Ellen Wright Clayton

Vanderbilt University - Law School

Rosalind E. Franklin Professor of Genetics and Health Policy

131 21st Avenue South

Nashville, TN 37203-1181

United States

SCHOLARLY PAPERS

6

DOWNLOADS

503

CITATIONS
Rank 30,690

SSRN RANKINGS

Top 30,690

in Total Papers Citations

7

Scholarly Papers (6)

1.

Ethical and Practical Guidelines for Reporting Genetic Research Results to Study Participants: Updated Guidelines from a National Heart, Lung, and Blood Institute Working Group

Circulation: Cardiovascular Genetics: Journal of the Heart Associations, Vol. 3, No. 6, pp. 574-580, 2010, Minnesota Legal Studies Research Paper No. 11-08, Vanderbilt Law and Economics Research Paper No. 11-10, Vanderbilt Public Law Research Paper No. 11-6
Number of pages: 8 Posted: 15 Jan 2011 Last Revised: 29 Jul 2015
Government of the United States of America - National Heart, Lung and Blood Institute, Baylor College of Medicine, Cleveland Clinic - Department of Bioethics, Government of the United States of America - National Heart, Lung and Blood Institute, Duke University - Institute for Genome Sciences & Policy, National Institutes of Health (NIH) - National Human Genome Research Institute, National Institutes of Health (NIH) - National Human Genome Research Institute, University of Washington - Department of Bioethics & Humanities, University of California, San Francisco (UCSF) - Division of Pulmonary, Critical Care, Allergy and Sleep Medicine, Harvard University - Harvard Medical School, Vanderbilt University - Law School, University of Minnesota - Twin Cities - Laboratory Medicine and Pathology, Dalhousie University - Department of Pediatrics, Patient Advocate, University of Washington - Department of Bioethics & Humanities, Broad Institute of MIT and Harvard University, Southwest Tribal Epidemiology Center, Johns Hopkins University - Department of Medicine/Cardiology, University of Washington - Division of Medical Genetics, University of Illinois Chicago - College of Medicine, HealthFutures, LLC, Framingham Heart Study - National Heart, Lung, and Blood Institute, Partners HealthCare, National Institutes of Health (NIH) - National Human Genome Research Institute, National Institutes of Health (NIH) - National Cancer Institute, University of Maryland - School of Medicine, Charles B. Wang Community Health Center, Massachusetts General Hospital - Genetics Unit, University of Minnesota Law School and Wake Forest University - School of Medicine
Downloads 172 (171,161)
Citation 10

Abstract:

Loading...

Genetics, Genomics, Research Genetics, Human Subjects Research, Research Ethics, Bioethics, Return of Results, Incidental Findings, Risk Prediction, NIH, NHLBI

2.

The Ethical Health Lawyer: An Empirical Assessment of Moral Decision Making

Journal of Law, Medicine and Ethics, Vol. 37, p. 461, 2009
Number of pages: 35 Posted: 11 Dec 2008 Last Revised: 13 May 2014
Indiana University - Kelley School of Business - Department of Business Law, Vanderbilt University Medical Center, Vanderbilt University - Owen Graduate School of Management, Vanderbilt University - Law School and Vanderbilt Institute for Energy and Environment
Downloads 153 (189,139)

Abstract:

Loading...

legal ethics, health law, professionalism, morals, moral discourse, religion

3.

Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations

Journal of Law, Medicine and Ethics, Vol. 36, No. 2, pp. 219-248, 2008
Number of pages: 30 Posted: 08 Dec 2010 Last Revised: 06 Feb 2014
University of Minnesota Law School, University of Minnesota - Twin Cities, Harvard University - Harvard Medical School, Johns Hopkins Berman Institute of Bioethics, Stanford University - Stanford Center for Biomedical Ethics (SCBE), Vanderbilt University - Law School, Mayo Clinic - College of Medicine, University of Minnesota - Twin Cities, University of Minnesota - Twin Cities, National Institutes of Health (NIH), University of British Columbia (UBC), Pennsylvania State University, University of Minnesota - Twin Cities, University of California, San Francisco (UCSF), University of Minnesota - Twin Cities, St. Luke's Hospital, Loyola University Chicago School of Law, University of Pittsburgh, Genetic Alliance, University of Minnesota - Twin Cities and University of Washington
Downloads 110 (244,141)
Citation 21

Abstract:

Loading...

incidental findings, human subjects research, bioethics, health law

4.

Recommendations for Returning Genomic Incidental Findings? We Need to Talk!

Genetics in Medicine, Vol. 15, DOI:10.1038/gim.2013.113
Number of pages: 6 Posted: 30 Aug 2013
University of Washington - Department of Bioethics & Humanities, Cincinnati Children's Hospital Medical Center, University of Washington - Department of Medical Genetics, University of Utah - Pediatric Administration, Vanderbilt University - Law School, University of North Carolina (UNC) at Chapel Hill, Children's Hospital Boston, University of Washington - Division of Medical Genetics, Office of Public Health Genomics, McGill University - Centre for Genomics and Policy, Oregon Health and Science University, University of Chicago - Department of Pediatrics, University of Louisville - Institute for Bioethics, Health Policy, and Law, Cincinnati Children's Hospital Medical Center, University of Michigan at Ann Arbor - Medical School, University of Washington, University of Minnesota Law School and Foundation for Genomics and Population Health
Downloads 43 (406,101)
Citation 6

Abstract:

Loading...

biobank, bioethics, biorepository, genetics, genomics, human subjects research, incidental findings, research ethics; return of results

5.

The Law of Genetic Privacy: Applications, Implications, and Limitations

Journal of Law and the Biosciences, 1–36, 2019
Number of pages: 36 Posted: 30 May 2019
Ellen Wright Clayton, Barbara J. Evans, James Hazel and Mark A. Rothstein
Vanderbilt University - Law School, University of Houston Law Center, Center for Genetic Privacy & Identity in Community Settings, Vanderbilt University Medical Center and University of Louisville - Institute for Bioethics, Health Policy, and Law
Downloads 25 (484,620)

Abstract:

Loading...

DNA, genetics, genomics, GINA, HIPAA, privacy

6.

The Complex Relationship of Genetics, Groups, and Health: What it Means for Public Health

Journal of Law, Medicine & Ethics, Vol. 30, No. 2
Posted: 19 Sep 2002
Ellen Wright Clayton
Vanderbilt University - Law School

Abstract:

Loading...

Other Papers (1)

Total Downloads: 15    Citations: 0
1.

Mandatory Extended Searches in All Genome Sequencing 'Incidental Findings,' Patient Autonomy, and Shared Decision Making

JAMA 310(4):367-8(2013)
Number of pages: 2 Posted: 30 Jul 2013
Lainie Friedman Ross, Mark A. Rothstein and Ellen Wright Clayton
University of Chicago - Department of Pediatrics, University of Louisville - Institute for Bioethics, Health Policy, and Law and Vanderbilt University - Law School
Downloads 15

Abstract:

Loading...

genetics, genome sequencing, incidental findings, informed consent, physician-patient, autonomy