The Genetic Discrimination Observatory: confronting novel issues in genetic discrimination

Trends in Genetics

Posted: 16 Sep 2021

See all articles by Yann Joly

Yann Joly

McGill University - Centre for Genomics and Policy

Katherine Huerne

affiliation not provided to SSRN

Mykhailo Arych

affiliation not provided to SSRN

Yvonne Bombard

affiliation not provided to SSRN

Aisling De Paor

affiliation not provided to SSRN

Edward Dove

affiliation not provided to SSRN

Palmira Granados Moreno

affiliation not provided to SSRN

Calvin W.L. Ho

affiliation not provided to SSRN

Chih-Hsing Ho

Academia Sinica - Institute of European and American Studies

Ine Van Hoyweghen

affiliation not provided to SSRN

Hannah Kim

Yonsei University

Audrey Lebret

affiliation not provided to SSRN

Timo Minssen

affiliation not provided to SSRN

Katharina O Cathaoir

affiliation not provided to SSRN

Anya E.R. Prince

affiliation not provided to SSRN

Athira P.S. Nair

affiliation not provided to SSRN

Margaret Otlowski

University of Tasmania - Faculty of Law

Michael S. Pepper

affiliation not provided to SSRN

Robert Sladek

McGill University - Department of Medicine

Lingqiao Song

affiliation not provided to SSRN

Torsten H. Voigt

affiliation not provided to SSRN

Ma'n H. Zawati

McGill University - Centre of Genomics and Policy

Gratien Dalpe

McGill University - Centre of Genomics and Policy

Date Written: September 6, 2021

Abstract

Genetic discrimination (GD) is the differential or unfair profiling of an individual on the basis of genetic data. This article summarizes the actions of the Genetic Discrimination Observatory (GDO) in addressing GD and recent developments in GD since late 2020. It shows how GD can take many forms in today’s rapidly evolving society.

Keywords: genetic discrimination, ethical, legal, and social implications (ELSI), intersex, moratorium, insurance contract, genetic databases

Suggested Citation

Joly, Yann and Huerne, Katherine and Arych, Mykhailo and Bombard, Yvonne and De Paor, Aisling and Dove, Edward and Granados Moreno, Palmira and Ho, Calvin W.L. and Ho, Chih-Hsing and Van Hoyweghen, Ine and Kim, Hannah and Lebret, Audrey and Minssen, Timo and O Cathaoir, Katharina and Prince, Anya E.R. and Nair, Athira P.S. and Otlowski, Margaret and Pepper, Michael S. and Sladek, Robert and Song, Lingqiao and Voigt, Torsten H. and Zawati, Ma'n H. and Dalpe, Gratien, The Genetic Discrimination Observatory: confronting novel issues in genetic discrimination (September 6, 2021). Trends in Genetics, Available at SSRN: https://ssrn.com/abstract=3922891

Yann Joly

McGill University - Centre for Genomics and Policy ( email )

740 Dr. Penfield Avenue, Suite 5200
Montreal, Quebec H3A 0G1
Canada

Katherine Huerne

affiliation not provided to SSRN

Mykhailo Arych

affiliation not provided to SSRN

Yvonne Bombard

affiliation not provided to SSRN

Aisling De Paor

affiliation not provided to SSRN

Edward Dove

affiliation not provided to SSRN

Palmira Granados Moreno

affiliation not provided to SSRN

Calvin W.L. Ho

affiliation not provided to SSRN

Chih-Hsing Ho

Academia Sinica - Institute of European and American Studies ( email )

Nankang
Taipei, 11529
Taiwan

Ine Van Hoyweghen

affiliation not provided to SSRN

Hannah Kim

Yonsei University

Seoul
Korea, Republic of (South Korea)

Audrey Lebret

affiliation not provided to SSRN

Timo Minssen

affiliation not provided to SSRN

Katharina O Cathaoir

affiliation not provided to SSRN

Anya E.R. Prince

affiliation not provided to SSRN

Athira P.S. Nair

affiliation not provided to SSRN

Margaret Otlowski

University of Tasmania - Faculty of Law

Private Bag 89
Hobart
Tasmania, 7001
Australia

Michael S. Pepper

affiliation not provided to SSRN

Robert Sladek

McGill University - Department of Medicine

Montreal, Quebec
Canada

Lingqiao Song

affiliation not provided to SSRN

Torsten H. Voigt

affiliation not provided to SSRN

Ma'n H. Zawati (Contact Author)

McGill University - Centre of Genomics and Policy ( email )

740 Dr. Penfield Avenue, Suite 5200
Montreal, Quebec H3A 0G1
Canada

Gratien Dalpe

McGill University - Centre of Genomics and Policy ( email )

740 Ave Dr Penfield
Montreal, Quebec H3A0G1
Canada

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