an Ethics Safe Harbor for Global Biomedical Research

Journal of Law and the Biosciences, 3, February 2014
Number of pages: 49 Posted: 07 Aug 2015
Edward Dove, Bartha Knoppers and Ma'n H. Zawati
University of Edinburgh - School of Law, McGill University and McGill University - Centre of Genomics and Policy
Downloads 10 (634,291)

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Biomedical research, Ethics, Genomics, Governance, Harmonization, Safe Harbor

Consent Processes for Mobile App Mediated Research: Systematic Review

Moore, S., Anne-Marie Tassé, Adrian Thorogood, Ingrid Winship Ma'n Zawati, Megan Doerr. "Consent Processes for Mobile App Mediated Research: Systematic Review" (2017) JMIR mHealth and uHealth, 5(8): e126.
Number of pages: 12 Posted: 19 Jan 2018 Last Revised: 03 Apr 2018
Sage Bionetworks, Public Population Project in Genomics and Society, McGill University - Centre for Genomics and Policy, University of Melbourne, McGill University - Centre of Genomics and Policy and Sage Bionetworks
Downloads 9 (668,130)

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Consent Processes for Mobile App Mediated Research: Systematic Review

JMIR Mhealth Uhealth, 2017,5(8)
Posted: 29 Mar 2018
Sage Bionetworks, McGill University - Centre for Genomics and Policy, McGill University - Centre for Genomics and Policy, University of Melbourne, McGill University - Centre of Genomics and Policy and Sage Bionetworks

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mHealth, Informed Consent, Smartphone, Cell Phone, Mobile Applications, Privacy, Research Ethics

42.

Biobank Donors and the Concept of Benefit: Time for Reciprocity

Zawati, Ma’N. H., and Michael Lang. "Biobank donors and the concept of benefit: time for reciprocity" (2017) Journal of Law and the Biosciences, 4(2): 371-376
Number of pages: 6 Posted: 19 Jan 2018
Ma'n H. Zawati and Michael Lang
McGill University - Centre of Genomics and Policy and McGill University - Faculty of Law
Downloads 8 (648,623)

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biobank, donors, reciprocity

43.

Can I Be Sued for That? Liability Risk and the Disclosure of Clinically Significant Genetic Research Findings

Genome Research, 719, March 2014
Number of pages: 6 Posted: 15 Aug 2015
Baylor University, McGill University, McGill University - Centre of Genomics and Policy and Vanderbilt University
Downloads 8 (648,623)

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Liability Risk, Disclosure, Clinically Significant, Genetic Research Findings, Sued, Genomic Researchers

44.

Population Biobanks and the Principle of Reciprocity

Biobanking of Human Biospecimen, 2017, ISBN 978-3-319-55120-3
Number of pages: 11 Posted: 21 Jun 2017 Last Revised: 03 Apr 2018
Ma'n H. Zawati and Bartha Knoppers
McGill University - Centre of Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 7 (655,771)

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population biobanks and the principle of reciprocity

45.

A RaDiCAL Gene Hunt

Journal of Taibah University Medical Sciences, Volume 12, Issue 3, Pages 194–198, June 2017
Number of pages: 5 Posted: 19 Jun 2017
Michaela Pupavac, Ma'n H. Zawati and David Rosenblatt
McGill University - Department of Human Genetics, McGill University - Centre of Genomics and Policy and McGill University
Downloads 7 (655,771)

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Genes; Mendelian Diseases; Proband; RaDiCAL; Right Not to Know

46.

De l'éthique et des avocats: les comités d'éthique dans le milieu hospitalier (Of Ethics and Lawyers: Ethics Committees in Hospital Settings)

Éthique, profession juridique et société - Collection de droit 2011-2012, volume hors série, École du Barreau (Cowansville: Éditions Yvon Blais, 2011)
Number of pages: 8 Posted: 01 Aug 2017
Bartha Knoppers and Ma'n H. Zawati
McGill University - Centre for Genomics and Policy and McGill University - Centre of Genomics and Policy
Downloads 5 (670,313)

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Comités d'éthique de la recherche, Avocats, Recherche, Comités d'éthique clinique

47.

Return of Genetic Testing Results in the Era of Whole-Genome Sequencing

Nature Reviews Genetics 16, 553-559 (September 2015)
Number of pages: 7 Posted: 22 Sep 2016 Last Revised: 03 Apr 2018
Bartha Knoppers, Ma'n H. Zawati and Karine Sénécal
McGill University - Centre for Genomics and Policy, McGill University - Centre of Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 5 (670,313)

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Genetic Services, Genetic Testing

48.

The Author Who Wasn't There? Fairness and Attribution in Publications Following Access to Population Biobanks

PLoS ONE 13(3), March 2018, DOI/10.1371/journal.pone.0194997
Number of pages: 13 Posted: 03 Apr 2018
Erika Kleiderman, Amy Pack, Pascal Borry and Ma'n H. Zawati
McGill University - Centre for Genomics and Policy, McGill University - Centre for Genomics and Policy, KU Leuven and McGill University - Centre of Genomics and Policy
Downloads 3 (686,093)

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Author, Fairness, Attribution, Access to Population Biobanks

49.

Les biobanques et le retour des résultats de recherche: quo vadis? (Biobanks and the Return of Research Results: Quo Vadis?)

Actions pour la santé et la recherché médicale en faveur des personnes vulnérables et des pays émergents - IVe Forum des jeunes chercheurs (Les Études Hospitalières, 2012), 283-294
Number of pages: 8 Posted: 01 Aug 2017
Ma'n H. Zawati and Amelie Rioux
McGill University - Centre of Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 3 (686,093)

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Biobanques, Communication de résultats, Résultats de recherche, Les pratiques actuelles, Les résultats généraux, Résultats individuels de recherche

50.

Énoncé de principes du RMGA sur la communication des résultats de recherche et des découvertes fortuites (RMGA Statement of Principles on the Return of Research Results and Incidental Findings)

RMGA, Mars 2013
Number of pages: 41 Posted: 20 Jun 2017
McGill University - Centre for Genomics and Policy, McGill University - Centre for Genomics and Policy, IWK Health Centre, McGill University - Centre for Genomics and Policy, McGill University - Centre of Genomics and Policy, McGill University - Centre for Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 3 (686,093)

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Biobanque, Utilité Clinique, Recherche, RMGA, Communication des résultats de recherche, Découvertes fortuites, Matériel biologique humain, Validité scientifique

51.

The Clinical Application of Genome-Wide Sequencing for Monogenic Diseases in Canada: Position Statement of the Canadian College of Medical Geneticists

J Med Genet, May 2015;52:431-437
Number of pages: 8 Posted: 18 Sep 2016
University of Ottawa, Children's Hospital of Eastern Ontario Research Institute (CHEO), University of British Columbia (UBC), University of Calgary, University of Toronto, Memorial University of Newfoundland (MNU), University of British Columbia (UBC), Children's Hospital of Eastern Ontario Research Institute (CHEO), University of Alberta, McGill University, University of Montreal, McGill University - Department of Human Genetics, University of Toronto, University of Toronto, University of Montreal, University of British Columbia (UBC), Children's Hospital of Eastern Ontario Research Institute (CHEO), Western University, Dalhousie University, University Health Network, University of Alberta, University of British Columbia (UBC), McGill University - Centre of Genomics and Policy, University of Calgary and Children's Hospital of Eastern Ontario Research Institute (CHEO)
Downloads 3 (686,093)

Abstract:

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52.

Streamlining Review of Research Involving Humans: Canadian Models

J Med Genet 2015;52:566-569
Number of pages: 5 Posted: 22 Sep 2016 Last Revised: 03 Apr 2018
McGill University - Centre of Genomics and Policy, Independent, McGill University - Centre for Genomics and Policy and Independent
Downloads 2 (696,141)

Abstract:

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53.

The Provision of Genetic Testing and Related Services in Quebec, Canada

Frontiers in Genetics, 2020
Posted: 23 Jun 2020
affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, Centre of Genomics and Policy and McGill University - Centre of Genomics and Policy

Abstract:

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54.

International mHealth Research: Old Tools and New Challenges

Journal of Law and Medical Ethics, 2020
Posted: 23 Jun 2020
Michael Lang, Ma'n H. Zawati and Bartha Maria Knoppers
McGill University - Faculty of Law, McGill University - Centre of Genomics and Policy and Centre of Genomics and Policy

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55.

Country Reports

Posted: 24 Feb 2020
McGill University - Centre of Genomics and Policy, University of Tasmania - Faculty of Law, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, McGill University - Centre for Genomics and Policy, affiliation not provided to SSRN, University of Copenhagen - Faculty of Law, affiliation not provided to SSRN, affiliation not provided to SSRN, Inserm, UMR 1027, Leibniz Universität Hannover, affiliation not provided to SSRN, affiliation not provided to SSRN, Research Information System for Developing Countries (RIS), University of Virginia School of Law, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, Dpt. of Human Genetics, University of Miami Miller School of Medicine, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, Ewha Womans University, affiliation not provided to SSRN, Lund University - Faculty of Law, affiliation not provided to SSRN, affiliation not provided to SSRN, University of Neuchatel, Independent, affiliation not provided to SSRN, Centre for Health, Bioethics & Human Rights, University of Oxford - Centre for Health, Law and Emerging Technologies, Te Piringa Faculty of Law, affiliation not provided to SSRN, affiliation not provided to SSRN and affiliation not provided to SSRN

Abstract:

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56.

Introduction to the Country Reports

Journal of Law, Medicine and Ethics, 2019
Posted: 24 Feb 2020
Ma'n H. Zawati
McGill University - Centre of Genomics and Policy

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57.

How to Integrate Personalized Medicine Into Prevention? Recommendations From the Personalized pREvention of Chronic Diseases (PRECeDI) Consortium

Personalzed PREvention of Chronic Diseases (PRECeDI), 2018
Posted: 17 Dec 2019
affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, McGill University - Faculty of Law, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN, affiliation not provided to SSRN and McGill University - Centre of Genomics and Policy

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58.

A Legal Duty of Genetic Recontact in Canada

Health Law in Canada, 2019
Posted: 17 Dec 2019
McGill University - Centre for Genomics and Policy, affiliation not provided to SSRN, McGill University - Centre of Genomics and Policy and Centre of Genomics and Policy

Abstract:

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legal, recontact, genetics

59.

Personalised Medicine – Introduction to the Technology

Lexis Nexis, LexisPSL practice note
Posted: 21 Aug 2019
Daniel Bouthillier, Ma'n H. Zawati and Yann Joly
Independent, McGill University - Centre of Genomics and Policy and McGill University - Centre for Genomics and Policy

Abstract:

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60.

Reciprocity and the Quest for Meaningful Disclosure

The American Journal of Bioethics, Forthcoming
Posted: 01 Jun 2019
Ma'n H. Zawati and Bartha Maria Knoppers
McGill University - Centre of Genomics and Policy and Centre of Genomics and Policy

Abstract:

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reciprocity, disclosure

61.

Letter: Relearning the 3 R’s? Reinterpretation, Recontact, and Return of Genetic Variants

Genetics in Medicine (2019)
Posted: 13 May 2019
Bartha Knoppers, Adrian Thorogood and Ma'n H. Zawati
McGill University, McGill University - Centre for Genomics and Policy and McGill University - Centre of Genomics and Policy

Abstract:

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relearning, reinterpretation, recontact, return, genetic variants

62.

The Canadian Partnership for Tomorrow Project: A Pan-Canadian Platform for Research on Chronic Disease Prevention

Canadian Medical Association Journal (CMAJ), 2018
Posted: 31 Jul 2018 Last Revised: 25 Nov 2018
University of British Columbia (UBC) - School of Population and Public Health, Ontario Institute for Cancer Research (OICR), University of Montreal, CHUM Research Center, McGill University - Department of Medicine, Clinical Public Health Division, Population Cancer Research Program, University of Montreal, Centre of Genomics and Policy, British Columbia Cancer Research Centre, BC Generations Project, Public Health Ontario, University of Montreal, University of Montreal, University of Adelaide, Department of Medicine, Government of the United States of America - Intramural Research Program (IRP), University of Alberta, Vice President, Population Oncology, Atlantic PATH, Alberta Health Services, McGill University - Centre of Genomics and Policy and The Canadian Partnership for Tomorrow Project (CPTP)

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pan-canadian, research, chronic disease, prevention

63.

There Will Be Sharing: Population Biobanks, the Duty to Inform and the Limitations of the Individualistic Conception of Autonomy

(2014) 21 Health Law Review, 97
Posted: 18 Jul 2015 Last Revised: 14 Dec 2018
Ma'n H. Zawati
McGill University - Centre of Genomics and Policy

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Population Biobanks, Individual Autonomy, Broad Consent, Law, Ethics, Return of Results

Other Papers (2)

Total Downloads: 52
1.

The Role of a Bioresource Research Impact Factor as an Incentive to Share Human Bioresources

Nature Genetics, Vol. 43, No. 6, p. 503, June 2011, DOI: 10.1038/ng.831
Number of pages: 2 Posted: 21 Jan 2013
University of Angers - French Institute of Health and Medical Research (INSERM), University of Leicester, University of Toulouse 3, Paul Sabatier University, University of Angers - French Institute of Health and Medical Research (INSERM), Center for Genomic Regulation, University of Amsterdam, The University of Sydney, University of Angers - French Institute of Health and Medical Research (INSERM), University of Leicester, McGill University - Centre for Genomics and Policy, University of Angers - French Institute of Health and Medical Research (INSERM), Giannina Gaslini Institute, McGill University - Centre of Genomics and Policy and Consortia BRIF workshop group
Downloads 52

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2.

Will an App a Day Keep the Doctor Away?

Brainstorm Magazine, 2019
Posted: 20 Aug 2019
Ma'n H. Zawati
McGill University - Centre of Genomics and Policy

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