Towards a Human Rights Framework for the Regulation of Human Germline Genome Modification
Andrea Boggio/Cesare Romano/Jessica Almqvist (eds.) Human Germline Genome Modification and the Right to Science: A Comparative Study of National Laws and Policies, Cambridge, CUP (2019)
37 Pages Posted: 12 Aug 2019 Last revised: 23 Sep 2019
Date Written: August 11, 2019
This is an excerpt from Andrea Boggio, Cesare P.R. Romano, Jessica Almqvist (eds.), Human Germline Genome Modification and the Right to Science: A Comparative Study of National Laws and Policies, Cambridge University Press, 2019. It is the version sent to the publisher, before editing. Please, cite to the published book. This chapter is the conclusions of the book. It gives the reader a summary of the current national regulatory standards in the 18 States discussed in the book, and asks to what extent they meet international human rights standards, and, in particular, the five foundational principles that a reading of international bioethics law combined with international human rights standards suggests: i) freedom of research; ii) benefit sharing; iii) solidarity; iv) respect for dignity; and v) the obligation to respect and to protect the rights and individual freedoms of others.
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