A Linked Democracy Approach for Regulating Public Health Data

Health and Technology (2017), DOI: 10.1007/s12553-017-0191-5

Deakin Law School Research Paper No. 17-26

20 Pages Posted: 21 Jun 2017 Last revised: 27 Sep 2017

See all articles by Pompeu Casanovas

Pompeu Casanovas

La Trobe Law School; Autonomous University of Barcelona - IDT

Danuta Mendelson

Deakin University, Geelong, Australia - Deakin Law School

Marta Poblet

RMIT University

Date Written: May 30, 2017

Abstract

This article addresses the problem of constructing a public space to build sustainable data ecosystems for the biomedical field. It outlines three models of democracy — deliberative, epistemic, and linked — where privacy and data protection can be explored in connection with the existing ethical frameworks for Public Health Data, and the Theory of Justice. For the construction of a sustainable public space, it suggests exploring the analytical dimension of Linked Democracy, and the need for building new tools to regulate ‘Linked Open Data’, based on rule of law and the analytical dimension of the meta-rule of law. The construction of ‘intermediate’ or ‘anchoring’ institutions would help in embedding the protections of the rule of law into specific ecosystems (including direct, indirect and tactic modelling of privacy by design).

Keywords: Linked democracy, privacy by design, meta-rule of law, electronic health records, web of data, identity

JEL Classification: I19, K39

Suggested Citation

Casanovas, Pompeu and Mendelson, Danuta and Poblet, Marta, A Linked Democracy Approach for Regulating Public Health Data (May 30, 2017). Health and Technology (2017), DOI: 10.1007/s12553-017-0191-5, Deakin Law School Research Paper No. 17-26, Available at SSRN: https://ssrn.com/abstract=2989679 or http://dx.doi.org/10.2139/ssrn.2989679

Pompeu Casanovas

La Trobe Law School ( email )

La Trobe University
Bundoora, VIC 3083 3142
Australia

Autonomous University of Barcelona - IDT ( email )

Institute of Law and Technology
Faculty of Law, Cerdanyola del Valles
Barcelona, Barcelona 08193
Spain
34-93-581 2235 (Phone)

HOME PAGE: http://idt.uab.cat

Danuta Mendelson (Contact Author)

Deakin University, Geelong, Australia - Deakin Law School ( email )

221 Burwood Highway
Burwood
Burwood, Victoria 3125, Victoria 3125
Australia

Marta Poblet

RMIT University ( email )

124 La Trobe Street
Melbourne, 3000
Australia

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