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Avoiding Genetic Genocide: Understanding Good Intentions and Eugenics in the Complex Dialogue Between the Medical and Disability Communities

25 Pages Posted: 30 Oct 2009  

Paul Steven Miller

University of Washington School of Law

Multiple version iconThere are 2 versions of this paper

Date Written: August 4, 2008

Abstract

The relationship between the medical and disability communities is complex and multifaceted. Although physicians, healthcare researchers, and people with disabilities all work from the standpoint of wanting to do what is in the best interest of disabled individuals, the notion of what is actually "best" is often understood quite differently among these constituencies. Miller examines questions raised by modern genetic science from the disability perspective in order to elucidate many of the implications of this research for scientists, health care professionals, and disabled individuals.

Keywords: genetics, genetic research, disability community, medical community, informed consent, doctor, patient, bioethics

Suggested Citation

Miller, Paul Steven, Avoiding Genetic Genocide: Understanding Good Intentions and Eugenics in the Complex Dialogue Between the Medical and Disability Communities (August 4, 2008). Available at SSRN: https://ssrn.com/abstract=1202682 or http://dx.doi.org/10.2139/ssrn.1202682

Paul Steven Miller (Contact Author)

University of Washington School of Law ( email )

William H. Gates Hall
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United States
206-616-3137 (Phone)
206-543-2164 (Fax)

HOME PAGE: http://www.law.washington.edu/Directory/Profile.aspx?ID=148

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