Addressing Patient Needs and Public Commitments in Health Technology Innovation: A Review of Patient and Public Engagement in Technology Development and Assessment

28 Pages Posted: 4 Dec 2017

See all articles by Fiona A. Miller

Fiona A. Miller

University of Toronto - Institute of Health Policy, Management and Evaluation

Sarah Patton

University of Toronto

Austin Nam

University of Toronto

Joanna Bielecki

University of Toronto

Murray Krahn

University of Toronto - Department of Medicine; University of Toronto - University Health Network

Date Written: November 29, 2016

Abstract

Objectives: The engagement of patients and lay publics is increasing across many contexts that influence technological innovation, including in the development and assessment of technologies. We sought to analyze how the engagement of patients and publics is conceptualized and pursued in two important innovation contexts: health technology assessment and health product development.

Methods: We adapted scoping review methods to map concepts and evidence, searching 4 reference databases for health and social sciences from 1980 to December 2013 for English language studies on patient or public engagement in product development or technology assessment.

Results: We included 91 articles after screening 4050 titles and abstracts and reviewing 192 full-text articles and compared approaches to engagement across 4 domains: (i) patients were engaged in both product development and technology assessment, but lay publics were only engaged in technology assessment; (ii) the common engagement goals of addressing values and mobilizing acceptance meant different things across contexts; (iii) engagement efforts created similar resource and epistemic requirements; and, (iv) neither context consistently identified the influence of engagement on other innovation-relevant contexts.

Conclusions: Comparison of the product development and assessment contexts provides new insight into the potential for patient and public engagement as part of a cumulative and collective approach to health technology innovation. Such an approach will need to address common requirements and challenges related to material resources and epistemic imperatives, and overcome inconsistencies in how patients and publics are understood and involved.

Keywords: health innovation, technology assessment, technology development, patient and public involvement, consumer participation

Suggested Citation

Miller, Fiona A. and Patton, Sarah and Nam, Austin and Bielecki, Joanna and Krahn, Murray, Addressing Patient Needs and Public Commitments in Health Technology Innovation: A Review of Patient and Public Engagement in Technology Development and Assessment (November 29, 2016). Available at SSRN: https://ssrn.com/abstract=3079529 or http://dx.doi.org/10.2139/ssrn.3079529

Fiona A. Miller (Contact Author)

University of Toronto - Institute of Health Policy, Management and Evaluation ( email )

155 College Street
Suite 425
Toronto, Ontario M5T 3M6
Canada
416 978-3703 (Phone)

Sarah Patton

University of Toronto ( email )

Toronto, Ontario M5S 3G8
Canada

Austin Nam

University of Toronto ( email )

Toronto, Ontario M5S 3G8
Canada

Joanna Bielecki

University of Toronto ( email )

Toronto, Ontario M5S 3G8
Canada

Murray Krahn

University of Toronto - Department of Medicine ( email )

Toronto
Canada

University of Toronto - University Health Network ( email )

101 College Street
Toronto, ON M5G 1L7 ON M5G 1L7
Canada

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