Heidelberg University - University Medical Centre Mannheim, Leiden University - Department of Neurosurgery, IRCCS Istituto Giannina Gaslini, Hospital Universitario Virgen de la Victoria, affiliation not provided to SSRN, affiliation not provided to SSRN, Otto von Guericke University Magdeburg, KU Leuven - University Hospitals Leuven, University of Tokyo - The University of Tokyo Hospital, affiliation not provided to SSRN and Guy's and St Thomas' NHS Foundation Trust - Evelina London Children's Hospital

University of Melbourne - Murdoch Children's Research Institute, Guy's and St Thomas' NHS Foundation Trust - Evelina London Children's Hospital, Emory University - School of Medicine, Baylor College of Medicine, Johns Hopkins University - School of Medicine, University of California, San Francisco (UCSF) - Benioff Children's Hospital, The Lundquist Institute for Biomedical Innovation at Harbor-UCLA Medical Center, Otto-von-Guericke-Universität Magdeburg, Ann & Robert H. Lurie Children’s Hospital of Chicago, The University of Osaka - Graduate School of Medicine, Sheffield Children's NHS Foundation Trust - Highly Specialised Osteogenesis Imperfecta Service, Tokushima University, Hospital Universitario Virgen de la Victoria, Nemours/Alfred I. duPont Hospital for Children, University of Texas at Houston - McGovern Medical School, University of Wisconsin-Madison - School of Medicine and Public Health, BioMarin (UK) Limited, Ltd., BioMarin (UK) Limited, Ltd., BioMarin (UK) Limited, Ltd., BioMarin (UK) Limited, Ltd. and BioMarin (UK) Limited, Ltd.