Understanding the Influence of Cultural Beliefs on the Experiences of Latina Mothers of Children with Autism Spectrum Disorder

Abstract

Disparities in the diagnosis and treatment of children with autism spectrum disorder (ASD) persist amongst Latino children compared to non-Latino White children. This qualitative study focuses on the experiences of Latina mothers of children with ASD to explore how cultural beliefs influence their acceptance of their child’s diagnosis and their willingness to seek intervention services. Eleven Latina mothers participated in individual semi-structured interviews; eight interviews were conducted in Spanish. Interviews revealed the following themes: (1) resilience, (2) family resistance to accept the diagnosis, (3) lack of understanding of ASD, (4) a sense of relief, (5) heavy emotions, (6) negative family response; (7) support and understanding outside the family; and (8) mothers as advocates for their children. Findings highlight the importance of addressing cultural beliefs and barriers that interfere with diagnosis and appropriate services for children ASD in the Latino community. Implications for policy and practice are discussed.

Keywords: autism, families, culture