Towards a Human Rights Framework for the Regulation of Human Germline Genome Modification

Andrea Boggio/Cesare Romano/Jessica Almqvist (eds.) Human Germline Genome Modification and the Right to Science: A Comparative Study of National Laws and Policies, Cambridge, CUP (2019)

Loyola Law School, Los Angeles Legal Studies Research Paper 2019-23

37 Pages Posted: 12 Aug 2019 Last revised: 23 Sep 2019

See all articles by Andrea Boggio

Andrea Boggio

Bryant University

Cesare P.R. Romano

Loyola Law School Los Angeles

Jessica Almqvist

Universidad Autónoma de Madrid - Faculty of Law

Date Written: August 11, 2019

Abstract

This is an excerpt from Andrea Boggio, Cesare P.R. Romano, Jessica Almqvist (eds.), Human Germline Genome Modification and the Right to Science: A Comparative Study of National Laws and Policies, Cambridge University Press, 2019. It is the version sent to the publisher, before editing. Please, cite to the published book. This chapter is the conclusions of the book. It gives the reader a summary of the current national regulatory standards in the 18 States discussed in the book, and asks to what extent they meet international human rights standards, and, in particular, the five foundational principles that a reading of international bioethics law combined with international human rights standards suggests: i) freedom of research; ii) benefit sharing; iii) solidarity; iv) respect for dignity; and v) the obligation to respect and to protect the rights and individual freedoms of others.

Suggested Citation

Boggio, Andrea and Romano, Cesare P.R. and Almqvist, Jessica, Towards a Human Rights Framework for the Regulation of Human Germline Genome Modification (August 11, 2019). Andrea Boggio/Cesare Romano/Jessica Almqvist (eds.) Human Germline Genome Modification and the Right to Science: A Comparative Study of National Laws and Policies, Cambridge, CUP (2019), Loyola Law School, Los Angeles Legal Studies Research Paper 2019-23, Available at SSRN: https://ssrn.com/abstract=3435815

Andrea Boggio

Bryant University ( email )

1150 Douglas Pike
Smithfield, RI 02917
United States
4012326455 (Phone)

HOME PAGE: http://departments.bryant.edu/history-and-social-sciences/faculty/andrea-boggio.htm

Cesare P.R. Romano (Contact Author)

Loyola Law School Los Angeles ( email )

919 Albany Street
Los Angeles, CA 90015-1211
United States

Jessica Almqvist

Universidad Autónoma de Madrid - Faculty of Law ( email )

Spain

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