RMGA Statement of Principles on the Return of Research Results and Incidental Findings

39 Pages Posted: 1 Aug 2015 Last revised: 19 Jun 2017

See all articles by Karine Sénécal

Karine Sénécal

McGill University - Centre for Genomics and Policy

Emmanuelle Lévesque

McGill University - Centre for Genomics and Policy

Conrad Fernandez

IWK Health Centre; Dalhousie University

Anne-Marie Tassé

McGill University - Centre for Genomics and Policy

Ma'n H. Zawati

McGill University - Centre of Genomics and Policy

Bartha Knoppers

McGill University - Centre for Genomics and Policy

Denise Avard

McGill University - Centre for Genomics and Policy

Date Written: March 1, 2013

Abstract

The Network of Applied Genetic Medicine (hereafter RMGA) of the Fonds de la Recherche en Santé du Québec herein puts forward a "Statement of Principles on the Return of Research Results and Incidental Findings." These principles will guide RMGA researchers, and researchers across Québec, in the planning and execution of genetic and genomic research projects. More precisely, the Statement intends to be a guide for the management and the communication of research results, and addresses research projects in genetics and genomics.

Keywords: Biobank, Clinical Utility, Research, RMGA, Statement of Principles, Return of Research Results, Incidental Findings, Scientific Validity, Human biological materials, Clinical validity, Secondary Use

Suggested Citation

Sénécal, Karine and Lévesque, Emmanuelle and Fernandez, Conrad and Tassé, Anne-Marie and Zawati, Ma'n H. and Knoppers, Bartha and Avard, Denise, RMGA Statement of Principles on the Return of Research Results and Incidental Findings (March 1, 2013). Available at SSRN: https://ssrn.com/abstract=2635148 or http://dx.doi.org/10.2139/ssrn.2635148

Karine Sénécal

McGill University - Centre for Genomics and Policy ( email )

740 Dr. Penfield Avenue, Suite 5200
Montreal, Quebec H3A 0G1
Canada

Emmanuelle Lévesque

McGill University - Centre for Genomics and Policy ( email )

740 Dr. Penfield Avenue, Suite 5200
Montreal, Quebec H3A 0G1
Canada

Conrad Fernandez

IWK Health Centre ( email )

Dalhousie University ( email )

6225 University Avenue
Halifax, Nova Scotia B3H 4H7
Canada

Anne-Marie Tassé

McGill University - Centre for Genomics and Policy ( email )

740 Dr. Penfield Avenue, Suite 5200
Montreal, Quebec H3A 0G1
Canada

Ma'n H. Zawati (Contact Author)

McGill University - Centre of Genomics and Policy ( email )

740 Dr. Penfield Avenue, Suite 5200
Montreal, Quebec H3A 0G1
Canada

Bartha Knoppers

McGill University - Centre for Genomics and Policy ( email )

740 Dr. Penfield Avenue, Suite 5200
Montreal, Quebec H3A 0G1
Canada

Denise Avard

McGill University - Centre for Genomics and Policy ( email )

740 Dr. Penfield Avenue, Suite 5200
Montreal, Quebec H3A 0G1
Canada

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