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Is Deidentification Sufficient to Protect Health Privacy in Research?

American Journal of Bioethics, Vol. 10, No. 9, pp. 3-11, 2010

9 Pages Posted: 22 Sep 2010  

Mark A. Rothstein

University of Louisville - Institute for Bioethics, Health Policy, and Law; University of Louisville - Louis D. Brandeis School of Law

Date Written: September 20, 2010

Abstract

The revolution in health information technology has enabled the compilation and use of large data sets of health records for genomic and other research. Extensive collections of health records, especially those linked with biological specimens, are also extremely valuable for outcomes research, quality assurance, public health surveillance, and other beneficial purposes. The manipulation of large quantities of health information, however, creates substantial challenges for protecting the privacy of patients and research subjects. The strategy of choice for many health care providers and research institutions in dealing with this challenge has been to de-identify individual health information.

Keywords: Privacy, Electronic Health Records, EHRs, Deidentification, Research, HIPAA Privacy Rule, Common Rule, Group Harms, Autonomy, Biobanks

JEL Classification: K31, K32

Suggested Citation

Rothstein, Mark A., Is Deidentification Sufficient to Protect Health Privacy in Research? (September 20, 2010). American Journal of Bioethics, Vol. 10, No. 9, pp. 3-11, 2010. Available at SSRN: https://ssrn.com/abstract=1679910

Mark A. Rothstein (Contact Author)

University of Louisville - Institute for Bioethics, Health Policy, and Law ( email )

Louisville, KY 40202
United States

HOME PAGE: http://www.louisville.edu/bioethics

University of Louisville - Louis D. Brandeis School of Law ( email )

Wilson W. Wyatt Hall
Louisville, KY 40292
United States

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