Normative Approaches to Address Genetic Discrimination: Placebo or Panacea?

Trends in Genetics, Forthcoming

34 Pages Posted: 8 Mar 2017 Last revised: 12 Mar 2017

See all articles by Yann Joly

Yann Joly

McGill University - Centre for Genomics and Policy

Ida Ngueng Feze

McGill University - Centre for Genomics and Policy

Lingqiao Song

McGill University - Centre for Genomics and Policy

Bartha Maria Knoppers

McGill University - Centre for Genomics and Policy

Date Written: March 6, 2017

Abstract

Genetic discrimination is one of the most pervasive issues associated with genetic research and its large-scale implementation in developed countries. In the past decades, governments of an increasing number of countries have adopted public policies to protect their populations from genetic discrimination. Our research presents a comparative review of laws and policies addressing genetic discrimination worldwide. It provides a concise typology and critical appraisal of existing normative approaches. After analyzing these documents and regrouping them under eight policy approaches, our article concludes by formulating some suggestions for future development public policy development.

Keywords: genetic discrimination, comparative law, personalized medicine, bioethics, insurance, human rights

JEL Classification: N40

Suggested Citation

Joly, Yann and Ngueng Feze, Ida and Song, Lingqiao and Knoppers, Bartha Maria, Normative Approaches to Address Genetic Discrimination: Placebo or Panacea? (March 6, 2017). Trends in Genetics, Forthcoming. Available at SSRN: https://ssrn.com/abstract=2911199

Yann Joly (Contact Author)

McGill University - Centre for Genomics and Policy ( email )

740 Dr. Penfield Avenue, Suite 5200
Montreal, Quebec H3A 0G1
Canada

Ida Ngueng Feze

McGill University - Centre for Genomics and Policy ( email )

740 Dr. Penfield Avenue, Suite 5200
Montreal, Quebec H3A 0G1
Canada

Lingqiao Song

McGill University - Centre for Genomics and Policy ( email )

740 Dr. Penfield Avenue, Suite 5200
Montreal, Quebec H3A 0G1
Canada

Bartha Maria Knoppers

McGill University - Centre for Genomics and Policy ( email )

740 Dr. Penfield Avenue, Suite 5200
Montreal, Quebec H3A 0G1
Canada

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