In Trust, Data: The Trust as a Data Management Tool
10 Pages Posted: 14 May 2019 Last revised: 31 May 2019
Date Written: March 29, 2019
This Essay explores the trust’s potential as a data management tool. It argues that trusts can support delegated management of secondary uses for clinical data; long-term data governance that protects research subjects; complex value allocations among members of a data collaboration; and the isolation of data from an researcher’s insolvency risks. Although this Essay uses health data as an animating application, the functions presented here may be applicable to other fields.
Suggested Citation: Suggested Citation