The Open Data Era in Health and Social Care

81 Pages Posted: 22 Mar 2018

See all articles by Stefaan Verhulst

Stefaan Verhulst

New York University (NYU) - The GovLab

Beth Simone Noveck

New York Law School (NYLS) - Democracy Design Workshop; McClatchy Visiting Associate Professor

Robyn Caplan

Data & Society Research Institute; Rutgers University, New Brunswick/Piscataway, School of Communication and Information, Students

Kristy Brown

New York University (NYU) - Governance Lab

Claudia Paz

New York University (NYU) - The GovLab

Date Written: June 11, 2014

Abstract

The United Kingdom has been a leader in the open data movement – a new movement by governments around the world to open up the vast repositories of data they hold across agencies and departments, and to collect new kinds of data for public use. Open data is publicly available data that can be universally and readily accessed, used, and redistributed free of charge. It is changing the way governments, nonprofits, and the private sector use data to understand public issues and solve problems in areas as diverse as financial regulation, energy, education, and more.

Open data holds particular potential in the health sector. By releasing health data to patients and, when appropriate, on an anonymized basis to researchers and the public, governments and healthcare organizations are betting on the power of greater openness of data to improve the quality of care, lower healthcare costs, and facilitate patient choice. The NHS has made and continues to make significant investments in opening data. Over the past several years, it has launched a series of initiatives that have already had a positive impact on patient education, healthcare choice, healthcare costs, and patient outcomes. Now the NHS is planning a broader, more ambitious programme that has the potential to serve as a worldwide model for the opening of data in healthcare. The purpose of this report is to help design this programme, establishing priorities and ways of measuring impact to guide this and future efforts at data transparency

Keywords: Open Data, Metrics, Impact

Suggested Citation

Verhulst, Stefaan and Noveck, Beth Simone and Caplan, Robyn and Brown, Kristy and Paz, Claudia, The Open Data Era in Health and Social Care (June 11, 2014). NYLS Legal Studies Research Paper No. 2563788, Available at SSRN: https://ssrn.com/abstract=2563788 or http://dx.doi.org/10.2139/ssrn.2563788

Stefaan Verhulst (Contact Author)

New York University (NYU) - The GovLab ( email )

Bobst Library, E-resource Acquisitions
20 Cooper Square 3rd Floor
New York, NY 10003-711
United States

Beth Simone Noveck

New York Law School (NYLS) - Democracy Design Workshop ( email )

57 Worth Street
New York, NY 10011-2960
United States
212-431-2355 (Phone)

McClatchy Visiting Associate Professor ( email )

559 Nathan Abbott Way
Stanford, CA 94305-8610
United States

Robyn Caplan

Data & Society Research Institute ( email )

36 West 20th Street
11th Floor
New York,, NY 10011
United States

Rutgers University, New Brunswick/Piscataway, School of Communication and Information, Students ( email )

New Brunswick, NJ
United States

Kristy Brown

New York University (NYU) - Governance Lab ( email )

NYU Wagner School of Public Service
295 Lafayette Street, 3rd Floor
New York, NY 10012
United States

Claudia Paz

New York University (NYU) - The GovLab

2 MetroTech Center, 9th Floor
Brooklyn, NY 11201
United States

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