RMGA Statement of Principles on the Return of Research Results and Incidental Findings

Abstract

The Network of Applied Genetic Medicine (hereafter RMGA) of the Fonds de la Recherche en Santé du Québec herein puts forward a "Statement of Principles on the Return of Research Results and Incidental Findings." These principles will guide RMGA researchers, and researchers across Québec, in the planning and execution of genetic and genomic research projects. More precisely, the Statement intends to be a guide for the management and the communication of research results, and addresses research projects in genetics and genomics.

Keywords: Biobank, Clinical Utility, Research, RMGA, Statement of Principles, Return of Research Results, Incidental Findings, Scientific Validity, Human biological materials, Clinical validity, Secondary Use