Deidentification and its Discontents: Response to the Open Peercommentaries

American Journal of Bioethics, Vol. 10, No. 9, pp. W1-W2, 2010

2 Pages Posted: 29 Sep 2010

See all articles by Mark A. Rothstein

Mark A. Rothstein

University of Louisville - Institute for Bioethics, Health Policy, and Law; University of Louisville - Louis D. Brandeis School of Law

Abstract

My recent American Journal of Bioethics target article, “Is Deidentification Sufficient to Protect Health Privacy in Research?” (Rothstein 2010), generated 13 open peer commentaries (OPCs). Twelve generally agree with my basic premise that it is ethically problematic for researchers to deidentify and use health information and biological specimens without the knowledge, consent, or authorization of the individual source of the information or sample. These 12 OPCs provide valuable insights, critiques, and suggestions about issues in the target article. I want to begin this response, however, by considering the one OPC highly critical of my assertion of the need to alter the status quo.

Keywords: Privacy, Electronic Health Records, EHRs, Research, Deidentification, Informed Consent, Human Subjects

JEL Classification: K31, K32

Suggested Citation

Rothstein, Mark A., Deidentification and its Discontents: Response to the Open Peercommentaries. American Journal of Bioethics, Vol. 10, No. 9, pp. W1-W2, 2010. Available at SSRN: https://ssrn.com/abstract=1684232

Mark A. Rothstein (Contact Author)

University of Louisville - Institute for Bioethics, Health Policy, and Law ( email )

Louisville, KY 40202
United States

HOME PAGE: http://www.louisville.edu/bioethics

University of Louisville - Louis D. Brandeis School of Law ( email )

Wilson W. Wyatt Hall
Louisville, KY 40292
United States

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