Mandatory Extended Searches in All Genome Sequencing 'Incidental Findings,' Patient Autonomy, and Shared Decision Making

JAMA 310(4):367-8(2013)

2 Pages Posted: 30 Jul 2013

See all articles by Lainie Friedman Ross

Lainie Friedman Ross

University of Chicago - Department of Pediatrics

Mark A. Rothstein

University of Louisville - Institute for Bioethics, Health Policy, and Law; University of Louisville - Louis D. Brandeis School of Law

Ellen Wright Clayton

Vanderbilt University - Law School

Date Written: July 24, 2013

Abstract

Should incidental findings discovered with whole-genome sequencing or testing be sought and reported to ordering clinicians and to patients (or their surrogates)? — NO.

Keywords: genetics, genome sequencing, incidental findings, informed consent, physician-patient, autonomy

JEL Classification: K31, K32

Suggested Citation

Friedman Ross, Lainie and Rothstein, Mark A. and Wright Clayton, Ellen, Mandatory Extended Searches in All Genome Sequencing 'Incidental Findings,' Patient Autonomy, and Shared Decision Making (July 24, 2013). JAMA 310(4):367-8(2013). Available at SSRN: https://ssrn.com/abstract=2302756

Lainie Friedman Ross (Contact Author)

University of Chicago - Department of Pediatrics ( email )

5841 S. Maryland Ave. MC 6082
Chicago, IL 60637
United States

Mark A. Rothstein

University of Louisville - Institute for Bioethics, Health Policy, and Law ( email )

Louisville, KY 40202
United States

HOME PAGE: http://www.louisville.edu/bioethics

University of Louisville - Louis D. Brandeis School of Law ( email )

Wilson W. Wyatt Hall
Louisville, KY 40292
United States

Ellen Wright Clayton

Vanderbilt University - Law School ( email )

131 21st Avenue South
Nashville, TN 37203-1181
United States
615-322-1186 (Phone)
615-322-4548 (Fax)

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