Yann Joly

McGill University - Centre for Genomics and Policy

740 Dr. Penfield Avenue, Suite 5200

Montreal, Quebec H3A 0G1

Canada

SCHOLARLY PAPERS

14

DOWNLOADS

1,244

SSRN CITATIONS

0

CROSSREF CITATIONS

6

Scholarly Papers (14)

1.

Open Source Approaches in Biotechnology: Utopia Revisited

Maine Law Review, Vol. 59, No. 2, p. 386, 2007
Number of pages: 46 Posted: 09 Nov 2006
Yann Joly
McGill University - Centre for Genomics and Policy
Downloads 405 (102,645)

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Patents, Open Source, Biotechnology

2.

Normative Approaches to Address Genetic Discrimination: Placebo or Panacea?

Trends in Genetics, Forthcoming
Number of pages: 34 Posted: 08 Mar 2017 Last Revised: 12 Mar 2017
McGill University - Centre for Genomics and Policy, McGill University - Centre for Genomics and Policy, McGill University - Centre for Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 218 (195,429)

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genetic discrimination, comparative law, personalized medicine, bioethics, insurance, human rights

3.

Genetics and Life Insurance: A Comparative Analysis

(2004) II-2 GenEdit, 1-14
Number of pages: 15 Posted: 07 Aug 2013
University of Toronto - Faculty of Law, McGill University - Centre for Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 131 (300,066)

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4.

Anti-selection & Genetic Testing in Insurance: An Interdisciplinary Perspective

Journal of Law, Medicine, and Ethics, Forthcoming, U Iowa Legal Studies Research Paper No. 2021-41
Number of pages: 25 Posted: 23 Jun 2021 Last Revised: 29 Sep 2021
University of Iowa, Dublin City University - School of Law and Government, McGill University - Centre for Genomics and Policy, Heriot-Watt University - Department of Actuarial Mathematics and Statistics, University of Tasmania - Faculty of Law, University of Iowa and University of Iowa College of Law
Downloads 129 (303,622)

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Anti-Selection, Insurance, Genetic Testing, ELSI

5.

Confronting New Issues in Genetic Discrimination

Joly, Yann and Huerne, Katherine and Arych, Mykhailo and Bombard, Yvonne and De Paor, Aisling and Dove, Edward and Granados Moreno, Palmira and Ho, Calvin W.L. and Ho, Chih-Hsing and Van Hoyweghen, Ine and Kim, Hannah and Lebret, Audrey and Minssen, Timo and O Cathaoir, Katharina and Prince, Anya E.
Number of pages: 8 Posted: 22 Oct 2021 Last Revised: 26 Oct 2021
McGill University - Centre for Genomics and Policy, McGill University, National University of Food Technologies, University of Toronto - Institute of Health Policy, Management and Evaluation, University of Edinburgh - School of Law, McGill University - Centre for Genomics and Policy, Academia Sinica - Institute of European and American Studies, Life Sciences & Society Lab, Centre for Sociological Research, KU Leuven, Yonsei University, University of Copenhagen - Copenhagen University, University of Copenhagen - Centre for Advanced Studies in Biomedical Innovation Law (CeBIL) - Faculty of Law, University of Copenhagen - Faculty of Law, University of Iowa College of Law, University of Tasmania - Faculty of Law, University of Pretoria - Faculty of Law, McGill University - Department of Medicine, McGill University - Centre for Genomics and Policy, affiliation not provided to SSRN, McGill University - Centre of Genomics and Policy and McGill University - Centre of Genomics and Policy
Downloads 99 (364,883)

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genetic discrimination, ELSI, intersex, moratorium, insurance contract, genetic databases

6.

Legal and Ethical Challenges of International Direct-to-Participant Genomic Research: Conclusions and Recommendations

J.L. Med & Ethics, 47(4) 2019
Number of pages: 27 Posted: 22 Nov 2019 Last Revised: 19 Aug 2020
University of Louisville - Institute for Bioethics, Health Policy, and Law, McGill University - Centre of Genomics and Policy, Duke University - Institute for Genome Sciences & Policy, Vanderbilt University - Center for Biomedical Ethics and Society, University of Louisville - School of Medicine, Independent, Center for Genetic Privacy & Identity in Community Settings, Vanderbilt University Medical Center, McGill University - Centre for Genomics and Policy, McGill University - Faculty of Law, affiliation not provided to SSRN, Masssachusetts Institute of Technology and Harvard University - Broad Institute and McGill University - Centre for Genomics and Policy
Downloads 89 (389,926)

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direct-to-participant research, Genomic research, international law, international research, IRBs, Research ethics

7.

Incidental Findings in Data-Intensive Postgenomics Science and Legal Liability of Clinician-Researchers: Ready for Vaccinomics?

OMICS, Vol. 15, No. 9, pp. 615-624, September 2011, DOI: 10.1089/omi.2010.0137
Number of pages: 10 Posted: 17 Jan 2013
McGill University - Centre of Genomics and Policy, McGill University - Centre for Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 49 (528,975)

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8.

Reflections on the Cost of 'Low Cost' Whole Genome Sequencing: Framing the Health Policy Debate

PLOS Biology, V. 11, No. 11, November 2013, p. e1001699, U of Maryland Legal Studies Research Paper No. 2013-68
Number of pages: 6 Posted: 12 Nov 2013
University of Alberta - Health Law Institute, University of North Carolina (UNC) at Chapel Hill - School of Medicine, Baylor College of Medicine, University of Alberta - Emergency Medicine, University of Alberta - Faculty of Public Health, Arizona State University (ASU) - School for the Future of Innovation in Society, McGill University - BioMedical Ethics Unit, King’s College London, Dept of Social Science, Health & Medicine, University of Toronto - Institute of Health Policy, Management and Evaluation, University of Montreal, Dept of Social and Preventive Medicine, National Institutes of Health (NIH) - National Human Genome Research Institute, Catholic University of Leuven - Faculty of Medicine - Center for Biomedical Ethics and Law, Stanford University - Stanford Center for Biomedical Ethics (SCBE), University of Toronto, Granovsky Gluskin Family Medicine Centre, Memorial University of Newfoundland, Faculty of Medicine, McGill University - Centre for Genomics and Policy, Osaka, Dept of Biomedical Ethics & Public Policy, Graduate School of Medicine, Stanford University - Stanford Center for Biomedical Ethics (SCBE), University of Maryland Francis King Carey School of Law, University of Pennsylvania - Perelman School of Medicine, University of Toronto, Centre for Bioethics, University of Wisconsin-Madison, School of Law; Morgridge Institute for Research, Memorial University of Newfoundland - Faculty of Medicine, Université Laval - Faculty of Medicine, University of Toronto - Department of Health Policy, Management and Evaluation and University of Ottawa, Faculty of Medicine, Public Health Genomics
Downloads 42 (562,374)

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whole genome sequencing, WGS, whole exome sequencing, WES, human genome

9.

Diagnostic Testing for Vaccinomics: Is the Regulatory Approval Framework Adequate? A Comparison of Canada, the United States, and Europe

OMICS: A Journal of Integrative Biology, 2011 September;15(9):597-605, doi: 10.1089/omi.2010.0135
Number of pages: 10 Posted: 18 Jan 2013
McGill University - Centre for Genomics and Policy, McGill University - Centre for Genomics and Policy, McGill University - Centre for Genomics and Policy, McGill University - Centre of Genomics and Policy, University of British Columbia (UBC), University of British Columbia (UBC) and University of British Columbia (UBC)
Downloads 41 (567,478)

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10.

Towards an Ecology of Collective Innovation: Human Variome Project (HVP), Rare Disease Consortium for Autosomal Loci (RaDiCAL) and Data-Enabled Life Sciences Alliance (DELSA)

Curr Pharmacogenomics Person Med, 2011 December, 9(4): 243-251
Number of pages: 15 Posted: 17 Jan 2013
McGill University - Centre for Genomics and Policy, McGill University, McGill University, Stellenbosch University, Centre for Arab Genomic Studies (CAGS), Cairo University, Indian Institute of Technology (IIT), Bombay, University of Kelaniya, McGill University - Centre for Genomics and Policy, McGill University - Centre for Genomics and Policy, McGill University - Centre of Genomics and Policy, Anadolu University, Anadolu University, Global Health Diagnostics, McGill University - Desautels Faculty of Management, Harvard University - Brigham and Women's Hospital, McGill University, Seattle Children's Hospital and University of Melbourne
Downloads 23 (678,657)

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11.

The Role of Whole Genome and Whole Exome Sequencing in Preventive Genomic Sequencing Programs

The American Journal of Bioethics, 15:7, 22-24
Number of pages: 4 Posted: 07 Aug 2015
McGill University, McGill University - Centre of Genomics and Policy and McGill University - Centre for Genomics and Policy
Downloads 18 (717,991)

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Role, Whole Exome Sequencing, Whole Genome Sequencing, Preventive Genomic Sequencing, Programs, Population-based, Technical, Public health, Legal and Ethical considerations, Risks, Benefits, Genetic Discrimination

12.

A Comparative Review of Data Sharing Regulations and Practices in Four Jurisdictions (Australia, France, United Kingdom, United States)

Posted: 24 Jun 2022
affiliation not provided to SSRN, Mcgill, McGill University - Centre of Genomics and Policy, McGill University - Centre of Genomics and Policy, affiliation not provided to SSRN and McGill University - Centre for Genomics and Policy

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COVID-19, data-sharing, genomics, public health, policy

13.

Non-Invasive Prenatal Testing and the Unveiling of an Impaired Translation Process

Posted: 17 May 2019
University of Alberta - Health Law Institute, University of Montreal, Dept of Social and Preventive Medicine, Faculty of Law & Faculty of Pharmacy and Pharmaceutical Sciences, University of Alberta, McGill University - Faculty of Law, McGill University, University of Montreal, University of Alberta - Faculty of Public Health, University of Ottawa - Common Law Section, University of Montreal, University of Alberta - Health Law Institute, McGill University - Centre for Genomics and Policy, McGill University - Centre for Genomics and Policy, Trent University, Albany Medical College - Alden March Bioethics Institute, University of Alberta, Université Laval - Faculty of Medicine and University of Alberta - Health Law Institute

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Commercialization, Obstetrics, Gynaecology, Prenatal Screening, Ethics

14.

The Contested Futures of Biobanks and Intellectual Property

Teoría & derecho (2012) 11 132-146
Posted: 31 Aug 2017
Edward Dove and Yann Joly
University of Edinburgh - School of Law and McGill University - Centre for Genomics and Policy

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biobanks, discourse, emerging technology, genetics, intellectual property, patent law