Reciprocity and the Quest for Meaningful Disclosure

The American Journal of Bioethics, Forthcoming

Posted: 1 Jun 2019

See all articles by Ma'n H. Zawati

Ma'n H. Zawati

McGill University - Centre of Genomics and Policy

Bartha Maria Knoppers

Centre of Genomics and Policy

Date Written: May 9, 2019

Abstract

In "Exploring Understanding of 'Understanding': The Paradigm Case of Biobank Consent Comprehension," Beskow and Weinfurt (2019) highlight an issue that has spilled much ink in the past decade: the comprehension of the informed consent process by participants. Through qualitative research, the authors suggest that study teams interested in creating thresholds for measuring the understanding of participants must first collect data on how many of these participants are likely to meet the relevant thresholds. Furthermore, the authors argue that perhaps conceiving of comprehension as an ethical aspiration rather than an ethical requirement would be more consistent with the practical realities of research participation.

Keywords: reciprocity, disclosure

Suggested Citation

Zawati, Ma'n H. and Knoppers, Bartha Maria, Reciprocity and the Quest for Meaningful Disclosure (May 9, 2019). The American Journal of Bioethics, Forthcoming, Available at SSRN: https://ssrn.com/abstract=3385531

Ma'n H. Zawati (Contact Author)

McGill University - Centre of Genomics and Policy ( email )

740 Dr. Penfield Avenue, Suite 5200
Montreal, Quebec H3A 0G1
Canada

Bartha Maria Knoppers

Centre of Genomics and Policy ( email )

3640 rue University
Rm W-315, Strathcona Anatomy & Dentistry Building
Montréal, QC H3A 0C7
Canada

Do you have a job opening that you would like to promote on SSRN?

Paper statistics

Abstract Views
202
PlumX Metrics