Ellen Wright Clayton

Vanderbilt University - Law School

Rosalind E. Franklin Professor of Genetics and Health Policy

131 21st Avenue South

Nashville, TN 37203-1181

United States

VANDERBILT UNIVERSITY Medical Center

Center for Biomedical Ethics and Society

2525 West End Ave., Suite 400

Nashville, TN 37203

United States

SCHOLARLY PAPERS

7

DOWNLOADS

593

SSRN CITATIONS
Rank 22,673

SSRN RANKINGS

Top 22,673

in Total Papers Citations

3

CROSSREF CITATIONS

35

Scholarly Papers (7)

1.

Ethical and Practical Guidelines for Reporting Genetic Research Results to Study Participants: Updated Guidelines from a National Heart, Lung, and Blood Institute Working Group

Circulation: Cardiovascular Genetics: Journal of the Heart Associations, Vol. 3, No. 6, pp. 574-580, 2010
Number of pages: 8 Posted: 15 Jan 2011 Last Revised: 29 Jul 2015
Government of the United States of America - National Heart, Lung and Blood Institute, Baylor College of Medicine, Cleveland Clinic - Department of Bioethics, Government of the United States of America - National Heart, Lung and Blood Institute, Duke University - Institute for Genome Sciences & Policy, National Institutes of Health (NIH) - National Human Genome Research Institute, National Institutes of Health (NIH) - National Human Genome Research Institute, University of Washington - Department of Bioethics & Humanities, University of California, San Francisco (UCSF) - Division of Pulmonary, Critical Care, Allergy and Sleep Medicine, Harvard University - Harvard Medical School, Vanderbilt University - Law School, University of Minnesota - Twin Cities - Laboratory Medicine and Pathology, Dalhousie University - Department of Pediatrics, Patient Advocate, University of Washington - Department of Bioethics & Humanities, Broad Institute of MIT and Harvard University, Southwest Tribal Epidemiology Center, Johns Hopkins University - Department of Medicine/Cardiology, University of Washington - Division of Medical Genetics, University of Illinois Chicago - College of Medicine, HealthFutures, LLC, Framingham Heart Study - National Heart, Lung, and Blood Institute, Partners HealthCare, National Institutes of Health (NIH) - National Human Genome Research Institute, National Institutes of Health (NIH) - National Cancer Institute, University of Maryland - School of Medicine, Charles B. Wang Community Health Center, Massachusetts General Hospital - Genetics Unit, University of Minnesota Law School and Wake Forest University - School of Medicine
Downloads 174 (186,962)
Citation 1

Abstract:

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Genetics, Genomics, Research Genetics, Human Subjects Research, Research Ethics, Bioethics, Return of Results, Incidental Findings, Risk Prediction, NIH, NHLBI

2.

The Ethical Health Lawyer: An Empirical Assessment of Moral Decision Making

Journal of Law, Medicine and Ethics, Vol. 37, p. 461, 2009
Number of pages: 35 Posted: 11 Dec 2008 Last Revised: 13 May 2014
Indiana University - Kelley School of Business - Department of Business Law, Vanderbilt University Medical Center, Vanderbilt University - Owen Graduate School of Management, Vanderbilt University - Law School and Vanderbilt Institute for Energy and Environment
Downloads 153 (208,608)

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legal ethics, health law, professionalism, morals, moral discourse, religion

3.

Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations

Journal of Law, Medicine and Ethics, Vol. 36, No. 2, pp. 219-248, 2008
Number of pages: 30 Posted: 08 Dec 2010 Last Revised: 06 Feb 2014
University of Minnesota Law School, University of Minnesota - Twin Cities, Harvard University - Department of Pediatrics, Johns Hopkins Berman Institute of Bioethics, Stanford University - Stanford Center for Biomedical Ethics (SCBE), Vanderbilt University - Law School, Mayo Clinic - College of Medicine, University of Minnesota - Twin Cities, University of Minnesota - Twin Cities, Government of the United States of America - National Institutes of Health (NIH), University of British Columbia (UBC), Pennsylvania State University, University of Minnesota - Twin Cities, University of California, San Francisco (UCSF), University of Minnesota - Twin Cities, St. Luke's Hospital, Loyola University Chicago School of Law, University of Pittsburgh, Genetic Alliance, University of Minnesota - Twin Cities and University of Washington
Downloads 111 (267,026)
Citation 2

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incidental findings, human subjects research, bioethics, health law

4.

The Law of Genetic Privacy: Applications, Implications, and Limitations

Journal of Law and the Biosciences, 1–36, 2019
Number of pages: 36 Posted: 17 Jun 2020
Ellen Wright Clayton, Barbara J. Evans, James Hazel and Mark A. Rothstein
Vanderbilt University - Law School, University of Florida Levin College of Law, Center for Genetic Privacy & Identity in Community Settings, Vanderbilt University Medical Center and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 82 (325,142)

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DNA, genetics, genomics, GINA, HIPAA, privacy

5.

Recommendations for Returning Genomic Incidental Findings? We Need to Talk!

Genetics in Medicine, Vol. 15, DOI:10.1038/gim.2013.113
Number of pages: 6 Posted: 30 Aug 2013
University of Washington - Department of Bioethics & Humanities, Cincinnati Children's Hospital Medical Center, University of Washington - Department of Medical Genetics, University of Utah - Pediatric Administration, Vanderbilt University - Law School, University of North Carolina (UNC) at Chapel Hill, Children's Hospital Boston, University of Washington - Division of Medical Genetics, Office of Public Health Genomics, McGill University - Centre for Genomics and Policy, Oregon Health and Science University, University of Chicago - Department of Pediatrics, University of Louisville - Institute for Bioethics, Health Policy, and Law, Cincinnati Children's Hospital Medical Center, University of Michigan at Ann Arbor - Medical School, University of Washington, University of Minnesota Law School and Foundation for Genomics and Population Health
Downloads 43 (445,929)

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biobank, bioethics, biorepository, genetics, genomics, human subjects research, incidental findings, research ethics; return of results

6.

Can Clinical Genetics Laboratories be Sued for Medical Malpractice?

Alexandra L. Foulkes et al., Can Clinical Genetics Laboratories be Sued for Medical Malpractice? 29 Annals Health L. & Life Sci. 153 (2020).
Number of pages: 17 Posted: 18 Mar 2020
U.S. District Court Western District of Oklahoma, University of Houston Law Center, Columbia University - Center for Research on Ethical, Legal, and Social Implications of Psychiatric, Neurologic, and Behavioral Genetics, affiliation not provided to SSRN, Vanderbilt University - Law School, University of Florida Levin College of Law and Arizona State University - College of Law
Downloads 30 (504,610)

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Reclassification, Genetics, Bioethics, Biolaw, Fifty-State Survey, Medical Malpractice, Torts

7.

The Complex Relationship of Genetics, Groups, and Health: What it Means for Public Health

Journal of Law, Medicine & Ethics, Vol. 30, No. 2
Posted: 19 Sep 2002
Ellen Wright Clayton
Vanderbilt University - Law School

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Other Papers (1)

Total Downloads: 15
1.

Mandatory Extended Searches in All Genome Sequencing 'Incidental Findings,' Patient Autonomy, and Shared Decision Making

JAMA 310(4):367-8(2013)
Number of pages: 2 Posted: 30 Jul 2013
Lainie Friedman Ross, Mark A. Rothstein and Ellen Wright Clayton
University of Chicago - Department of Pediatrics, University of Louisville - Institute for Bioethics, Health Policy, and Law and Vanderbilt University - Law School
Downloads 15

Abstract:

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genetics, genome sequencing, incidental findings, informed consent, physician-patient, autonomy