ICTs, data and vulnerable people: a guide for citizens

ICTs, data and vulnerable people: a guide for citizens, PANELFIT consortium, UPV-EHU, Bilbao 2021, 36pp.

36 Pages Posted: 11 Oct 2021

See all articles by Andrzej Klimczuk

Andrzej Klimczuk

Warsaw School of Economics (SGH)

Alexandra Castańeda

affiliation not provided to SSRN

Andreas Matheus

affiliation not provided to SSRN

Anna Berti Suman

Luiss Guido Carli University; European Union - European Commission Joint Research Centre-Ispra; Tilburg Institute for Law, Technology and Society - Tilburg University

Annelies Duerinckx

affiliation not provided to SSRN

Christoforos Pavlakis

affiliation not provided to SSRN

Corelia Baibarac-Duignan

affiliation not provided to SSRN

Elisabetta Broglio

affiliation not provided to SSRN

Federico Caruso

affiliation not provided to SSRN

Gefion Thuermer

affiliation not provided to SSRN

Helen Feord

affiliation not provided to SSRN

Janice Asine

affiliation not provided to SSRN

Jaume Peira

affiliation not provided to SSRN

Karen Soacha

affiliation not provided to SSRN

Katerina Zourou

affiliation not provided to SSRN

Katherin Wagenknecht

affiliation not provided to SSRN

Katrin Vohland

Museum für Naturkunde Berlin

Linda Freyburg

affiliation not provided to SSRN

Marcel Leppée

affiliation not provided to SSRN

Marta Camara Oliveira

affiliation not provided to SSRN

Mieke Sterken

affiliation not provided to SSRN

Tim Woods

affiliation not provided to SSRN

Date Written: October 8, 2021

Abstract

ICTs, personal data, digital rights, the GDPR, data privacy, online security… these terms, and the concepts behind them, are increasingly common in our lives. Some of us may be familiar with them, but others are less aware of the growing role of ICTs and data in our lives - and the potential risks this creates. These risks are even more pronounced for vulnerable groups in society. People can be vulnerable in different, often overlapping, ways, which place them at a disadvantage to the majority of citizens; Table 3 in this guide presents some of the many forms and causes of vulnerability. As a result, vulnerable people need greater support to navigate the digital world, and to ensure that they are able to exercise their rights. This guide explains where such support can be found, and also answers the following questions: - What are the main ethical and legal issues around ICTs for vulnerable citizens? - Who is vulnerable in Europe? - How do issues around ICTs affect vulnerable people in particular? This guide is a resource for members of vulnerable groups, people who work with vulnerable groups, and citizens more broadly. It is also useful for data controllers1 who collect data about vulnerable citizens. While focused on citizens in Europe, it may be of interest to people in other parts of the world. It forms part of the Citizens’ Information Pack produced by the PANELFIT project, and is available in English, French, German, Italian and Spanish. You are welcome to translate this guide into other languages. Please send us a link to online versions in other languages, so that we can add them to the project website.

Keywords: General Data Protection Regulation (GDPR), ICTs, citizen science, data management, legal and ethical issues, vulnerability

JEL Classification: C89, Z19, D89

Suggested Citation

Klimczuk, Andrzej and Castańeda, Alexandra and Matheus, Andreas and Berti Suman, Anna and Duerinckx, Annelies and Pavlakis, Christoforos and Baibarac-Duignan, Corelia and Broglio, Elisabetta and Caruso, Federico and Thuermer, Gefion and Feord, Helen and Asine, Janice and Peira, Jaume and Soacha, Karen and Zourou, Katerina and Wagenknecht, Katherin and Vohland, Katrin and Freyburg, Linda and Leppée, Marcel and Camara Oliveira, Marta and Sterken, Mieke and Woods, Tim, ICTs, data and vulnerable people: a guide for citizens (October 8, 2021). ICTs, data and vulnerable people: a guide for citizens, PANELFIT consortium, UPV-EHU, Bilbao 2021, 36pp., Available at SSRN: https://ssrn.com/abstract=3939143

Andrzej Klimczuk (Contact Author)

Warsaw School of Economics (SGH) ( email )

HOME PAGE: http://www.sgh.waw.pl/

Alexandra Castańeda

affiliation not provided to SSRN

Andreas Matheus

affiliation not provided to SSRN

Anna Berti Suman

Luiss Guido Carli University ( email )

Via O. Tommasini 1
Rome, Roma 00100
Italy

European Union - European Commission Joint Research Centre-Ispra ( email )

Via Fermi
Ispra, Varese 21027
Italy

Tilburg Institute for Law, Technology and Society - Tilburg University ( email )

PO Box 90153
5000 LE
Netherlands

Annelies Duerinckx

affiliation not provided to SSRN

Christoforos Pavlakis

affiliation not provided to SSRN

Corelia Baibarac-Duignan

affiliation not provided to SSRN

Elisabetta Broglio

affiliation not provided to SSRN

Federico Caruso

affiliation not provided to SSRN

Gefion Thuermer

affiliation not provided to SSRN

Helen Feord

affiliation not provided to SSRN

Janice Asine

affiliation not provided to SSRN

Jaume Peira

affiliation not provided to SSRN

Karen Soacha

affiliation not provided to SSRN

Katerina Zourou

affiliation not provided to SSRN

Katherin Wagenknecht

affiliation not provided to SSRN

Katrin Vohland

Museum für Naturkunde Berlin

Invalidenstr. 43
Berlin, 10115
Germany

Linda Freyburg

affiliation not provided to SSRN

Marcel Leppée

affiliation not provided to SSRN

Marta Camara Oliveira

affiliation not provided to SSRN

Mieke Sterken

affiliation not provided to SSRN

Tim Woods

affiliation not provided to SSRN

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