NIH's Genomic Data Sharing Policy: Timing and Tradeoffs

Trends in Genetics 31(2), pp. 55-57, February 2015

University of Utah College of Law Research Paper No. 122

7 Pages Posted: 7 Jun 2015 Last revised: 14 Jul 2015

See all articles by Jorge L. Contreras

Jorge L. Contreras

University of Utah - S.J. Quinney College of Law

Date Written: February 1, 2015

Abstract

In August 2014, the U.S. National Institutes of Health (NIH) issued a new Genomic Data Sharing (GDS) policy governing the use and release of data generated by NIH-funded genomic studies. The GDS policy, which was five years in the making, will apply to all grant submissions made after January 25, 2015. And while it outwardly preserves the tradition of rapid genomic data release established early in the Human Genome Project (HGP), it makes significant changes to the terms on which genomic data is submitted and released. These changes could fundamentally alter the practice and underlying assumptions of genomic data sharing.

Keywords: genomic, data sharing, data release, NIH, Genbank, dbGaP, patent, latency, GDS, GWAS

Suggested Citation

Contreras, Jorge L., NIH's Genomic Data Sharing Policy: Timing and Tradeoffs (February 1, 2015). Trends in Genetics 31(2), pp. 55-57, February 2015, University of Utah College of Law Research Paper No. 122, Available at SSRN: https://ssrn.com/abstract=2615095

Jorge L. Contreras (Contact Author)

University of Utah - S.J. Quinney College of Law ( email )

383 S. University Street
Salt Lake City, UT 84112-0730
United States

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