Seeding Australian Regulation of Genomics in the Cloud
Abbott E and Faunce TA SEEDING AUSTRALIAN REGULATION OF GENOMICS IN THE CLOUD (2016) 24 JLM 314-336
23 Pages Posted: 20 Feb 2018
Date Written: December 18, 2016
Cloud computing has facilitated a revolution in genome sequencing. As big data and personalized medicine increase in popularity in Australia, are the legal and regulatory regimes surrounding this nascent area of scientific research and clinical practice able to protect this private information? An examination of the current regulatory regime in Australia, including the Privacy Act 1988 (CTH) and medical research laws that govern cloud-based genomics research highlights that the key challenge of such research is to protect the interests of participants while also promoting collaborative research processes. This examination also highlights the potential effect that the Trans-Pacific Partnership Agreement’s Electronic Commerce Chapter may have had on using the cloud for genomics and what the consequences may have been for researchers, clinicians and individuals. Lessons learnt here will be relevant to studying similar impacts from other trade and investment agreements such as the Trade in Services Agreement (TiSA).
Keywords: Genomics, Cloud Computing, TPP, TiSA, Privacy Law
JEL Classification: O33, L33, I18
Suggested Citation: Suggested Citation