The Law and Ethics of Data Sharing during Infectious Disease Emergencies

7 Pages Posted: 22 Aug 2019

See all articles by Sam Halabi

Sam Halabi

O'Neill Institute for National and Global Health Law; University of Missouri School of Law

Michelle Rourke

Griffith University, Griffith Law School

Rebecca Katz

Georgetown University

Date Written: April 19, 2019

Abstract

During the 2012 MERS-CoV outbreak and 2014-15 Ebola public health emergency in West Africa, a number of legal and ethical barriers impeded the flow of relevant data especially that related to diagnostics, therapeutics and vaccines. This article represents a brief summary of the data sharing barriers identified through a project funded by the Wellcome Trust and Global Research Collaboration for Infectious Disease Preparedness. It analyzes the specific legal and ethical barriers confronted by aid workers, researchers, non-governmental organizations, funding agencies, and governments and recommends measures to address those barriers focused on governments, funding organizations, and medical organizations.

Keywords: bioethics, data sharing, public health emergency, research ethics

Suggested Citation

Halabi, Sam and Rourke, Michelle and Katz, Rebecca, The Law and Ethics of Data Sharing during Infectious Disease Emergencies (April 19, 2019). Journal of Health Care Law & Policy, Forthcoming, Available at SSRN: https://ssrn.com/abstract=3375089

Sam Halabi (Contact Author)

O'Neill Institute for National and Global Health Law ( email )

Washington, DC

University of Missouri School of Law ( email )

Columbia, MO Columbia 65211
United States

Michelle Rourke

Griffith University, Griffith Law School ( email )

Nathan Campus, GU
Nathan 4111
Australia

Rebecca Katz

Georgetown University ( email )

3900 Reservoir Road, NW, 305SW Med Dent
Washington, DC 20057
United States
2022514925 (Phone)

HOME PAGE: http://ghss.georgetown.edu

Do you have a job opening that you would like to promote on SSRN?

Paper statistics

Downloads
177
Abstract Views
1,179
rank
213,076
PlumX Metrics