Researching Privacy in HIV Care: An Ethnographic Analysis of Methods

Privacy and Usability Methods (PUMP) Workshop, British HCI 2010 Conference

8 Pages Posted: 1 Oct 2010  

Chrysanthi Papoutsi

University of Oxford - Oxford Internet Institute

Fadhila Mazanderani

University of Oxford

Ian Brown

University of Oxford - Oxford Internet Institute

Date Written: September 6, 2010

Abstract

Three significant difficulties in the study of privacy are minimising the priming of enhanced privacy sensitive responses; studying privacy sensitive groups and topics; and studying privacy behaviours rather than attitudes. In this article we analyse these challenges ethnographically using two empirical studies on technology development and use in HIV care. In doing so we examine how researchers and participants enact privacy practices in relation to privacy sensitive issues. Drawing on our experiences in relation to qualitative research practices and ethical procedures we focus on four themes: the role of institutional, organisational and personal gatekeepers; identity politics around research topics, researchers and participants; the temporal and spatial contingency of access and disclosure; and micro-negotiations around privacy in interview settings. In conclusion we ask what this analysis can contribute towards tackling methodological problems in privacy research more broadly.

Keywords: Privacy, HIV, research methods, ethnography

Suggested Citation

Papoutsi, Chrysanthi and Mazanderani, Fadhila and Brown, Ian, Researching Privacy in HIV Care: An Ethnographic Analysis of Methods (September 6, 2010). Privacy and Usability Methods (PUMP) Workshop, British HCI 2010 Conference. Available at SSRN: https://ssrn.com/abstract=1685445

Chrysanthi Papoutsi (Contact Author)

University of Oxford - Oxford Internet Institute ( email )

1 St. Giles
Oxford, Oxfordshire OX1 3JS
United Kingdom

Fadhila Mazanderani

University of Oxford ( email )

Mansfield Road
Oxford, Oxfordshire OX1 4AU
United Kingdom

Ian Brown

University of Oxford - Oxford Internet Institute ( email )

1 St. Giles
University of Oxford
Oxford, OX1 3JS
United Kingdom

HOME PAGE: http://www.oii.ox.ac.uk/people/?id=117

Paper statistics

Downloads
78
Rank
257,938
Abstract Views
1,600