Avoiding Genetic Genocide: Understanding Good Intentions and Eugenics in the Complex Dialogue Between the Medical and Disability Communities
25 Pages Posted: 30 Oct 2009
Date Written: August 4, 2008
The relationship between the medical and disability communities is complex and multifaceted. Although physicians, healthcare researchers, and people with disabilities all work from the standpoint of wanting to do what is in the best interest of disabled individuals, the notion of what is actually "best" is often understood quite differently among these constituencies. Miller examines questions raised by modern genetic science from the disability perspective in order to elucidate many of the implications of this research for scientists, health care professionals, and disabled individuals.
Keywords: genetics, genetic research, disability community, medical community, informed consent, doctor, patient, bioethics
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