The Human Right to Science and the Regulation of Human Germline Engineering

The CRISPR Journal, Vol. 2, No. 3, 2019, pp. 134-142.

Loyola Law School, Los Angeles Legal Studies Research Paper No. 2019-22

22 Pages Posted: 12 Aug 2019

See all articles by Andrea Boggio

Andrea Boggio

Bryant University

Bartha Maria Knoppers

Centre of Genomics and Policy

Jessica Almqvist

Universidad Autónoma de Madrid - Faculty of Law

Cesare P.R. Romano

Loyola Law School Los Angeles

Date Written: August 11, 2019

Abstract

Currently, there is no international consensus on how human germline engineering should be regulated. Existing national legislation fails to provide the governance framework necessary to regulate germline engineering in the CRISPR era. This is an obstacle to scientific and clinical advancements and inconsistent with human rights requirements. To move forward, we suggest that the human right to science is an ideal starting point for building consensus, at the national and international levels, on governing principles that promote responsible scientific and technological advancements. Regulatory frameworks must recognize the international nature of modern germline genome engineering research, the need for shared governance rather than tech-locked prohibitions, and the fact that humans are not their germline.

Note: This is the early, pre-edited version, of an article that was eventually published as: Andrea Boggio, Bartha Knoppers, Jessica Almqvist and Cesare Romano, “The Human Right to Science and the Regulation of Human Germline Engineering”, The CRISPR Journal, Vol. 2, No. 3, 2019, pp. 134-142. Also, the article is a synthesis of the book Andrea Boggio, Cesare P.R. Romano, Jessica Almqvist (eds.), Human Germline Genome Modification and the Right to Science: A Comparative Study of National Laws and Policies, Cambridge University Press, 2019.

Suggested Citation

Boggio, Andrea and Knoppers, Bartha Maria and Almqvist, Jessica and Romano, Cesare P.R., The Human Right to Science and the Regulation of Human Germline Engineering (August 11, 2019). The CRISPR Journal, Vol. 2, No. 3, 2019, pp. 134-142., Loyola Law School, Los Angeles Legal Studies Research Paper No. 2019-22, Available at SSRN: https://ssrn.com/abstract=3435807

Andrea Boggio

Bryant University ( email )

1150 Douglas Pike
Smithfield, RI 02917
United States
4012326455 (Phone)

HOME PAGE: http://departments.bryant.edu/history-and-social-sciences/faculty/andrea-boggio.htm

Bartha Maria Knoppers

Centre of Genomics and Policy ( email )

3640 rue University
Rm W-315, Strathcona Anatomy & Dentistry Building
Montréal, QC H3A 0C7
Canada

Jessica Almqvist

Universidad Autónoma de Madrid - Faculty of Law ( email )

Spain

Cesare P.R. Romano (Contact Author)

Loyola Law School Los Angeles ( email )

919 Albany Street
Los Angeles, CA 90015-1211
United States

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