Towards Adaptive Governance in Big Data Health Research: Implementing Regulatory Principles
Laurie Laurie G. (ed.). Cambridge Handbook of Health Research Regulation. Cambridge University Press, Cambridge, UK – Forthcoming.
24 Pages Posted: 2 Jan 2020
Date Written: October 2019
In this chapter, we will first make the case for adaptive and principle-based governance of big data research. We will then outline six principles of adaptive governance (AFIRRM) for big data research and discuss key factors for their implementation into effective governance structures and processes.
Keywords: big data research, health research, research ethics, governance, adaptive governance, ethics
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