Confronting New Issues in Genetic Discrimination

Joly, Yann and Huerne, Katherine and Arych, Mykhailo and Bombard, Yvonne and De Paor, Aisling and Dove, Edward and Granados Moreno, Palmira and Ho, Calvin W.L. and Ho, Chih-Hsing and Van Hoyweghen, Ine and Kim, Hannah and Lebret, Audrey and Minssen, Timo and O Cathaoir, Katharina and Prince, Anya E.

8 Pages Posted: 22 Oct 2021 Last revised: 26 Oct 2021

See all articles by Yann Joly

Yann Joly

McGill University - Centre for Genomics and Policy

Katherine Huerne

McGill University

Mykhailo Arych

National University of Food Technologies

Yvonne Bombard

University of Toronto - Institute of Health Policy, Management and Evaluation

Edward Dove

University of Edinburgh - School of Law

Palmira Granados

McGill University - Centre for Genomics and Policy

Chih-Hsing Ho

Academia Sinica - Institute of European and American Studies

Ine Van Hoyweghen

Life Sciences & Society Lab, Centre for Sociological Research, KU Leuven

Hannah Kim

Yonsei University

Audrey Lebret

University of Copenhagen - Copenhagen University

Timo Minssen

University of Copenhagen - Centre for Advanced Studies in Biomedical Innovation Law (CeBIL) - Faculty of Law

Katharina Ó Cathaoir

University of Copenhagen - Faculty of Law

Anya Prince

University of Iowa College of Law

Margaret Otlowski

University of Tasmania - Faculty of Law

Michael Pepper

University of Pretoria - Faculty of Law

Robert Sladek

McGill University - Department of Medicine

Lingqiao Song

McGill University - Centre for Genomics and Policy

Torsten H. Voigt

affiliation not provided to SSRN

Ma'n H. Zawati

McGill University - Centre of Genomics and Policy

Gratien Dalpe

McGill University - Centre of Genomics and Policy

Date Written: September 9, 2021

Abstract

Genetic discrimination (GD) is the differential or unfair profiling of an individual based on genetic data. This article summarizes the actions of the Genetic Discrimination Observatory (GDO) in addressing GD, and recent developments in GD since late 2020. It shows GD can take many forms in today’s rapidly evolving society.

Keywords: genetic discrimination, ELSI, intersex, moratorium, insurance contract, genetic databases

Suggested Citation

Joly, Yann and Huerne, Katherine and Arych, Mykhailo and Bombard, Yvonne and Dove, Edward and Granados, Palmira and Ho, Chih-Hsing and Van Hoyweghen, Ine and Kim, Hannah and Lebret, Audrey and Minssen, Timo and Ó Cathaoir, Katharina and Prince, Anya and Otlowski, Margaret and Pepper, Michael and Sladek, Robert and Song, Lingqiao and Voigt, Torsten H. and Zawati, Ma'n H. and Dalpe, Gratien, Confronting New Issues in Genetic Discrimination (September 9, 2021). Joly, Yann and Huerne, Katherine and Arych, Mykhailo and Bombard, Yvonne and De Paor, Aisling and Dove, Edward and Granados Moreno, Palmira and Ho, Calvin W.L. and Ho, Chih-Hsing and Van Hoyweghen, Ine and Kim, Hannah and Lebret, Audrey and Minssen, Timo and O Cathaoir, Katharina and Prince, Anya E., Available at SSRN: https://ssrn.com/abstract=3920622 or http://dx.doi.org/10.2139/ssrn.3920622

Yann Joly

McGill University - Centre for Genomics and Policy ( email )

740 Dr. Penfield Avenue, Suite 5200
Montreal, Quebec H3A 0G1
Canada

Katherine Huerne

McGill University ( email )

1001 Sherbrooke St. W
Montreal, Quebec H3A 1G5
Canada

Mykhailo Arych

National University of Food Technologies ( email )

68 Volodymyrska str.
Kyiv, 01601
Ukraine

Yvonne Bombard

University of Toronto - Institute of Health Policy, Management and Evaluation ( email )

Toronto
Canada

Edward Dove

University of Edinburgh - School of Law ( email )

Old College
South Bridge
Edinburgh, EH8 9YL
United Kingdom

Palmira Granados

McGill University - Centre for Genomics and Policy ( email )

740 Dr. Penfield Avenue, Suite 5200
Montreal, Quebec H3A 0G1
Canada

Chih-Hsing Ho

Academia Sinica - Institute of European and American Studies ( email )

Nankang
Taipei, 11529
Taiwan

Ine Van Hoyweghen

Life Sciences & Society Lab, Centre for Sociological Research, KU Leuven ( email )

Oude Markt 13
Leuven, Vlaams-Brabant 3000
Belgium

Hannah Kim

Yonsei University

Seoul
Korea, Republic of (South Korea)

Audrey Lebret

University of Copenhagen - Copenhagen University ( email )

studiestraede 6
copenhagen, 1455
Denmark

Timo Minssen

University of Copenhagen - Centre for Advanced Studies in Biomedical Innovation Law (CeBIL) - Faculty of Law ( email )

Karen Blixens Plads 16
Copenhagen, 2300
Denmark
+46 708 607517 (Phone)

HOME PAGE: http://jura.ku.dk/cebil/staff/profile/?pure=en/persons/381631

Katharina Ó Cathaoir

University of Copenhagen - Faculty of Law ( email )

Studiestraede 6
Studiestrade 6
Copenhagen, DK-1455
Denmark

Anya Prince

University of Iowa College of Law ( email )

Melrose and Byington
Iowa City, IA 52242
United States

Margaret Otlowski

University of Tasmania - Faculty of Law ( email )

Private Bag 89
Hobart
Tasmania, 7001
Australia

Michael Pepper

University of Pretoria - Faculty of Law ( email )

Lynnwood Road
Pretoria, 5100
South Africa

Robert Sladek

McGill University - Department of Medicine

Montreal, Quebec
Canada

Lingqiao Song

McGill University - Centre for Genomics and Policy ( email )

740 Dr. Penfield Avenue, Suite 5200
Montreal, Quebec H3A 0G1
Canada

Torsten H. Voigt

affiliation not provided to SSRN

Ma'n H. Zawati

McGill University - Centre of Genomics and Policy ( email )

740 Dr. Penfield Avenue, Suite 5200
Montreal, Quebec H3A 0G1
Canada

Gratien Dalpe (Contact Author)

McGill University - Centre of Genomics and Policy ( email )

740 Ave Dr Penfield
Montreal, Quebec H3A0G1
Canada

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