Incidental Findings in Genomic Research: A Review of International Norms

(2011) 9:1 GenEdit 1

8 Pages Posted: 18 Jan 2013

See all articles by Ma'n H. Zawati

Ma'n H. Zawati

McGill University - Centre of Genomics and Policy

Brian Van Ness

University of Minnesota - Twin Cities

Bartha Maria Knoppers

McGill University - Centre for Genomics and Policy

Date Written: September 1, 2011

Abstract

Human genomic research will influence the practice of medicine by further exploring the vast potential of large-scale biobanks and associated pharmacogenomics and clinical research initiatives. While population studies of normal genomic variation may assist in understanding heterogeneity and allow for targeted therapies, researchers may well discover incidental findings – discoveries that go beyond the aims of the intended study – especially when using whole genome sequencing technologies. Policies as well as literature have dealt with the issue of managing these findings in research in general, but a review of international norms governing genomic research will give us a more comprehensive look at the state of the legal and ethical guidance.

Suggested Citation

Zawati, Ma'n H. and Van Ness, Brian and Knoppers, Bartha Maria, Incidental Findings in Genomic Research: A Review of International Norms (September 1, 2011). (2011) 9:1 GenEdit 1, Available at SSRN: https://ssrn.com/abstract=2202330

Ma'n H. Zawati (Contact Author)

McGill University - Centre of Genomics and Policy ( email )

740 Dr. Penfield Avenue, Suite 5200
Montreal, Quebec H3A 0G1
Canada

Brian Van Ness

University of Minnesota - Twin Cities ( email )

420 Delaware St. SE
Minneapolis, MN 55455
United States

Bartha Maria Knoppers

McGill University - Centre for Genomics and Policy ( email )

740 Dr. Penfield Avenue, Suite 5200
Montreal, Quebec H3A 0G1
Canada

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