Advance Care Planning Participation by People With Dementia: A Cross-Sectional Survey and Medical Record Audit
Bryant J, Sellars M, Waller A, et al. BMJ Supportive & Palliative Care Epub ahead of print: [please include Day Month Year]. doi:10.1136/ bmjspcare-2020-002550
6 Pages Posted: 4 Aug 2021
Date Written: July 9, 2021
Objectives To describe among individuals with dementia: (1) self-reported awareness of, and engagement in, advance care planning; (2) presence of advance care planning documentation in the health record and (3) concordance between self-reported completion of advance care planning and presence of documentation in the health record.
Methods: An Australian prospective multicentre audit and cross-sectional survey. Individuals diagnosed with dementia who were able to speak English and were judged by a healthcare provider as having decision-making capacity were recruited from self-selected hospitals, residential aged care facilities and general practices across Australia.
Results: Fifty-two people with dementia completed surveys and were included. Overall, 59.6% of participants had heard about advance care planning and 55.8% had discussed advance care planning with someone, most often a family member (48.1%). While 38.5% of participants had appointed a medical substitute decision maker, only 26.9% reported that they had written down their values and preferences for future care. Concordance between self-reported completion of advance care planning and presence of documentation in the health record was low (56.8%, κ=0.139; 57.7%, κ=0.053).
Conclusion: Effective models that promote discussion, documentation and accessible storage of advance care planning documents for people with dementia are needed.
Note: Funding: This work was supported by the Australian Government Department of Health.
Declaration of Interests: None declared.
Ethics Approval Statement: The study was approved by the Austin Health Human Research Ethics Committee (HREC/17/Austin/83).
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