A System for Interactive Assessment and Management in Palliative Care

Journal of Pain and Symptom Management, Vol. 33, No. 6, June 2007

11 Pages Posted: 10 Aug 2012 Last revised: 28 Sep 2013

See all articles by Chih-Hung Chang

Chih-Hung Chang

Northwestern University

Alexander A. Boni-Saenz

Chicago-Kent College of Law

Ramon Durazo-Arvizu

Loyola University of Chicago

Susan DesHarnais

Northwestern University

Denys T. Lau

University of Illinois at Chicago - Department of Pharmacy Administration

Linda Emanuel

Northwestern University

Date Written: September 16, 2006

Abstract

The availability of psychometrically sound and clinically relevant screening, diagnosis, and outcome evaluation tools is essential to high-quality palliative care assessment and management. Such data will enable us to improve patient evaluations, prognoses, and treatment selections, and to increase patient satisfaction and quality of life. To accomplish these goals, medical care needs more precise, efficient, and comprehensive tools for data acquisition, analysis, interpretation, and management. We describe a system for interactive assessment and management in palliative care (SIAM-PC), which is patient centered, model driven, database derived, evidence based, and technology assisted. The SIAM-PC is designed to reliably measure the multiple dimensions of patients’ needs for palliative care, and then to provide information to clinicians, patients, and the patients’ families to achieve optimal patient care, while improving our capacity for doing palliative care research. This system is innovative in its application of the state-of-the-science approaches, such as item response theory and computerized adaptive testing, to many of the significant clinical problems related to palliative care.

Keywords: Assessment, computerized adaptive testing, electronic medical records, informatics, item response theory, management, palliative care, psychometrics, practice guidelines, statistical modeling, symptom, respondent’s burden

Suggested Citation

Chang, Chih-Hung and Boni-Saenz, Alexander Antonio and Durazo-Arvizu, Ramon and DesHarnais, Susan and Lau, Denys T. and Emanuel, Linda, A System for Interactive Assessment and Management in Palliative Care (September 16, 2006). Journal of Pain and Symptom Management, Vol. 33, No. 6, June 2007, Available at SSRN: https://ssrn.com/abstract=2127712

Chih-Hung Chang (Contact Author)

Northwestern University ( email )

2001 Sheridan Road
Evanston, IL 60208
United States

Alexander Antonio Boni-Saenz

Chicago-Kent College of Law ( email )

565 W. Adams St.
Chicago, IL 60661-3691
United States

Ramon Durazo-Arvizu

Loyola University of Chicago ( email )

Susan DesHarnais

Northwestern University ( email )

2001 Sheridan Road
Evanston, IL 60208
United States

Denys T. Lau

University of Illinois at Chicago - Department of Pharmacy Administration ( email )

United States

Linda Emanuel

Northwestern University ( email )

2001 Sheridan Road
Evanston, IL 60208
United States

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