The Genome Sequencing and Privacy Report: A Missed Opportunity

Gene Watch, 25(5) 2012

2 Pages Posted: 23 Nov 2012  

Mark A. Rothstein

University of Louisville - Institute for Bioethics, Health Policy, and Law; University of Louisville - Louis D. Brandeis School of Law

Date Written: 2012

Abstract

It has been over 10 years since the first human genome sequence was completed and, since then, the holy grail of genomics has been the ability to perform fast, cheap, and accurate whole genome sequencing. For researchers, whole genome sequencing (WGS) provides important insights into the role of genes in disease. For clinicians, among other things, WGS is an essential part of the emerging field of personalized medicine.

Keywords: Whole genome sequencing, privacy, genetic research, clincal genetics, presidential commission for the study of bioethical issues, GINA

JEL Classification: K32, K31

Suggested Citation

Rothstein, Mark A., The Genome Sequencing and Privacy Report: A Missed Opportunity (2012). Gene Watch, 25(5) 2012. Available at SSRN: https://ssrn.com/abstract=2179090

Mark A. Rothstein (Contact Author)

University of Louisville - Institute for Bioethics, Health Policy, and Law ( email )

Louisville, KY 40202
United States

HOME PAGE: http://www.louisville.edu/bioethics

University of Louisville - Louis D. Brandeis School of Law ( email )

Wilson W. Wyatt Hall
Louisville, KY 40292
United States

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