Assessing the Risks Versus Benefits of Conducting Research with Adolescents in Foster Care

Badillo-Urquiola, K., Harpin, S., Taliaferro, L., Ghosh, A.K., and Wisniewski, P. (2017) “Assessing the Risks versus Benefits of Conducting Research with Adolescents in Foster Care,” Extended Abstract presented at the Workshop on Privacy Ethics at the 2017 ACM Conference on Computer Supported Cooper

4 Pages Posted: 26 Mar 2018

See all articles by Karla Badillo-Urquiola

Karla Badillo-Urquiola

University of Central Florida, Modeling and Simulation Graduate Program, Students

Scott Harpin

University of Colorado at Boulder

Lindsay Taliaferro

University of Central Florida

Arup Kumar Ghosh

University of Central Florida

Pamela Wisniewski

University of Central Florida

Date Written: March 1, 2017

Abstract

For researchers and designers to produce better design solutions for promoting adolescent online safety, we need access to study adolescent populations. While HCI research has moved in the direction of engaging directly with teens, this progress does not come without costs. Further, it also does not take into account the needs of particularly vulnerable teen populations. For instance, teens in foster care face higher levels of risk in general and, thus, have a greater need for protection beyond typical teens. Yet, when studying this population, many ethical challenges arise concerning a teen’s privacy and eligibility to participate in research when they are part of the foster system. These challenges include: 1) Consent and Assent, 2) Confidentiality and Privacy, and 3) Sensitive Data. The goal of this paper is to present situations in which a researcher must evaluate the tradeoffs between privacy and advancing knowledge to benefit vulnerable populations, such as youth in foster care.

Keywords: Adolescents, Foster Care, Foster Parents, Informed Consent, Confidentiality, Privacy, Ethics

Suggested Citation

Badillo-Urquiola, Karla and Harpin, Scott and Taliaferro, Lindsay and Ghosh, Arup Kumar and Wisniewski, Pamela, Assessing the Risks Versus Benefits of Conducting Research with Adolescents in Foster Care (March 1, 2017). Badillo-Urquiola, K., Harpin, S., Taliaferro, L., Ghosh, A.K., and Wisniewski, P. (2017) “Assessing the Risks versus Benefits of Conducting Research with Adolescents in Foster Care,” Extended Abstract presented at the Workshop on Privacy Ethics at the 2017 ACM Conference on Computer Supported Cooper, Available at SSRN: https://ssrn.com/abstract=3141367

Karla Badillo-Urquiola

University of Central Florida, Modeling and Simulation Graduate Program, Students ( email )

Partnership II Building Suite 131
3100 Technology Parkway
Orlando, FL 32826
United States

Scott Harpin

University of Colorado at Boulder ( email )

1070 Edinboro Drive
Boulder, CO 80309
United States

Lindsay Taliaferro

University of Central Florida ( email )

4000 Central Florida Blvd
Orlando, FL 32816-1400
United States

Arup Kumar Ghosh

University of Central Florida ( email )

4000 Central Florida Blvd
Orlando, FL 32816-1400
United States

Pamela Wisniewski (Contact Author)

University of Central Florida ( email )

4000 Central Florida Blvd
Orlando, FL 32816-1400
United States

Do you have a job opening that you would like to promote on SSRN?

Paper statistics

Downloads
34
Abstract Views
198
PlumX Metrics