Personal and Interpersonal Factors and Their Associations With Advance Care Planning Documentation: A Cross-Sectional Survey of Older Adults in Australia

Journal of Pain and Symptom Management, 59(6), 1212-1222.e3.

38 Pages Posted: 19 Mar 2020 Last revised: 20 Jul 2020

See all articles by Marcus Sellars

Marcus Sellars

affiliation not provided to SSRN

Karen Detering

Austin Health

Craig Sinclair

University of New South Wales (UNSW) - ARC Centre of Excellence in Population Ageing Research (CEPAR)

Ben White

Queensland University of Technology - Faculty of Law

Kim Buck

affiliation not provided to SSRN

Rasa Ruseckaite

Monash University - Institute for Safety - Compensation and Recovery Research

Josephine M. Clayton

affiliation not provided to SSRN

Linda Nolte

Austin Health

Date Written: February 25, 2020

Abstract

Context: Personal and interpersonal factors may be influential in a person’s decision to engage in advance care planning (ACP), including completion of ACP documentation.

Objectives: To conduct a cross-sectional survey of older adults accessing Australian general practices, hospitals and residential aged care facilities, with the aim of describing associations between personal factors and self-reported ACP documentation completion.

Methods: Eligible participants included in a national health record audit were approached to complete a survey measuring demographic and health characteristics, preferences for care, worries about the future, and experiences talking with others about ACP and completing ACP documentation.

Results: Of 1082 people eligible to participate in the survey, 507 completed the survey (response rate = 47%; median age 82 years) and 54% (n=272) reported having completed ACP documentation. Having ever discussed ACP with other people (anyone) or a doctor were both significant predictors of ACP documentation completion; whereas having previously spoken specifically to a partner about ACP, currently living with children compared to living alone and being aged 55-69 versus 90-99 years of age were associated with reduced odds of ACP documentation completion.

Conclusions: Approximately half the participants reported having completed ACP documentation. The strongest predictor of ACP documentation completion was having spoken to anyone about ACP followed by having spoken to a doctor about ACP. These findings suggest that discussions about ACP are an important part of the process of completing ACP documentation.

Keywords: health law, medical law, end of life law, end of life care, advance care planning, advance directives, advance care directives

JEL Classification: K10, K32, I10, I18

Suggested Citation

Sellars, Marcus and Detering, Karen and Sinclair, Craig and White, Ben and Buck, Kim and Ruseckaite, Rasa and Clayton, Josephine M. and Nolte, Linda, Personal and Interpersonal Factors and Their Associations With Advance Care Planning Documentation: A Cross-Sectional Survey of Older Adults in Australia (February 25, 2020). Journal of Pain and Symptom Management, 59(6), 1212-1222.e3., Available at SSRN: https://ssrn.com/abstract=3543829

Marcus Sellars

affiliation not provided to SSRN

Karen Detering

Austin Health ( email )

145 Studley Rd
Heidelberg VIC 3084, Melbourne
Australia

Craig Sinclair

University of New South Wales (UNSW) - ARC Centre of Excellence in Population Ageing Research (CEPAR) ( email )

Kensington
High St
Sydney, NSW 2052
Australia

Ben White (Contact Author)

Queensland University of Technology - Faculty of Law ( email )

Level 4, C Block Gardens Point
2 George St
Brisbane, QLD 4000
Australia

HOME PAGE: http://staff.qut.edu.au/staff/whiteb/

Kim Buck

affiliation not provided to SSRN

Rasa Ruseckaite

Monash University - Institute for Safety - Compensation and Recovery Research ( email )

23 Innovation Walk
Wellington Road
Clayton, Victoria 3800
Australia

Josephine M. Clayton

affiliation not provided to SSRN

Linda Nolte

Austin Health ( email )

145 Studley Rd
Heidelberg VIC 3084, Melbourne
Australia

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