To What Extent Does the EU General Data Protection Regulation (GDPR) Apply to Citizen Scientist-led Health Research with Mobile Devices?

Edinburgh School of Law Research Paper No. 2019/32

Journal of Law, Medicine & Ethics, Forthcoming

20 Pages Posted: 22 Oct 2019

See all articles by Edward Dove

Edward Dove

University of Edinburgh - School of Law

Jiahong Chen

University of Nottingham

Date Written: October 22, 2019

Abstract

In this article, we consider the possible application of the European General Data Protection Regulation (GDPR) to “citizen scientist”-led health research with mobile devices. We argue that the GDPR likely does cover this activity, depending on the specific context and the territorial scope. Remaining open questions that result from our analysis lead us to call for a lex specialis that would provide greater clarity and certainty regarding the processing of health data for research purposes, including by these non-traditional researchers.

Keywords: citizen science, data protection, General Data Protection Regulation, health research, mobile devices

Suggested Citation

Dove, Edward and Chen, Jiahong, To What Extent Does the EU General Data Protection Regulation (GDPR) Apply to Citizen Scientist-led Health Research with Mobile Devices? (October 22, 2019). Edinburgh School of Law Research Paper No. 2019/32. Available at SSRN: https://ssrn.com/abstract=3473880 or http://dx.doi.org/10.2139/ssrn.3473880

Edward Dove (Contact Author)

University of Edinburgh - School of Law ( email )

Old College
South Bridge
Edinburgh, EH8 9YL
United Kingdom

Jiahong Chen

University of Nottingham ( email )

United Kingdom

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