Researching Privacy in HIV Care: An Ethnographic Analysis of Methods
Privacy and Usability Methods (PUMP) Workshop, British HCI 2010 Conference
8 Pages Posted: 1 Oct 2010
Date Written: September 6, 2010
Three significant difficulties in the study of privacy are minimising the priming of enhanced privacy sensitive responses; studying privacy sensitive groups and topics; and studying privacy behaviours rather than attitudes. In this article we analyse these challenges ethnographically using two empirical studies on technology development and use in HIV care. In doing so we examine how researchers and participants enact privacy practices in relation to privacy sensitive issues. Drawing on our experiences in relation to qualitative research practices and ethical procedures we focus on four themes: the role of institutional, organisational and personal gatekeepers; identity politics around research topics, researchers and participants; the temporal and spatial contingency of access and disclosure; and micro-negotiations around privacy in interview settings. In conclusion we ask what this analysis can contribute towards tackling methodological problems in privacy research more broadly.
Keywords: Privacy, HIV, research methods, ethnography
Suggested Citation: Suggested Citation