Download This PaperPopulation Biobanks and the Principle of Reciprocity
Biobanking of Human Biospecimen, 2017, ISBN 978-3-319-55120-3
11 Pages Posted: 21 Jun 2017 Last revised: 3 Apr 2018
Date Written: January 1, 2017
Abstract
Samples and data from population studies are stored for long periods of time, and can be accessed by national and international researchers to further their own studies and contribute to their understanding of the impact of a number of factors (e.g., environment, lifestyle) on common diseases and their progression. Part 2 of this Chapter discusses the nature of the researcher's duty to inform, which is the result of an individualistic conception of autonomy. Parts 3 and 4 review the restrictive conception of autonomy, and concludes that it is rooted in a unilateral approach that is incongruous with the nature of biobank genomic research. Finally, part 5 proposes that autonomy be complemented by the principle of reciprocity, which would not only create a fair and balanced relationship between researchers and participants, but would also recognize the public as a key contributor to genomic research.
Keywords: population biobanks and the principle of reciprocity
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