What is Genetic Discrimination and When and How Can it Be Prevented?

Genetics In Medicine, Vol. 3, No. 5, pp. 354-358, 2001

5 Pages Posted: 13 Jan 2010

See all articles by Mary Anderlik Majumder

Mary Anderlik Majumder

Center for Medical Ethics and Health Policy, Baylor College of Medicine

Mark A. Rothstein

University of Louisville - Institute for Bioethics, Health Policy, and Law; University of Louisville - Louis D. Brandeis School of Law

Date Written: September 30, 2001

Abstract

The public policy debate concerning the desirability and scope of legislation prohibiting discrimination has become increasingly volatile. Last year, a provocative opinion piece urging citizens to "gather courage to discriminate genetically" was widely syndicated. Another commentator suggested that genetic discrimination is "both rational and inevitable." On the other hand some prominent genetic scientists and legislators as well as disease support groups, continue to make passage of laws with strong protections for affected individuals one of their top priorities. Genetic researchers and clinicians need to recognize the unarticulated assumptions about discrimination that shape the debate and understand the underlying tensions between differing accounts of justice and fairness. In this article, we explore some of the nuances of the term discrimination and some of the sources of disagreement, before asking when and how genetic discrimination can be prevented.

Keywords: Institutional Review Boards, IRBs, research, biobank, research ethics, ethics, consent, HIPAAA privacy rule

JEL Classification: K31, K32

Suggested Citation

Majumder, Mary Anderlik and Rothstein, Mark A., What is Genetic Discrimination and When and How Can it Be Prevented? (September 30, 2001). Genetics In Medicine, Vol. 3, No. 5, pp. 354-358, 2001. Available at SSRN: https://ssrn.com/abstract=1536013

Mary Anderlik Majumder

Center for Medical Ethics and Health Policy, Baylor College of Medicine ( email )

One Baylor Plaza
Houston, TX TX - Texas 77030
United States

Mark A. Rothstein (Contact Author)

University of Louisville - Institute for Bioethics, Health Policy, and Law ( email )

Louisville, KY 40202
United States

HOME PAGE: http://www.louisville.edu/bioethics

University of Louisville - Louis D. Brandeis School of Law ( email )

Wilson W. Wyatt Hall
Louisville, KY 40292
United States

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