The Human Right to Science and the Regulation of Human Germline Engineering
The CRISPR Journal, Vol. 2, No. 3, 2019, pp. 134-142.
22 Pages Posted: 12 Aug 2019
Date Written: August 11, 2019
Currently, there is no international consensus on how human germline engineering should be regulated. Existing national legislation fails to provide the governance framework necessary to regulate germline engineering in the CRISPR era. This is an obstacle to scientific and clinical advancements and inconsistent with human rights requirements. To move forward, we suggest that the human right to science is an ideal starting point for building consensus, at the national and international levels, on governing principles that promote responsible scientific and technological advancements. Regulatory frameworks must recognize the international nature of modern germline genome engineering research, the need for shared governance rather than tech-locked prohibitions, and the fact that humans are not their germline.
Note: This is the early, pre-edited version, of an article that was eventually published as: Andrea Boggio, Bartha Knoppers, Jessica Almqvist and Cesare Romano, “The Human Right to Science and the Regulation of Human Germline Engineering”, The CRISPR Journal, Vol. 2, No. 3, 2019, pp. 134-142. Also, the article is a synthesis of the book Andrea Boggio, Cesare P.R. Romano, Jessica Almqvist (eds.), Human Germline Genome Modification and the Right to Science: A Comparative Study of National Laws and Policies, Cambridge University Press, 2019.
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