Adrian Thorogood

Universite du Luxembourg - Luxembourg Centre for Systems Biomedicine

2 Avenue de l'Université

Esch-sur-Alzette

Luxembourg

  • Universite du Luxembourg - Luxembourg Centre for Systems Biomedicine

SCHOLARLY PAPERS

12

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CROSSREF CITATIONS

9

Scholarly Papers (12)

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1.

Secondary use of Personal Health Data: when is it 'Further Processing' under the GDPR, and What Are the Implications for Data Controllers?

Number of pages: 20 Posted: 15 Apr 2022
Regina Becker, Davit Chokoshvili, Giovanni Comandé, Edward Dove, Alison Hall, Colin Mitchell, Fruzsina Molnar-Gabor, Pilar Nicolás, Sini Tervo and Adrian Thorogood
Luxembourg National Data Service (PNED G.I.E.), Universite du Luxembourg, LIDER-Lab, Scuola Superiore Sant'Anna, National University of Ireland, Maynooth (NUI Maynooth) - Faculty of Law, PHG Foundation - University of Cambridge, University of Cambridge - PHG Foundation, Heidelberg Academy of Sciences and Humanities, University of the Basque Country - Faculty of Law, Ministry of Social Affairs and Health, Finland and Universite du Luxembourg - Luxembourg Centre for Systems Biomedicine
Downloads 426 (133,045)

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GDPR, further processing, secondary use, personal data, biomedical research, scientific research

2.

COVID-19 Research: Navigating the European General Data Protection Regulation

Number of pages: 14 Posted: 05 May 2020
Regina Becker, Adrian Thorogood, Johan Ordish and Michael J.S. Beauvais
Luxembourg National Data Service (PNED G.I.E.), Universite du Luxembourg - Luxembourg Centre for Systems Biomedicine, PHG Foundation - University of Cambridge and McGill University - Centre of Genomics and Policy
Downloads 342 (170,071)

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COVID-19; GDPR; health research; pandemic; data privacy; data protection; regulation

3.

The Physician Who Knew Too Much: A Comment on Watters v White

Health Law Journal, Annual, 2014, Vol. 21, p1. 27 p.
Number of pages: 27 Posted: 01 Aug 2015 Last Revised: 07 Aug 2015
Ma'n H. Zawati and Adrian Thorogood
McGill University - Centre of Genomics and Policy and Universite du Luxembourg - Luxembourg Centre for Systems Biomedicine
Downloads 342 (170,597)

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Medical Genetics, Physician, Genetic Information, Watters v White, Court judgment, Informing the patient, Communicating genetic information, Sex-linked Disorder

4.

Applying GDPR Roles and Responsibilities to Scientific Data Sharing

Number of pages: 25 Posted: 27 May 2021
Regina Becker, Adrian Thorogood, Jasper Bovenberg, Colin Mitchell and Alison Hall
Luxembourg National Data Service (PNED G.I.E.), Universite du Luxembourg - Luxembourg Centre for Systems Biomedicine, Legal Pathways Life Sciences Law, University of Cambridge - PHG Foundation and PHG Foundation - University of Cambridge
Downloads 319 (183,208)
Citation 2

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accountability, data sharing, data protection, health research, joint controller, scientific research

5.

Technical Standards For Bioinformatics and Medical Informatics

Bioinformatics, Medical Informatics and the Law 153-179 (Jorge L. Contreras, A. James Cuticchia & Gregory Kirsch, eds., Edward Elgar: 2022), University of Utah College of Law Research Paper No. 387
Number of pages: 27 Posted: 03 Sep 2020 Last Revised: 23 Aug 2024
Jorge L. Contreras and Adrian Thorogood
University of Utah - S.J. Quinney College of Law and Universite du Luxembourg - Luxembourg Centre for Systems Biomedicine
Downloads 115 (458,852)
Citation 1

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standards, bioinformatics, informatics, EHR, patent, FRAND, ontology

6.

Purpose Definition as a Crucial Step for Determining the Legal Basis Under the GDPR in Research

Number of pages: 47 Posted: 21 Jun 2023
Regina Becker, Davit Chokoshvili, Adrian Thorogood, Edward Dove, Fruzsina Molnar-Gabor, Alexandra Ziaka, Olga Tzortzatou-Nanopoulou and Giovanni Comandé
Luxembourg National Data Service (PNED G.I.E.), Universite du Luxembourg, Universite du Luxembourg - Luxembourg Centre for Systems Biomedicine, National University of Ireland, Maynooth (NUI Maynooth) - Faculty of Law, Heidelberg Academy of Sciences and Humanities, MPlegal law firm , Academy of Athens - Biomedical Research Foundation and LIDER-Lab, Scuola Superiore Sant'Anna
Downloads 105 (490,318)

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data protection, GDPR, lawfulness, legal basis, purpose specification, special categories of personal data

7.

Rapport Final - Le médecin face aux nouvelles technologies dans le domaine médical: nouvelles responsabilités? (Final Report – Physicians and Emerging Technologies in the Medical Field: New Responsibilities?)

Final Report, Canadian Bioethics Society's Pre-conference Expert Forum, 2012
Number of pages: 39 Posted: 01 Aug 2017
Adrian Thorogood, Amelie Rioux, Claudine Fecteau, Daniel Sinnett, Emily Kirby, Gale Stewart, Geneviève Cardinal, Guillaume Sillon, Gurit Lotan, Hugues Létourneau, Jean-Marie Therrien, Karine Sénécal, Linda Furlini, Ma'n H. Zawati, Marie-José Clermont, Martin Hétu, Michèle Marchand, Nadine Dumas, Nathalie Bolduc, Pavel Hamet, Sabrina Fortin, Shant Der Sarkissian, Sonia Nizard, Stéphanie Côté and Zaki El Haffaf
Universite du Luxembourg - Luxembourg Centre for Systems Biomedicine, McGill University - Centre for Genomics and Policy, Ministry of Health, University of Montreal - Centre Hospitalier Universitaire (CHU) Sainte-Justine, McGill University - Centre for Genomics and Policy, Université Laval, University of Montreal - Centre Hospitalier Universitaire (CHU) Sainte-Justine, McGill University - Montreal General Hospital, Independent, University of Montreal, University of Montreal - Centre Hospitalier Universitaire (CHU) Sainte-Justine, McGill University - Centre for Genomics and Policy, McGill University, McGill University - Centre of Genomics and Policy, University of Montreal - Centre Hospitalier Universitaire (CHU) Sainte-Justine, McGill University - Centre for Genomics and Policy, Independent, University of Montreal, McGill University - Montreal General Hospital, University of Montreal, Quebec Region Health and Social Services Agency, University of Montreal, University of Montreal - Centre Hospitalier Universitaire (CHU) Sainte-Justine, University of Montreal and University of Montreal
Downloads 66 (647,496)

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Séquençage, Séquençage du génome entier, Tests génétiques offerts directement aux consommateurs, Mutations, Somatique, Validité clinique, Utilité clinique, Médecin, Recherche, Nouvelles technologies

8.

Population Biobanking and International Collaboration

Pathobiology, Vol. 81, No. 5-6, 2015
Number of pages: 10 Posted: 07 Aug 2015
Ma'n H. Zawati, Bartha Knoppers and Adrian Thorogood
McGill University - Centre of Genomics and Policy, McGill University and Universite du Luxembourg - Luxembourg Centre for Systems Biomedicine
Downloads 60 (678,806)

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Biobanking, Population Biobanking, Law, Ethics, Harmonization, Genetic Research

9.

International Coordination of Research Ethics Review: An Adequacy Model

Thorogood, Adrian, and Michael J. S. Beauvais. “International Coordination of Research Ethics Review: An Adequacy Model.” Philosophies 6, no. 4 (December 2021): 93. https://doi.org/10.3390/philosophies6040093.
Number of pages: 19 Posted: 01 Dec 2021 Last Revised: 20 Dec 2021
Adrian Thorogood and Michael J.S. Beauvais
Universite du Luxembourg - Luxembourg Centre for Systems Biomedicine and McGill University - Centre of Genomics and Policy
Downloads 53 (718,326)
Citation 1

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research ethics, direct-to-participant, international collaboration, genomics, research ethics committee, law

10.

Secondary Use of Personal Health Data: When Is It 'Further Processing' Under the GDPR, and What Are the Implications for Data Controllers?

European Journal of Health Law, 01 August 2023
Number of pages: 29 Posted: 08 Apr 2022 Last Revised: 07 Feb 2023
Regina Becker, Davit Chokoshvili, Giovanni Comandé, Edward Dove, Alison Hall, Colin Mitchell, Fruzsina Molnar-Gabor, Pilar Nicolás, Sini Tervo and Adrian Thorogood
Luxembourg National Data Service (PNED G.I.E.), Universite du Luxembourg, LIDER-Lab, Scuola Superiore Sant'Anna, National University of Ireland, Maynooth (NUI Maynooth) - Faculty of Law, PHG Foundation - University of Cambridge, University of Cambridge - PHG Foundation, Heidelberg Academy of Sciences and Humanities, University of the Basque Country - Faculty of Law, Ministry of Social Affairs and Health, Finland and Universite du Luxembourg - Luxembourg Centre for Systems Biomedicine
Downloads 51 (730,781)

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GDPR, further processing, secondary use, personal data, biomedical research, scientific research

11.

Reporting Results from Whole-Genome and Whole-Exome Sequencing in Clinical Practice: A Proposal for Canada?

Journal of Medical Genetics, September 2013
Number of pages: 4 Posted: 24 Jul 2015 Last Revised: 31 Jul 2015
Ma'n H. Zawati, David Parry, Adrian Thorogood, Minh Thu Nguyen, Kym Boycott, David Rosenblatt and Bartha Knoppers
McGill University - Centre of Genomics and Policy, McGill University - Centre for Genomics and Policy, Universite du Luxembourg - Luxembourg Centre for Systems Biomedicine, McGill University - Centre for Genomics and Policy, University of Ottawa, McGill University and McGill University - Centre for Genomics and Policy
Downloads 46 (762,890)

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Canadian Healthcare System, Practice Guidelines, Professional Responsibility, Return of Results, Whole-Genome Sequencing

12.

Parental Access to Children’s Raw Genomic Data in Canada: Legal Rights and Professional Responsibility

Frontiers in Genetics, 2021
Number of pages: 17 Posted: 18 Aug 2021
Michael J.S. Beauvais, Adrian Thorogood, Michael Szego, Karine Sénécal, Ma'n H. Zawati and Bartha Maria Knoppers
McGill University - Centre of Genomics and Policy, Universite du Luxembourg - Luxembourg Centre for Systems Biomedicine, University of Toronto, Centre for Bioethics, McGill University - Centre for Genomics and Policy, McGill University - Centre of Genomics and Policy and Centre of Genomics and Policy
Downloads 32 (869,364)

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Whole Genome Sequencing, Personal Genomics, Pediatrics, Privacy, Individual Access, Ethics, Consent