Free the Data but Not the Human Subjects Identifiers

4 Pages Posted: 28 Dec 2022

See all articles by Robin Throne

Robin Throne

Western Governors University

Date Written: December 15, 2022

Abstract

Data ethics have shifted from the “free the data” movement in the 2010s to an era of regulatory considerations as technological advances in artificial intelligence, machine learning, and data mining in the 2020s to escalate awareness of the risk and dangers to individual privacy for the release of data with personally identifiable information and human subject identifiers. This commentary provides highlights of the concurrent U.S. and global regulatory groups considering immediate and needed regulatory changes to protect personally identifiable information and data with human subjects identifiers in this new decade. It remains essential in this time of momentous change for leadership of institutional review boards, human research protection programs, and other research ethics committees to remain attentive to these emergent policy events in the context of human subjects research as discussions continue into a new year for ongoing conversations around data privacy.

Keywords: Data Ethics, Data Deidentification, Human Subjects Data, Human Subjects Identifiers, Data Mining, Data Privacy

Suggested Citation

Throne, Robin, Free the Data but Not the Human Subjects Identifiers (December 15, 2022). Available at SSRN: https://ssrn.com/abstract=4304179 or http://dx.doi.org/10.2139/ssrn.4304179

Robin Throne (Contact Author)

Western Governors University ( email )

4001 S 700 E #700
Salt Lake City, UT 84107
United States

HOME PAGE: http://robinthrone.com/

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