Journal of General Internal Medicine, 2012
14 Pages Posted: 18 Feb 2012
Date Written: December 20, 2011
Survey data suggest that many people fear genetic discrimination by health insurers or employers. In fact, such discrimination has not yet been a significant problem. This article examines the fear and reality of genetic discrimination in the United States, describes how Congress sought to prohibit such discrimination by passing the Genetic Information Nondiscrimination Act of 2008 (GINA), and explores the implications of GINA for general internists and their institutions. It concludes that medical providers and health care institutions must be familiar with the general intent and specific terms of GINA, and should continue to collect genetic information that can contribute to the high quality provision of medical treatment. Not doing so violates their medical mission and diminishes the quality of care patients deserve.
Keywords: Health law and policy, genetics, law, policy, personalized medicine, discrimination, bioethics
Suggested Citation: Suggested Citation
Feldman, Eric A., The Genetic Information Nondiscrimination Act (GINA): Public Policy and Medical Practice in the Age of Personalized Medicine (December 20, 2011). Journal of General Internal Medicine, 2012 ; U of Penn Law School, Public Law Research Paper No. 12-13. Available at SSRN: https://ssrn.com/abstract=2007233