Genes and Plays: Bringing ELSI Issues to Life

Genetics in Medicine, Vol. 14, No. 2, pp. 274-277, 2012

U of Maryland Legal Studies Research Paper No. 2012-14

5 Pages Posted: 14 Mar 2012

See all articles by Karen H. Rothenberg

Karen H. Rothenberg

University of Maryland Francis King Carey School of Law

Lynn Wein Bush

Columbia University - Irving Medical Center

Date Written: February 1, 2012

Abstract

Ethical complexities surround the promise of genomic technology and the power of genetic information as they alter conceptions of identity and dynamics within personal and professional relationships. Creative approaches such as dramatic vignettes offer a unique analytical stage for imagining the bioethical past and future. Dramatic narratives can bring to life images of differing perspectives and values when experiencing innovations in medicine. Although the scientific landscape shifts, concerns expressed in theatre from 50 years ago parallel many contemporary ELSI (ethical, legal and social implications) issues, highlighting the ongoing struggle to appreciate the impact of emerging genetic technologies on relationships. To illuminate these enduring concerns, we explore how perceptions and relationships have influenced - and been influenced by - genetics as portrayed through dramatic vignettes. We build on the legacy of using case vignettes as a clinical teaching modality, and believe similar value exists within the research ethics domain. The selection of dialogue discussed encompasses abbreviated excerpts from two existing and one original vignette that we staged at the ELSI 2011 Congress and various academic and health institutions.

Keywords: genetics, genomic research, plays, vignettes, ELSI

Suggested Citation

Rothenberg, Karen H. and Bush, Lynn Wein, Genes and Plays: Bringing ELSI Issues to Life (February 1, 2012). Genetics in Medicine, Vol. 14, No. 2, pp. 274-277, 2012, U of Maryland Legal Studies Research Paper No. 2012-14, Available at SSRN: https://ssrn.com/abstract=2021105

Karen H. Rothenberg (Contact Author)

University of Maryland Francis King Carey School of Law ( email )

500 West Baltimore Street
Baltimore, MD 21201-1786
United States

Lynn Wein Bush

Columbia University - Irving Medical Center ( email )

630 West 168th Street, 3rd Floor, Suite 3-470
William Black Building, 8th Floor BB8-801C
New York, NY NY 10032
United States

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