Marta De Santis

Istituto Superiore di Sanità

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Patient Empowerment of People Living with Rare Diseases. Its Contribution to Sustainable and Resilient Healthcare Systems

Annali dell'Istituto Superiore di Sanità 2019
Number of pages: 17 Posted: 28 Dec 2022
Scuola Superiore Sant'Anna, Istituto Superiore di Sanità, Edelman Brussels, EURORDIS - Rare Diseases Europe and EURORDIS - Rare Diseases Europe
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Abstract:

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patient empowerment; patient engagement; healthcare systems; sustainability; rare diseases; European Union; decision-making; health literacy