Care Supply for Rare Diseases: Some Stakes for an Organizational Innovation within the French Healthcare System

ISRICH Working Paper No. 04

28 Pages Posted: 10 Jul 2008

See all articles by Alexandra Le Chaffotec

Alexandra Le Chaffotec

affiliation not provided to SSRN

Isabelle Hirtzlin

affiliation not provided to SSRN

Carine Staropoli

Université Paris I Panthéon-Sorbonne

Claude Menard

Université Paris I Panthéon-Sorbonne

Date Written: July 7, 2008

Abstract

This paper deals with the organizational change in the provision of care for rare diseases, and the creation of a new structure: the centre of reference for rare diseases (CRMR). It aims to show that this new organization of care introduces a new authority within the healthcare organizational structure, by referring of the Transaction costs paradigm and its recognition of hybrid forms. It tackles then several conditions this authority has to fulfill in order to complete CRMR missions and awaited results.

Suggested Citation

le chaffotec, alexandra and Hirtzlin, Isabelle and Staropoli, Carine and Menard, Claude, Care Supply for Rare Diseases: Some Stakes for an Organizational Innovation within the French Healthcare System (July 7, 2008). ISRICH Working Paper No. 04. Available at SSRN: https://ssrn.com/abstract=1156431 or http://dx.doi.org/10.2139/ssrn.1156431

Alexandra Le chaffotec (Contact Author)

affiliation not provided to SSRN

Isabelle Hirtzlin

affiliation not provided to SSRN

Carine Staropoli

Université Paris I Panthéon-Sorbonne ( email )

12, place du Panthéon
Paris, IL
France

Claude Menard

Université Paris I Panthéon-Sorbonne ( email )

12, place du Panthéon
Paris, IL
France

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